Echo today; more treatment needed
Today, coworker Ben and I went to Erez Border crossing to collect Sundis and her mother and bring them to Sheba Medical Center.
Sundis had first a appointment at the gastro clinic. The doctor is assuming that she has some liver problems so he scheduled a gastroscopy which Sundis will have in a few months to see what exactly is going on.
Sundis also had an echo today. The doctor told me that for now, Sundis is doing okay but she definitely needs further treatment.
All the doctors have to discuss together what to do exactly for Sundis, and it is possible she will need a heart valve implant. Please pray that the Lord will give wisdom to the doctors and that he will bless Sundis and her lovely mother.
Today, coworker Amelie and I picked up Sundis from The Erez border crossing of Gaza. I was very happy to see her again because she was the first Gaza child I have seen in my time here at Shevet.
Sundis underwent an echo and kept a pacemaker appointment today at Sheba Hospital. The doctors said that everything looks good for now and that she has to come again for another check-up in two months.
Her second appointment was at the adult cardiac building, so a van picked us up to bring us there. While waiting outside, Sundis enjoyed making some pictures with me.
One doctor said today that he is so glad to see Sundis alive and doing so well. Let’s thank God for everything He has done in Sundis’ life and bless the doctors and medical staff that have been able to help her!
Back in our Jaffa home for a few days
We are very happy that Sundis, who is full of life and her friendly mother were discharged from the hospital today and are staying with us in Jaffa for some days. They have been in the hospital for some months now. Due to this, the Shevet van was filled with bags and presents and things, they received from the hospital during their time there.
It is nice to see how much the hospital cares for the children. Sundis needs to go back to the hospital in the next few days to check on her condition. During the waiting time but meanwhile, we are happy that she is with us and one of our other Gaza children. with her from staying together in the hospital is very happy as well to have a friend now at the community home in Jaffa. Please pray for a nice time for Sundis and her mother.
Another surgery on Thursday
If you look closely in the picture in the left corner on the top, you can see a MacDonald’s box. When I went to Sheba hospital to visit Sundis and her lovely mother today, they shared with me that one of the doctors got it for Sundis. That shows once again how much the hospital cares for all of our children. Sundis even offered me some of it and was not willing to accept a no as an answer. She is really kind even though she doesn’t like it very much if you take a picture of her.
Sundis needs another heart surgery, which is planned for this coming Thursday. Please continue to pray for her.
Sundis was very tired when I met her in her room at Sheba hospital. I think it’s a hard time she is going through.
She is currently back in the pediatric ICU because there is liquid around her lungs. The doctors had to use a chest drain. Tomorrow they will do an ultrasound to know more about it.
Please pray for Sundis and also her mother who is caring so sweetly for her daughter.
Sundis had an operation today at Sheba Medical to place a new pacemaker. The surgery went very well and when her mother and I went to see her, she was already extubated and waking up.
Sundis’ old pacemaker is still in place. The doctor said they will leave it until they see that the new one is working properly. For now, they will wait and see how she recovers before deciding on a further course of treatment.
Please pray that the new pacemaker functions well and for a complete recovery for Sundis.
Surgery delayed by infection
This afternoon, I found Sundis painting a picture and chatting with her older sisters on the phone. She seems to be coming out of her shell a bit more every time we visit her. Her mother is always excited for visitors and eager to introduce us to her older daughters via video call.
According to a doctor in the Sheba hospital pediatric ward, Sundis has an infection in her blood that is delaying her surgery. Please pray that the infection will clear quickly with treatment so the doctors can proceed with her surgery as planned.
According to a floor nurse, Doctors are waiting in their decision regarding Sundis’s next surgery and sometimes it takes doctors a while to decide on their direction when it involves a major surgery.
Meanwhile, Sundis is a special girl. When I first arrived to Sheba hospital today, and stood at the entrance to Sundis’s room, Sundis came to me immediately. She looked at me with curiosity and loved my hand bag. But the moment I stepped into the room, she was really shy. It was interesting to see how she changed in a couple of seconds; on the one hand shy, but on the other, she wants to be part of everything.
An updated plan of treatment
Sundis’ echo at Sheba hospital last week, showed that her pacemaker was not working; the doctors have now synchronized it to her heart, so it should function properly now.
However, a conduit that was placed ten years ago between her right ventricle and pulmonary artery, has now narrowed and her doctors are considering the best course of treatment. Additionally, they would like Sundis to see some other specialists, including a neurologist, to assess her development.
When coworker Alena and I visited Sundis this afternoon, we found her exploring up and down the hallway in the pediatric ward. She’s active and curious, but very shy.
Please pray that the doctors would determine the best intervention for Sundis’ narrowed conduit, and for her continued growth and development.