Our beautiful Daryan is on his way home, accompanied by his wonderful mother. He had spent three months at Shevet Achim and has become a part of all our hearts. As I made his Farewell DVD I saw the immense change Daryan went through in his time here. Daryan arrived as a very shy and introverted boy. He hated medical procedures and made that very clear to the nurses as they tried to take his vitals. During his journey with us, he opened up more and more. Now we are saying goodbye to this smiling and beautiful young boy.
Daryan has developed a wonderful personality, and also a love for all of the staff. However, he is still not very happy about medical procedures. Adding to that, he found strength that made him able to go through several Echos and a huge surgery. It was beautiful to witness his healing process since he showed a big change after recovering from his surgery. Even though we had seen Daryan smile before the surgery, it was nothing in comparison to the smiling and happy boy he turned into after the problem was dealt with.
He connected more with the other kids and built new friendships for example with Rovar. .It was not only Daryan that stole our heart. His mum did as well. Her beautiful spirit and of course her amazing cakes will be deeply missed. The love she poured into each one of us and Daryan is both impressive and touching. Even though she did feel sick sometimes, she got up and gave all her energy into the care for others. There was nothing that she wouldn’t have done for her son. My prayer is that both of them will have a beautiful reunion with their families and that Daryan will grow up to the beautiful young man God designed him to be.
The close of three months and 22 days!
We had to go to the hospital very early this morning. We praised the Lord for the roads being so empty and we prayed that Daryan would have a good echo today. The Doctor had requested an Echo under sedation. We were the first ones on the list but still had to wait for the staff to get all the equipment ready for that procedure.
Daryan is full of energy so he spent most of the time at the playground.
They started the process of getting his oxygen-saturation count by placing a little read-out machine on Daryan’s toe, but he started to cry and removed the cable! The Doctor used nasal drops for the sedation later on but I think they did not work much because he was moving and crying.
Finally, they got the results they needed and the Doctor told the mother that the echo was looking good. However, Daryan will need follow-up care by the cardiologist in Kurdistan. They need to monitor his mitral valve and the left side of the heart. The Doctor also said we’ve done the best we could do for him here. We need to pray that Daryan’s mitral valve is OK in the future.
Then the Doctor gave the good news to Daryan’s mother that Daryan is clear to go back home. Daryan and his patient mother have been here three months and 22 days! Needless to say, the mother was really happy and thankful to everyone at Shevet and to the Sheba personnel. We continue to pray that Daryan’s little heart will keep working well and that he will someday praise his creator.
Since the disappointing news last week from Daryan’s echo, almost every day, Daryan’s lovely mum has asked us to pray for him. She has been worried that the surgery was unsuccessful and that he would need another catheterisation or surgery. So before we set off for the hospital, I was asked what the whole community could pray for. I thought, how can I even really describe succinctly how much we are longing with his mother for God’s provision of a healthy heart for Daryan, and for him to be calm during his echo. He still screams at the sight of anything he associates with “tests” even at home. I felt our great need and how much we lack without God. Before we left, Jonathan paraphrased the words of Jacob in Genesis 32.26, “I will not…go unless you bless me!
So, we set off together into the stormy morning. Daryan had been awakened early, so hopefully he would sleep during the echo, but he became sleepy on the journey! We all tried to keep him awake with the jolliest and loudest music Alena could find. To our delight, Daryan especially enjoyed “I saw Three Ships”. We all laughed together at how ridiculous the situation seemed.
Thank God, at the hospital, we were able to get a good assessment done with clear images for his echo, and short bursts of time where Daryan was calm for the ECG. The staff are always very patient and kind with him. He looked so sweet wrapped up in his mum’s sparkly jumper.
We spoke to the cardiologist, and I almost couldn’t believe that he was talking about the right child when he told me that the echo looked good and that it’s likely that next week Daryan can go home to Kurdistan!! He said that the problem with his mitral valve, which had been observed last week, was not a problem according to today’s assessment. Daryan’s mum was so happy to hear this news and we thanked God together from our hearts for His goodness to Daryan.
Early this morning, Daryan’s mother and Daryan woke up early to prepare for today. She was hoping that Daryan would be tired later so that he would fall asleep for his first echocardiogram appointment after his surgery.
Daryan had a wonderful time playing around the cardiology unit, and loved making cat sounds which matched his warm, pink, cat sweater. His mother patiently waited for his appointment. He did sleep soundly for a long time, but eventually woke up when we all prepared for the echo. During the echo-cardiogram Lisa, Daryan’s mother, and I probably exhausted all the children’s songs available to try to calm him down. They were still able to complete the echo-cardiogram though, and the doctor even sang along to many of the songs.
