Mir and mum return to Kurdistan
This past Friday evening, Mir had a very nice farewell party.
During this time, we all shared what we love about Mir and his lovely mother and how much of a pleasure it has been for us to spend time together with them during their stay here.
Mir’s mother was very happy to hear this and expressed her thankfulness and love, not only to everyone at Shevet, but also to all the people who couldn’t join us for the farewell party but put forth an effort in bringing them here.
She cried because she is so thankful for everything. It was moving and beautiful to see this. Of course they also received some lovely presents from our community which included the Shevet Achim T-shirt which they all love.
Co-worker Sebastian and I brought them to the airport today early in the morning.
Everything went well at the security, thank God. Mir and his mother are really looking forward to being back with their family soon. We all love them and are happy and thankful for what God has done in Mir’s life so far.
On the other hand, we are also very sad here at the community home Mir and his mum felt like family to us and of course also to the other families. But the happiness to return definitely outweighs this. Thank you for your prayers for this lovely woman and her lovely son.
Echo today, follow-up next week
Mir’s mum and I sat outside his cardiologist’s office today after his echo-cardiogram. We were waiting to speak with the doctor when Mir’s mum brought up a topic previously mentioned the first time we came to Sheba hospital together for Mir’s assessment. Her older son has autism. She told me again of her experience with the healthcare treatment for autism in Kurdistan. She said the doctors there never told her that her son had autism. Instead, she said they just gave him more medicine and more medicine. According to Mir’s mother, this medicine didn’t ever help him.
I looked at this woman who is doing everything she can for her children, and the thought of her actively seeking help for them, and being met with indifference and false information was both enraging and heart-breaking.
She was eager to gather as much information from the doctor today, who minutes before, had explained that Mir does need a structural repair of his L-TGA at this time. He certainly will need this repair in the future and it will be a big surgery, but his heart does not need immediate intervention. Mir’s pacemaker is helping the electrical abnormalities caused by his condition.
The doctor also said it is better for Mir to gain weight now, given the magnitude of the operation. Ideally, he will have this surgery when he is around fifteen kilograms, and he is currently just under six kilograms! He will have another follow-up next week to make sure he can for sure return home.
My hope is that for the disappointment and frustration she faced in Kurdistan, Mir’s mother has known love and honesty here. I don’t want to downplay the disparity in resources that exacerbate the difference in quality of healthcare between Israel and Kurdistan, or say that no good doctor exists in that country; there surely are conscientious doctors. Still, when the time comes for Mir to have his operation in the future, I pray she will take strength and comfort from knowing there will always be a place for her and her son with us and with the doctors at Sheba.
Successful pacemaker surgery
Mir is such a lovely boy and we all adore him. He came out of his pacemaker surgery after two hours. It was successful, thank God, and now, after he is recovered from this, the doctors will plan to repair his structural problems as well.
Throughout the day of her son’s first surgery, Mir’s mother was so peaceful. She was often praying under her breath and conversing with the other Kurdish families who are also in the hospital. She appreciated the time the families were able to sit together, was encouraged by it, and said there isn’t anything shared quite like this in the hospitals where she is from.
Admitted for pacemaker surgery
We admitted Mir tonight for his pacemaker surgery tomorrow; his mother had a mixture of emotions as she said goodbye to the other families, but thankfully Mir was admitted with another child, so she is not alone for her first night in the hospital.
Once we got into the hospital room at Sheba hospital, there was a rush of things that were done to attach Mir to the monitors. They also took his vitals, they gave him another corona test, some blood work, and a canula insertion. Throughout everything, Mir coped so well. He resumed his usual contemplative demeanor while rolling around in the crib.
Please pray for this sweet boy as he goes into his first surgery tomorrow.
Seven month old Mir had his first assessment today at Sheba hospital after arriving from Kurdistan this past Thursday. Because all of the new Kurdish families are quarantined today, this was the first extended time we had with Mir and his mother.
It was a busy day. When we checked into cardiology, they sent us downstairs for a blood test before the echo. Co-worker Georgia and I were surprised at how little Mir cried when the nurse drew blood. He was very calm! He seemed to really like interacting with everyone; before his echo he was relaxed and playing with his feet.
The technician took over 200 snapshots of his heart, which confirmed the diagnosis of L- TGA which is when the right and left ventricles are switched. The doctors will discuss his case in their meeting and then his treatment will go from there.
The first hospital day for Kurdish families is often intense and overwhelming. New country, new language, new hospital, new system, new everything. One thing that stayed with me was when Mir’s mother said sometimes doctors in Iraq told worried parents the answers they wanted to hear, that everything was fine, even when it was not.
I hope this family can find rest and peace here knowing that lies are not what they will find here. The answers may be hard at times, but they will be honest. I also hope so much that Mir’s mother will come to know that the best and utmost is being done for her son on the part of all concerned.
Please pray for Mir and his mum as the process begins of waiting for surgery and all that this potentially involves. May she be filled with peace and hope in the knowledge that her son is being ceaselessly cared for.
Today little Mir and her mom arrived with five other families at the Jordan boarder crossing to Israel. We traveled there with our Shevet vans to collect them with their luggage. We enjoyed a little concert of crying babies. All the babies received some milk at that point, and then we were ready for the last wing of their traveling, to our community home in Jaffa.
Leaving the crossing point, the security man checked the passports, and said to all of us in the car with a very friendly voice, “Welcome to Israel!”
I thank God that a way was fashioned for these families, including for Mir and her mother. She will have her first appointment next week, so please pray for the upcoming treatment and for the whole time they spend here with us in Israel!