Today Dino and his mother had a long, long day but finally our brave Dino is ready to go home! At the beginning of this week he had his last echo. His cardiologist was very pleased with the results of his surgery. He has been in the hospital for a long time.
Today when we went to visit Dino, his mother was very disappointed and upset because she had thought Dino was going to be discharged yesterday. But today he was scheduled for the removal of his central line. For that reason Dino was fasting, and he was crying because he was hungry. We tried to distract him with games, music and his mom was holding him.
Finally the doctor came and removed his central line, Dino cried a lot but then we gave him milk and that calmed him down. He was able to sleep. Mom was very happy then, because finally they are going to go home.
Praise the Lord! In the evening after a long wait in the hospital, Dino was discharged. Mom was very tired but happy that this week they are going to go home. And tomorrow we are going to have a beautiful farewell for them. Please pray for this beautiful baby and for his mother for a safe journey home.
Today we visited little Dino and his lovely mom. We had a very nice time together and got great news from the doctors. Dino will have his last AB tomorrow, and will be discharged on Tuesday. Also he will have his next echo, maybe the last one! God is good! Mom and all of us at Shevet are also very happy about that. Thanks for all your prayers!
When I arrived at the hospital, two beautiful smiles greeted me. The beautiful Dino and his wonderful mother waiting for an echo. During the echo Dino was very quiet and smiling, looking at the TV. All of the nurses and doctors say that he is the cutest baby on his floor.
The doctor said that his echo was very good, and when he finishes his antibiotic treatment in one or two weeks he will need another echo and then maybe he can go home. His mother was very happy that soon they can go home and he is doing very well. Please continue pray for Dino and his mother so they can go home soon.
Today when I went to the echo room in the hospital I could see a beautiful scene in front to me: it was our brave Dino and his lovely mother. They were waiting for an echo and I join them in the waiting, I had a beautiful time with them singing his song in Hebrew (it’s a song with his name) and the brave boy only smiled, this made us happy.
Finally they did the echo and the doctor was very happy about it, she said that everything looked good. Now the only thing is that he needs to wait in the hospital for around 5 to 6 weeks for antibiotic treatment. His mother was very happy for the echo results and today she seemed better from the news of her dad being very sick. Please continue pray for this beautiful baby, for his fast recovery and also for his grandfather’s healing, that God would give peace to his amazing mother. We believe that God is in control of this situation!
God was so good today in prompting us to visit Dino this afternoon just at the time the nursing team decided to remove his chest drain. Mum was very brave waiting for Dino to be finished. Dino will now be in hospital for around 6 weeks until his infection is cleared.
A short update today on Dino, to say that he has been moved into secondary ICU. He is alert and beautiful, being held by his mum when we saw him. We had a few little smiles, which was lovely to see.
Praise God for the healing work we have seen in little Dino, and we ask for more!
When I entered his room I could see his beautiful mom sitting in the chair watching her baby, she was waiting for the medical team to take her son back to the surgery room to close his chest. while we waited I tried to convince her to eat something and rest a little on the sofa while I watched her little baby, because she seemed tired but I understood that Dino is her everything. Finally, the medical team came and took the beautiful baby for his procedure, we stayed with his mother in the waiting room and thank God, there was the mother of Mina there that helped us distract her. After about one hour, thanks to God, Dino came out of the operating room! His mom stayed at the door until the nurse finally came and told us we could go to see him, praise the Lord! Everything went as expected, they closed his chest and if everything goes well, maybe tomorrow he will be extubated.
Please continues praying for this beautiful baby and for his complete and rapid healing and for strength for his lovely mother at this time.
Great news from the hospital today! Little Dino has been extubated, and is recovering well from his surgery! He is still on oxygen and some medications. Dino is a little weepy, but his mother is very happy Prayers for a fast and complete recovery would be wonderful.
In the morning, when we first saw Dino and his mother, she was very sad and worried about his upcoming operation.
We expected this to be the first surgery of the day, but he was actually the second, so we needed to wait another two hours for the surgery to begin. Dino was very hungry during this time because he had to fast before the anesthesia. So we played with him, made balloon animals with gloves and sang a Hebrew song with his name in it.
Finally, the surgeons came and explained the operation, when they talked about the potential complications of this large and risky surgery, the mother began to cry. It was a difficult moment for the Mother at the sliding glass doors leading to the OR, passing little Dino into the hands of the waiting surgeon. The next 5 hours seemed to take an eternity, Diana faithfully sat with the mother the whole time and we prayed with her, compared pictures of our families, and shared a meal.
The whole experience culminated in a moment that will stick in all of our memories forever. The nurse told Momma that she could come in to the room and touch her baby, the look of hope on her tear streaked face made all the waiting worth it.
Dino had his first checkup today. He is such a champ! He was very calm and still during the entire procedure, which made it easy for the doctor to give us a very detailed report of what was going on inside his little heart. He has a condition called Truncus Arteriosus, or TA. In TA, the aorta is positioned in such a way that it is fed from both the left and right ventricles through a septal defect. This causes more blood to flow through the lungs than is normal. This extra blood flow causes changes in the lungs that reduce their ability to exchange oxygen and increases their resistance to blood flow.
If the TA is not fixed by the time the resistance in the lungs grows higher than the resistance in the body, no operation can help the child. But praise the Lord, it looks like our efforts and God’s grace have gotten little Dino here to the people who can help him quickly enough to give him a long and healthy life.
He has a difficult time ahead of him, and we pray that his healing would be complete, and that his mom would be comforted and strengthened through it all.
Warm Bed Waiting After a Long Journey
After two days trying to get here despite bad weather conditions in Kurdistan, finally Dino and his mother (above left) arrived safely last midnight. They were exhausted, especially after chasing down their suitcases while we held the babies, but a warm bed was waiting for them soon in our home.
Dino is five months old and suffers from a relatively rare congenital heart disease called truncus arteriosus. God willing he will start his diagnosis process at the Sheba hospital this week in preparation for surgery. Please pray for his mother’s adaptation to her new home and family.