Unfortunately not discharged yet
When I visited Shan and her mother today at Hadassah hospital, her mother told me already that they might not go back to our guest house today since Shan had a really high blood pressure yesterday.
For some time I stayed with them to get to know them better since it was my first time meeting them. Shan and I had a lot of fun together and she couldn’t stop smiling every time I cuddled her with her animal toy.
After a while, the doctors finally visited Shan and decided that it was too early to discharge her. Even so, she is improving. They really want to make sure that she is alright. For that reason she might even stay a few more days.
When I asked Shan’s mom later if she had a problem with this, because she might have wanted to go back to our guesthouse in Jerusalem, she answered that she is okay and can stay even longer in hospital as long as Shan is fine. Thankfully, Shan is really doing good and is recovering well from her surgery.
Please continue to pray for our little Shan and her full recovery, so that we can have her soon back in our house and enjoy her beautiful smile even more. Hopefully Shan can be discharged soon and the other families in our guesthouse can finally meet her and her mother again.
Two phrases could define how Shan is now. One is from Shan’s mom: “She is pink and now I realized how beautiful my daughter is, before I only focused on her bluish face.”
The other statement is from the doctor: “She is doing amazing, she’s growing more than we expected.”
Shan had been given a little oxygen support the last few days, but today they stopped it because she doesn’t need it anymore and as you can see. Shan has been growing and gaining weight. The doctor is very happy with her improvement and her mom also.
Shan’s mom is surprised how much her appetite has increased, and the good naptimes she is having; Shan’s continued good recovery and progress is the reason they are considering discharging her on Sunday.
Shan’s doctor is just an amazing person, she is personally going to Shan’s room so often and is talking with Shan and expressing her feelings about Shan’s welfare and how much effort everyone is putting in so Shan can be okay; the doctor also took time to talk with Shan’s mother. She told me that Shan’s mom speaks Arabic and some English, so they are able to communicate with each other.
I truly think the passion and love this doctor gives to others is a gift of God, she’s huge a blessing for the patients and for us. Praise God for those people He puts in our path. As the doctor says, “Look how many people love you and want you to be okay.“
Getting back to her happy self
Little Shan was very happy when I came to Hadassah Hospital to visit her today.
She was cheerfully waving her arms and legs, and giggling adorably when her mother talked to her.
Her oxygen was still at 100%, though it had a short and easily resolved drop while I was there.
Her doctor told me that she was well enough to be moved to the ordinary pediatric ward, but that there aren’t any rooms available yet.
For now, Shan is happy to remain in the ICU, charming all the doctors and nurses with her beautiful smile and big dark eyes. Praise God for this lovely little girl!
Our cute Shan is recovering very well at Hadassah Hospital. Her mother was very happy today to call her family and show them how well Shan is doing. Shan’s breathing has been a bit labored, and she sometimes has a bit of difficulty breathing, but her nurse said that this is normal after being intubated, and that her breathing should normalize after a couple of days.
Shan is still on nasal oxygen, not because she has any problem in her heart, but to help her breathe more normally. The doctor told us that Shan’s most recent echo showed a small hole in her heart, but that it will not need surgery and will most likely close on it’s own as Shan grows.
Today, Shan’s arms were swaddled tightly to her sides because she doesn’t like having the bandage on her chest and always tries to tear it off. She isn’t particularly happy about being bound in this way, but she always calmed down when her mother stroked her head and spoke quietly to her. Praise God for her good improvement!
Please pray that her breathing will improve, and that Shan can soon come off of nasal oxygen.
Extubated and making good progress
Shan is having a good progress after her surgery yesterday morning at Hadassah Hospital. When we visited her at the PICU, we found her extubated and awake, without any blue tinge to her body.
According to Shan’s Mom, the doctors told her she is having a good recovery and it will be fast because she is in the perfect age to heal faster.
Shan is receiving some oxygen support, and during our visit, her numbers turned red and the machine was beeping. I explained to her that the number was pointing to Shan’s blood pressure and was low. After a few minutes and some visits from different doctors, they decided even when the rate wasn’t very low, they preferred to give Shan some medication to stabilize her blood pressure.
Please continue to pray for Shan and her Mom, who is still nervous about her daughter. Our prayer is that through Shan’s improvement, we can glorify Him as Jesus said,
“My prayer is not for them alone. I pray also for those who will believe in me through their message, that all of them may be one, Father, just as you are in me and I am in you. May they also be in us so that the world may believe that you have sent me, that they may be one as we are one – I in them and you in me, so that they may be brought to complete unity. Then the world will know that you sent me and have loved them even as you have loved me.”
Perfectly Pink! or "All went perfectly smooth with the patient."
At eight o’clock this morning, little Shan went in for a big surgery at Hadassah Hospital. The doctors planned to switch the two largest arteries in her heart and close a large hole between her ventricles. They told her mother this surgery would likely take six or seven hours.
Far below ground level, on the negative 4th floor of Hadassah hospital, Shan’s mother waited patiently in the surgery waiting room. I wasn’t able to wait with her the whole time, as some of our other children here also needed visits, so I went up and down in the hospital a lot.
After about five and a half hours, while I was walking down a staircase, I suddenly met Professor Sarraf, the surgeon, talking on the phone. He recognized me as someone from Shevet, quickly looked up from his phone call, and said, “All went smooth with the patient.” Then he continued on his way.
I immediately went down to be with Shan’s mother, and after two more hours, we got the news that Shan was entirely stabilized in her room. Her mother and I went in to see her right away.
It was very difficult for Shan’s mother to see her beloved baby sedated with tubes coming out of her everywhere. The doctors told us that everything went very well, and that they had done both of the things they’d wanted to do. There was more good news too – Shan’s oxygen, which has normally been hovering around 60%, was at 100%. Her lips were no longer purple, and the bottoms of her feet were a beautiful pink. I’ve never seen a baby look so good right after surgery! She does have some bleeding, which is normal after such a big surgery, but this should stop soon.
Please be praying for her to remain stable over these next few days. The doctors hope to extubate her tomorrow if she continues to do as well as she is doing now. After that, they will look to see if she will need any more surgeries in the future.
An urgent, yet still happy, admission
Today was our beautiful smiling Shan’s first echo at Hadassah hospital. She was cheerful and well-behaved throughout the whole echo, which is definitely unusual for a child her age.
She was only a bit cranky a for the last couple minutes of the echo, when she had to lie on her side. After her echo, the nurses checked her oxygen saturation.
It’s normally been in the 70s, sometimes dipping as low as 65%, but today it was only 55%! They immediately decided to admit her.
After a long time of waiting, Shan’s mom became a bit worried about how she would live at the hospital; she hadn’t come to the echo prepared to stay longer than one day, so she needed some of her things that she’d left at the house.
Coworker Tatiana went home with another child, then picked up Shan’s things and returned to the hospital. While Tatiana was away, Shan’s room was finally ready.
She settled right in, happily waving her arms and legs while lying in her hospital bed.
She wasn’t quite as happy when the doctors placed her IV, but she calmed down afterwards, and was peacefully sleeping when Tatiana and I left the hospital.
Please pray that she will be able to have her needed surgery soon, and that God will grant her full healing.