Sulaiman’s health has been an answer to so many prayers across the world, as I think many people have been captured by his beautiful eyes and smile, and then the difficult story of his hospitalization, including time on ECMO and having bleeding in his brain.
For Sulaiman and other children before him, there is one post-operative appointment that makes parents very anxious. Since he has been on the ECMO machine in the children’s cardiac department at Sheba hospital, Suli and his mother have been waiting to see a neurologist to make sure there isn’t a problem with his brain after his difficult recovery and time on the life-support machine. He did have a small amount of bleeding in his brain during his hospitalization, which was very scary for his mother.
Today, Suli was able to see the neurologist, who did not see any brain damage and only recommended to Suli’s mother that Suli spend ample time on his stomach to build his muscle tone. To say that his mother was relieved, is an understatement.
It isn’t always as simple and as easy an outcome for many children who are as sick as Sulaiman was, but truly, we thank God for how little Sulaiman has recovered. We thank God for how the anxious concerns, formerly carried on this mother’s shoulders, finally found release in the words of the doctor who gave a good assessment. Thank you for your prayers for this mother and son and for that son’s brighter future.
Sulaiman’s mother returned to the hospital this morning after a night of rest in Jaffa, and on the way expressed her worries for her baby, and how she is finding it hard to bear these days, wondering and hoping for Sulaiman’s health. I was pleased to hear from her that she thinks very highly of two specific nurses and one specific doctor, all of whom speak Arabic and it sounds as though they have been taking care of her and Sulaiman with kindness.
The main Cardiologist today told us that she saw in Sulaiman’s echo that he is slightly better today, in terms of his heart function. Still he remains on ECMO, but it could be possible tomorrow to try again to wean him off of the ECMO and see how the heart copes. Still, there is a lot to be considered about his condition and anatomy, and thankfully he is in excellent hands with the medical team here.
His mother is hoping that tomorrow she might be able to go and pray for him at the Temple Mount in Jerusalem. We will know more in the morning after the doctors meet together, whether it’s a suitable day for her to be leaving him. She is very devoted to him, and it is hard to see her unable to really rest, missing holding him, and worrying for his health.
Please keep praying for him.
His mother understands that his heart is quite weak, and she is understandably worried, especially after witnessing the death of another Kurdish baby at the end of last week, who suffered with the same heart defect as Sulaiman.
For me, it was chilling as we re-entered the doors of the ICU, and walked past the room where together we had previously watched that mother grieving the last minutes of her baby’s life. We stood outside the room of Sulaiman, and for Sulaiman’s mother, feelings must have been magnified even more so than mine.
Sulaiman has been having head ultrasounds each day, as he is receiving blood-thinning medication. So far each day, these tests have come back without any anomalies.
Despite the lack of real improvement in Sulaiman’s echo, the medical team attempted to see whether it could be that Sulaiman’s heart might be ready to function without the ECMO today. They found that he is not yet ready, so he remains in his room, with his chest open, machines bleeping around him, continuing on ECMO.
His mother asked to return home to our community home in Jaffa and sleep there tonight which the doctor was in agreement with. Hopefully this ‘home away from home’ gives her a little respite. As she left the ICU this evening, her parting words to the nurse were to please, “look after my boy.”
She is extremely worried, and we are hoping and praying for the best for her precious son.
Before he went into his surgery, Suli’s mother was told that there is a possibility they will have to put him on the ECMO machine as it is a big surgery for this small boy. Indeed, Suli was connected to the ECMO machine because his heart needs to have some rest from the surgery. I’m really thankful that God has given such machines that are able to help little ones.
Doctors brought him up to the ICU after the surgery and said even though Suli is connected to the ECMO machine, they are quite pleased with his condition after the surgery, and that his numbers look good. This was good news but recovery is a fragile process for all these children and Suli has to go through that now.
His mother is coping well with all of the circumstances and it was a nice waiting-time we spent together even though that there are the language barriers. The waiting time is always a good opportunity to get to know our Kurdish and Gazan mothers and fathers.
Today Suli underwent another surgery where they widened his coronary arteries as they have been quite narrow. Also this surgery went well for him. Praise God. His mother is a lovely woman and she was urged to see him both times after his surgeries.
Presently she cannot sleep together with him in a room because his chest is open, and it would be a high risk to get for Suli to become infected with something. His mother is allowed to enter his room briefly however from time to time, to see her beloved son.
Please keep this lovely mother and cute Suli’s recovery in your prayers.
We brought Sulaiman to Sheba hospital today which was supposed to be his admission for surgery. However he has a cough and congestion in his chest, so everyone thought it was best to postpone the operation until he is better.
Please pray for this lovely, charming boy. He will have the same two stage surgery as many of the other babies and the recovery has been difficult for some who are also four months like Sulaiman, so he needs to be one hundred percent as healthy as possible in preparation.