His echo revealed that the pressure gradient of his mitral valve is higher than what the cardiologist would like to see, especially after the surgical attempt to repair it. However the doctor wants to reassess in a week, and we will continue to pray for this next appointment.
Please pray for Daryan and his mother as they wait for this next appointment. The last three months have been filled with patient waiting, and Daryan’s mother is eager to return to her family and home in Kurdistan. Daryan’s mom has been such a blessing to us; however, we do hope to celebrate Daryan’s farewell party soon for the sake of Daryan’s whole family.
A blessing around every corner
Our beloved Daryan took on a visit to the hospital today. He was scheduled to have a blood test. As we arrived we received the first of many blessings. While Colin was holding him he showed his big smile and love for her. Both of us were very happy to see this because we knew that Daryan would not like the procedure later on.
Entering the department, Daryan seemed to remember this place and he started to cry. Just the thought on giving blood seemed to scare him immensely. Seeing his pain, his mum and I tried to cheer him up but we could not take Daryan’s pain. As the nurse tried to insert the needle, she began to shake her head and told us that she could not see his veins clearly enough. A few seconds later we were told to go to the Emergency Room and let them do the test.
Our hope on a quick procedure was gone but as God promised all things worked out for the best. During our wait in front of the Emergency Room, Daryan seemed to forget about what had happened and his beautiful smile reappeared. He was running around laughing and showing me and his mum what sounds Shevy (our community dog) or a cat make. His joy was not lessened by the time of waiting nor by the memory of the morning. This pure joy amazed me and I was glad to be with him and to receive a portion of this joy as well.
But God’s blessings have no end, He gives his children more than we might expect. After one hour of waiting the doctor that we spoke to at the beginning, came out to transport another patient. Upon seeing us, he came to me and apologized that we had to wait so long. On his way back, he took on Daryan’s case himself and successfully took a blood sample from Daryan in one try. Little Daryan did not have to suffer for long and his joy continued the rest of the day.
After we finished up in the Emergency Room, God gave Daryan’s mum a precious gift. Since we were not ready to go yet, she was able to visit Neena’s mum. The two friends talked and hung out with each other. A day filled with God’s amazing blessings.
Today we were able to bring a beloved member of our Shevet family back home. Strong Daryan has been recovering very well and was discharged today.
Meeting Daryan and his mom was to look into the eyes of a happy mom and a happy Daryan. Daryan‘s mom sat next to me and told me that the Doctor called him”Dachan“ instead of Daryan. We both started laughing and it was great to see her and “Dachan“ in such a great state.
Later, I saw Daryan‘s mom when she came to wait with Taman‘s mom. Her beautiful smile lit up the waiting area and comforted Taman‘s mom.
Sitting there, Daryan encountered plastic cups and we began to build small cup-sculptures and then dance with the plastic cups. Daryan‘s beautiful smile lit up and I was amazed how he was smiling even more after the surgery than before.
Finally we took Daryan and his mom home. As we arrived in front of the house, Daryan and Rovar were welcomed lovingly. Little Israa and her Dad came out and all of the children smiled happily at each other. A beautiful time.
Since the last update, Daryan has been successfully extubated and his chest tube drains have been removed. This is very good progress, and his mother is very thankful and pleased. He is still on low oxygen support, but we are hopeful that he will be weaned off of oxygen support soon.
Daryan’s mother is feeling more comfortable with and at the hospital, and she was happy to have Neena’s mother join her at the hospital today. It must be comforting to share the same ‘heart’ language.
I tried to explain the medical equipment to her, and she asked many questions regarding the health status of her only son. I found comfort in knowing that God possesses knowledge that surpasses all human understanding, and that he desires to connect with each human in their own heart language.
Please pray that Daryan’s family would feel loved and understood, because God truly loves and understands them.
His family has been waiting and waiting, and finally we got the call to bring Daryan for surgery. He arrived at the hospital and we had to try to calm him down and get him to sleep for his ECG. After three unsuccessful attempts and 2.5 hours of trying, the test done with good results. Then he was awake and ready to go again! When they were ready with a bed for us, we migrated to the secondary ICU unit where he was thrilled to see that his friend Israa was in the bed right next to him. We began the check in process and he was not impressed with the admission band around his leg or the oxygen monitor, but the real issue came when it was time to draw blood. He was not at all pleased, and it was very difficult for us to get the blood needed for the tests! This was rough for both him and his mother, so I decided to stay with them through the night. His mother is alone in a strange country with her only son about to have a major surgery and she cannot speak their language, only her native Kurdish. I am so thankful that I did, as God orchestrates all things well and she was so very thankful that I stayed. Daryan napped for a short time and we were getting ready to do a shower to prepare him for surgery when they came to say that one of the blood tests didn’t have a correct reading because they didn’t have enough blood and would have to draw more. This round didn’t go overly well either, but when we were finished we got him showered and he was happy to cuddle with his mom and ready to eat. She gave him a bite of plain yogurt which he apparently hasn’t had before and the look on his face was hilarious! He wrinkled his nose and stuck his tongue out but didn’t spit it out, just made a funny face. He was much more impressed with the chocolate pudding and this allowed me to capture a photo of his beautiful smile.
