Today Varin received her last echo and the official OK from the cardiologist to travel home to Kurdistan. The journey has been long and it is not over yet, as Varin need more surgeries down the road, but her mother is very happy to be flying home on Friday. Praise God for the progress that Varin has made and continues to make as she becomes more active and responsive to her mother.
Here is a picture with Varin, her mother, and her favorite cardiologist.
Thank you for your prayers for this precious child and her mother.
Varin and her mother attended a follow-up appointment with the neurologist today at Sheba. The doctor was kind enough to take the time to answer many questions about Varin, who despite her beautiful, charismatic and joyful exterior is quite a complicated case medically to work with given her additional health problems. However, when I look at Varin, knowing just how remarkably different and complex she is, I am overwhelmed by what a miracle God had done in allowing her to be here with us.
The neurologist shared with us today that Varin has a problem with reduced white matter in her brain. This means that Varin is likely to develop skills like walking and talking at a slower rate than her same-aged peers. It is recommended Varin be supported by physiotherapists, occupational therapists and speech therapists as she develops.
This is difficult news for mum so please pray for her. She is scared for what the future holds for Varin and whether she will stand out compared to others as she grows up. I was sad to realize today that so much of this fear is to due to the judgement of others. One thing I am confident in is that when Varin’s Father in Heaven looks upon her he does not see imperfection. He sees his beautiful daughter whom he loves so deeply. Please pray for Varin that she continues to develop all of her skills well. Pray for a life full of love and joy over this sweet family.
Varin had an appointment for an MRI and MRA test for her heart today. There was a bit of confusion, as her mum was expecting also an MRI for her brain. The hospital kindly have sorted this out for Varin to have this scan at another date.
The doctor was very pleased that he was able to cannulate Varin on the first attempt! Varin was not too happy about it, but soon she was asleep for the MRI.
Mum was able to give some translation help and support to Dino’s mum who was brought into the room where patients come before and after sedation. This was a great help and comfort to her I am sure. I did reflect on how blessed we are to have met Varin’s mum. She remains hopeful and positive in every situation, even though she shares that inside her heart she is stressed and afraid for Varin. Thank God for her, she is so lovely.
The news for Varin today was positive in that that scans were able to provide the medical team with some very clear images which will now be used to formulate a plan for Varin’s next surgery. Mum was also pleased to hear that perhaps Varin would only need one surgery; she is hopeful that this would be her only stay in Israel for Varin’s surgery. The other piece of nice news for Varin today is that her first bacteria test has come back negative. She needs a few more tests over the next few weeks to confirm that she is now bacteria-free, but this is a great first step. Please pray for lovely Varin and her family. Praise God that he has healed her so far, and we hope to hear soon about the next steps for her surgery.
God continued to confirm His hand over the life of little Varin today. We attended Sheba for an ultrasound scan on her leg. Over the last few days we have noticed that Varin’s right leg is a little bigger than her left and given her heart condition and her previous catheterisation it was important to get this checked.
We were blessed to be able to move Varin’s appointment forward by a few hours today which allowed us to bring in Noora to be admitted at the same time. At Shevet, organizing van logistics for multiple hospital visits can be a challenge so this was indeed a blessing from God!
The ultrasound went well and Varin was such a delight throughout. She enjoyed occasionally moving her arms about ripping up the paper on the examining bed and smiling lots. Mum was so relieved to find out there is no thrombosis in the leg and the blood vessels are open and the supply is good. There are no concerns regarding Varin’s leg and she was able to come back home this evening to Shevet.
Praise God for his faithfulness to Varin.