This morning some machines that our little Liya needed to go home with, arrived at Sheba hospital. She needs an oxygen machine and suction machine as she still has a tracheostomy and her parents also have to be able to measure her oxygen.
It took a long time until we organized all the medicine, milk and other things that our little girl needs to stay safe at home, but once everything was figured out, her mom was thrilled to finally go home! After nearly eight weeks in the hospital, I can understand her mother very well.
We will miss Liya’s mom very much during our daily visits in the hospital, as she cared always so wonderfully for us, but I’m so happy for her that she can go home. And at the same time, I’m so amazed and thankful for how well Liya is doing. I still remember very well a conversation with her doctor a couple months back when Liya just arrived for the first time at Sheba. The doctor siad she didn’t know if Liya will survive the next days, but that they will do everything for her that they can and that it is in God’s hands. And yes, Liya was and is in his hands.
Thank you God for healing Liya and for protecting her so far. Please keep her safe and bless her whole family!
Today we visited Liya at Sheba Medical Center and spent some time with this beautiful little girl. While we were with her, the nurses suctioned her tracheostomy and it was impressive how well Liya behaved during this though it is very uncomfortable for her. The Physiotherapist showed us some positions with which to hold Liya that will help to strengthen her neck.
Afterwards we were able to feed her and were surprised on how much she improved. Also we could see that Liya can follow sounds with her eye movements which is a very good sign regarding her cognitive abilities.
She is such a sweet girl. We pray for her further recovery and that she will improve day by day.
When visiting Liya today at Sheba Hospital, I had the opportunity to feed her. I was very impressed by how well she was drinking. Praise God for the progress she is making. She still breathes through her tracheostomy and has to be on the ventilator at night.
I also was very impressed today by Liya’s mom. Because of the tracheostomy Liya has, she isn’t able to cough up mucus. That’s why the mucus has to be suctioned a few times a day. Liya’s mom was instructed to do it on her own, because Liya will be discharged with the tracheostomy, God willing. Watching her while she did it, was so impressive for me, because she did it with so much professionalism and calm.
After the whole process I tried to tell Liya’s mother my impression via translator. She was very happy and grateful about the compliment. So, I want to encourage you to tell your neighbors what they do well – words of affirmation have power!
Be also invited to keep praying for Liya, for a further improvement of her condition.
Today at Sheba Hospital I found her mum feeding her with milk from the bottle. You could see that Liya is not used to drinking on her own anymore and she needs to learn again how to suck properly.
But her beautiful mother was cheering her on all the time and she slowly finished her 25 ml of milk. It was so nice to see how proud Liya’s mother was of her daughter.
Let’s continue in prayer for this beautiful family and for Liya’s complete recovery.
Our little Liya is slowly getting better and gaining strength. Everyday at Sheba Children’s Hospital, she gets disconnected from the ventilator for a while so that she learns more and more how to breath on her own again.
For Liya’s mother, it is still very hard to see her beloved daughter with the tracheostomy and she started crying a little bit when we visited her today.
God I pray for little Liya and her amazing mother, that you bless them both and give them strength!
Liya seems to be doing much better now with her tracheostomy, and I shared with them the story of baby Abed, who went home to Gaza with a tracheostomy and now has grown and strengthened to the point that he may soon have it removed.
Let’s continue to give them all our support through prayer and visiting.
At the beginning, it was a disconcerting moment, when they had to isolated the ICU, and at the same time a few doctors were in Liya’s room and also the doctor asked me to look for Liya’s mom.
After fifteen minutes in the waiting room, two doctors came and explained with a lot of details and answers to all of Liya’s parent’s questions about the options to help Liya’s breathing. The parents accepted the best plan which was a tracheotomy for Liya. They were waiting for this process to end, which it eventually did.
Liya still needs a lot of prayers, so please continue to pray for her.
Today brought not so good news for our little Liya recovering in Sheba Hospital. After being extubated yesterday, she failed and had to be reintubated. As this was the second time of an unsuccessful extubation, the doctors are now thinking about a tracheostomy.
They discussed this with Liya’s mother today and if she agrees, they will probably do her tracheostomy in the next few days. For her mother, this was quite frustrating news and she was crying for a while.
Lord I pray that you help this little girl to get better. Thank you that you have a perfect plan for her and that she is still alive!
When I visited our little Liya in Sheba Hospital this morning, her doctor told me that they planned to extubate her today. But because she still has trouble breathing even with the ventilator, they are not sure if they can do it. Her hemoglobin is very low which is most likely related to her breathing problems. She is receiving blood to solve this problem and depending on how she will improve during the day, they may still attempt to extubate her.
Please pray for this little girl and her lovely grandmother who is very worried!
Liya’s grandmother is a ray of sunshine in the ICU and takes good care of the other moms and grandmothers. Please remember both this loving grandmother and little Liya in your prayers for her complete recovery.
Sitting in the ICU with her grandmother, we discussed the importance of prayer in the healing process. She was eager to hear that our staff pray morning and night for the children in our care. She tilted her phone toward me to show a photo of Liya taken days before her surgery, with her bright, beautiful eyes looking up to her parents. She is waiting patiently for her granddaughter’s healing.