We showered him for a second time at six and the anesthesiologist came for signatures and we were escorted to surgery. They allowed his mother to gown up and go in with him while they put him to sleep and then the long wait began. We went to the ICU waiting area, and were both so tired emotionally and physically that we layed down on the benches and slept for a while. When we woke up I found us some tea and food and we had breakfast together. We went down to visit Rovar and his mother, and they chatted away for a bit and I am reminded of how they must feel most of the time as I couldn’t understand anything they said. When we went back up to the waiting room, Halala gave me a Kurdish lesson. I am trying my best to remember at least a few of the words! They finished about a half an hour sooner than they said they would which is a very good sign, and we watched them roll him from the OR to his room.
He looked very good, and his mother was so relieved to see him! She called his father and a few family members to let them know that everything went well and we practiced some more Kurdish until we were allowed to go in. The Doctors said that the surgery went exceptionally well, and they were able to repair all three of the areas they had hoped to, and that Daryan is doing so well! This is a wonderful miracle after some of the things they had thought early on in his case and we are so thankful! I was so happy I was jumping up and down and praising our God for His hand at work! Our God is so great! He orchestrated things so that I was able to get Halala settled in and was ready to leave with the hospital team to go home knowing that his mother could now get some rest and sleep near her son knowing that he is going to be okay! What a mighty God we serve! Please pray that he will continue to reveal the Messiah’s great love to them and for a speedy recovery for Daryan! Glory be to God!
Disappointment for Daryan
Daryan and his mother came to the hospital today, she said to me that now she has been here for 71 days. At the house she has been very patient in the waiting time, and kept herself busy making some very delicious cakes. Daryan has settled in at the house increasingly, and getting steadier on his feet.
Today was supposed to be a special echo appointment to help plan his surgery. Daryan was extremely upset and distressed with all of the attempts at the assessment, for example the ECG and the echo, and so it wasn’t possible for these to be carried out. His mum worked hard to send him off to sleep, carrying him in her arms.
There was a time where he did sleep, and it was possible to get some images of the echo, however when it was time to start the special part of the echo, Daryan was awake and really screaming, so it was discontinued.
It was a real disappointment for Daryan’s mum that he was unable to have this assessment done today. Hopefully they will be able to schedule an alternative for him soon. Please pray for his mum as she continues to wait for him, that she can know she is not alone in her waiting here.
Written by Christiane
The waiting area – a big playground for Daryan today who was getting a CT. Because he was getting a mild anesthesia he had to fast, and therefore was not too happy in the morning, but was walking about happily once in the hospital. We prayed for Daryan and his mum and all went well. We pray for God’s wisdom for the doctors of dear Daryan and that he will be able to grow up a healthy boy!
After a week of waiting, Daryan was scheduled for his first assessment at the hospital today. His mum diligently and tirelessly cared for him as he played and explored the train in the waiting area. He is her only child, and is such a treasure for her.
Thank God for looking with mercy over Daryan’s appointment today, because although he screamed and cried at the start of the echo, he quickly fell asleep, and the doctor and radiographer were able to study his heart for over an hour! Thank God that they were able to get such good images, when it looked so unlikely in the beginning.
The doctor confirmed the diagnosis from Kurdistan, and he needs to take Daryan’s case to conference, and discuss what is the best plan for surgical intervention for Daryan. Hopefully we will be hearing soon, and Daryan can be scheduled for surgery.
Daryan is naturally curious and loved viewing the airplanes from the window. He appeared very tired, as expected from a long night and morning of travel. He was brave in trying new tasks, and even took my temperature during his assessment.
Daryan is an 18 month male that is accompanied by his mother. According to his previous medical reports, Daryan was diagnosed with bicuspid aortic valve and coarctation of the aorta with aortic stenosis. This means that due to his aortic valve forming with two, rather than three cusps. This causes Daryan’s aortic valve to be stenotic, or narrowed. When the valve is stenotic, it has difficulty opening fully, which inhibits some blood to travel to the rest of the body. Daryan’s aorta, a major blood vessel that carries oxygenated blood from the heart to the rest of the body, is also very narrow. This inhibits the ability of the oxygenated blood to travel efficiently to the rest of the body.
My prayer is that we would be able to listen and learn more about Daryan and his family. Please pray for him to find rest and strength in God.