Noora had another echo today at the hospital. This went very smoothly, and confirmed that her heart is looking good. She isn’t on any medicines, and the doctor is happy for her to go ahead with another surgery for her hip. If she wasnt due to have this hip surgery, then she would be cleared to travel to Kurdistan at this point.
Noora’s grandma was very happy, and she spent the rest of the time in the hospital taking pictures to send home, chatting with her family on video chat and the other Kurdish mums in the hospital, as we got some other administrative bits and pieces sorted out.
Please pray for news of Noora’s hip surgery soon, and for God’s financial provision for this.
It was good news today for Noora and her family, as they received the news that Noora can have surgery on her hip whilst she is in Israel. The doctor explained today that although the hip will be painless for her at the moment, if it is not operated on and put into the socket, by the time Noora is in her 20s, then she would be in a lot of pain and most probably unable to walk. So of course we really share the joy that this will be a helpful surgery for Noora, and improve her quality of life in the long term.
The doctor showed us some photos of the sort of cast which Noora will have to wear for 6 weeks. It will cover all of one leg, down to the knee of the other, and come fairly high up her torso! This didn’t dampen the spirits of her grandma at all, who warmly thanked the doctor for his assessment.
When there is a surgery slot available, we will hear from the department, so hopefully there won’t be too long of a wait for them.
Of course the news was shared with Noora’s dad, and some other family members on video chat. I write this every time about Noora, but her family are just so joyful and seem to have such a love for each other.
Also, Noora was very taken today with the song “Gadol Adonai”, which she listened to on repeat on the entire way to and from the hospital today:
Please pray that she will come to know the truths of this joyful song:
Great is the Lord, and greatly to be praised
I will come to the altar of my God, to my God exceeding joy
Behold, the tabernacle of God is with men
They shall be his people
Hallelujah for the Lord our God reigns
Let us rejoice and be glad and honour him
Now that Noora seems to be doing so well with her recovery from her heart operation, the next thing on her family’s mind is her hip. They are hopeful that Noora would be able to have surgery while she is here to correct her dislocated hip. Noora’s grandma waited so patiently all the morning for the appointment with the doctor. We also had some time to video chat with Noora’s dad. It is so nice to have a little insight into this family.
The appointment itself was not too conclusive at this stage, and we need to come back again to speak with the head of the department on Thursday. The proposed surgery would be more risky of having complications than usual because the surgery is typically done for children at around 1 year. Noora is now 4 years old, and hasn’t been able to access any surgery before now to help her.
Please pray that the appointment on Thursday will give greater clarity about the plan for Noora.
Today Noora, her grandmother and I had a long day over on the other side of the Sheba campus to normal visiting the opthamology centre. Praise God, Noora, all things considered really coped well with waiting for a great deal of time between seeing nurses doctors, opticians and opthamologist.
The conclusion from the day was that Noora has a significantly under developed visual nerve behind the left eye. This finding may help form part of a diagnostic picture for Noora’s presentation as this problem with the eye is specifically linked with certain syndromes. Noora is going to start wearing eye patches at home to try and strengthen her left eye. It is unclear the extent of vision she has in this eye and she may even have no vision on her left side.
Please pray for Noora as She is challenged to strengthen her left eye. Please pray that God opens up her vision in that eye.