Please pray Liya continues in this stable trajectory!
Liya was finally well enough to go in for her second surgery this morning, and when we saw her this afternoon in the ICU her doctors were gathered and enthusiastically discussing the outcome. They believe they succeeded to reroute the circulation through her complicated heart in such a way that will allow her now to grow and thrive.
We thank God for bringing little Liya through so much, including the perilous hospitalization in Gaza and return in ICU ambulance, in order to see this day. Let’s keep praying for her over the next critical 24 hours.
Liya was supposed to have her surgery today but she had a temperature so it was canceled. Now it is just a matter of time, but first her temperature needs to diminish. Liya’s mother is still waiting for results of additional tests the doctors made for her.
Liya crossed the Erez border yesterday and this morning she had a CT scan. When the procedure ended, we talked with the cardiologist about the next steps in Liya’s treatment. Liya’s parents want to have a vacation time with all the family before Liya’s next surgery which they expect to be in a few months.
The cardiologist ordered an echo, an electrocardiogram and a routine test for Liya. The results of these exams and a fever rush with vomiting, all pointed to the fact that Liya needed to remain hospitalized. There will be more tests and possibly a surgery on Sunday. Pray for strength for Liya and her parents, they’re worried and surprised about Liya’s health.
Today my Coworker Joanne and I picked up little Liya at Erez crossing point and brought them to Sheba Medical Center. She had an ECG and an Echo today. Her heart is not doing well and she has a lot of different problems. The doctor told me that Liya will have to come back in one month and until then the doctor will present her case to all the other doctors and they will decide the next steps of treatment. The doctor said that there is the possibility that they can’t do anything else for her. So please pray for this little girl and her family. Bless them and pray for wisdom for the doctors.
Liya had a surgery to place a band around one artery in her time at Sheba and first struggled a little bit by breathing on her own. But after that she improved pretty fast and also learned fast how to eat through her mouth. Due to this she was able to be discharged.
Her grandmother was very happy and kept saying “Thank you, thank you.” Also all the other grandmothers were at the car to wave goodbye. In one month, beautiful Liya will come back for a follow up appointment.
When I visited little Liya at Sheba Medical Center this morning the doctor told me that Liya would be ready to go home. She will still stay in the hospital till Sunday, because the Erez Crossing point is closed right now.
We’re all very happy and surprised that she recovered so fast and so well. Please pray and bless her and her lovely grandmother.
When I visited little Liya today at Sheba Hospital, she was moved again back to the ICU because she developed a fever over the weekend. She was awake when I entered the room and I could hear that she was breathing fast and was in some distress. Last week doctors made some tests and found that Liya has some bacteria and was put on a course of antibiotics right away.
Also Liya has been experiencing problems with eating. This morning a specialist visited her and found that Liya is not taking from a bottle very well. For now, doctors are trying to feed her via mouth as much as possible, then give her the rest through a tube. But as she has also problems with breathing, there is some concern that Liya aspirates her milk when they are feeding her. Liya is still extubated and receives some inhalation to improve her breathing.
Liya’s grandma is staying faithfully by her side even though it has to be very exhausting for her. Let us thank God that Liya is doing fairly well despite all of this and pray for her healing!
The good news is that she does not need oxygen support anymore and they already started feeding her not only with the NG Tube, but also through her mouth.
Liya’s grandmother is very thankful for her progress. Thank you for your prayers. We can continue to pray for Liya and her full recovery.
The doctors told us that Liya is finally extubated since yesterday, but she still requires oxygen support. Also, she is getting her food through an NG Tube.
This morning, Liya had a fever, so they did a blood test and started a course of antibiotics for Liya. So hopefully she is doing better soon.
We spent a really good time together and her grandmother was very thankful and happy that we visited her and took the time for them. So please pray for them, especially for Liya, that her fever abates.
When Liya’s grandmother met me and Jonathan at the door of the ICU this afternoon, she eagerly beckoned us to come see Liya. Liya is stable right now, but yesterday she had several episodes of oxygen desaturation and needed increased medication. The doctors think this was caused by pulmonary hypertension and they hope to begin decreasing her medication soon.
The doctor said that they tried yesterday to extubate her, but it failed. So Liya is again intubated and they are searching now for the reasons why extubation is not working and are trying to solve the problem. However, Liya is stable and for this we’re thankful.
We had a nice time with Liya’s aunt and talked with her a while. Please pray for her, her family, and that the doctors can find and solve the problem with Liya’s extubation difficulty quickly.
Today I visited little Liya at Sheba Hospital’s Pediatric ICU for the first time. Her grandma is really kind and was happy that someone came to spend time with her. The doctor told us that they plan to extubate Liya today. They want to wait first until she is waking up but she is taking her time.
The band doctors placed around one of her arteries in the surgery yesterday, is for now to pretend that too much blood is coming to the lungs. Her heart is very complicated so she will need further surgeries in her life if she survives until then. The doctor was very honest to us and told us that Liya’s condition is very serious.
Her grandma was hopeful however today, and that’s what we are too. God loves this child and so we will never give up hope. Thank you for praying for little Liya. May God protect and bless her!