It is so bittersweet for me to write this, but mostly sweet because Marya and her mum have been with us for so long. Today Marya had her final echo, her two surgeries were very successful, and she even gained more weight in the past couple as of weeks. There is so much to celebrate, and still in the midst I feel a twinge of sadness because Marya and her mum are so dear to all of our hearts, that it’s hard to think they won’t be with us anymore, but they will go home with the best possible outcome, and this is more than we could have asked for. Today was a long day at the hospital, but Marya and her mum handled it like they always have, with patience, selflessness, and poise.
Tomorrow we will have a party in honor of Marya’s healed heart, and to honor the sacrifice and constant love of her mother; this time is sure to be beautiful because we are thanking God for His work. We look at Marya and can’t help but give God all the glory for healing this little girl who came to us so blue, and will go home healthy and restored. Thank you for praying with us throughout her journey, and please continue to keep this precious family in your prayers as they go home to Kurdistan. May they take what they have encountered here want to know more of King Jesus, as the Bible says, to those who knock the door shall be opened.
Today was a wonderful day for out beautiful Marya. The doctor said that her heart did not just look good, but really great. They checked both lungs and there was not any fluid, either! She told me that with the Glenn procedure, patients either do really well (like Marya) or really bad, and we are so thankful to Jesus that her surgery outcome was extremely positive. And you only need to compare how improved her breathing is after this last surgery to see that Marya is doing extremely well. In two weeks, Marya will have what may be her last echo! Getting to celebrate Marya’s health was so special, and her and her mom are beautiful gifts from God.
Our adorable Marya was discharged today. I can’t believe how she is the only child who always smiles immediately back at you, even though the one year old has gone through three surgeries now. She is such a strong little fighter, always gaining her strength back after surgery. I’m just hoping and praying that she continues to gain strength and that she can go home.
Our sweet Marya was discharged from the hospital today! Her diagnostic catheterization we well, and now the doctor said they will let us know when these decided on a surgery date for her second procedure. Please pray for this, because of her complicated heart defects, we need the Lord’s guidance in the operation. Please also pray for the Doctor’s and divine inspiration for them. She was released with many medications and a new high calorie formula specifically to help her gain weight as she is a little over one year old and only six kilos. Please pray for her little body to be strengthened and for her mother, whose devotion and patience never cease to amaze us, may Jesus bless her as she waits.
This was such a long and busy day for the sweet Marya. Especially the endless waiting periods between the examinations were so tiresome.
Firstly when we arrived, she had to have an ECG. She was really upset when the nurse attached the electrodes to her skin and even more when she took them off again. However she only cried little.
As we had been sent up and down many times before the x-ray, Marya was very tired and fell asleep in her mum’s arms. Of course she got upset again when we laid her on the x-ray table. However it only took a minute so Marya could quickly go back into her mum’s arms.
Finally we were allowed to move into her room in secondary ICU. During the weighing and the measuring of her size and blood pressure, Marya remained calm and happy, playing around with her patient wristband. Unfortunately the following blood draw was just too much. She screamed her lungs out.
After I came back from looking after Nyaz (who had just come out of surgery) the room was dark and Marya was sleeping peacefully in her bed. I felt so relieved. The little girl had been so brave throughout the whole day!
Jesus I thank you so much for this beautiful little girl and I pray that you will be with her during her catheterization tomorrow!
This sweet girl had an echo today! Marya is quiet, contemplative, and kind, so being with her in the hospital or at the Jaffa house, is consistently a joyful and life giving occasion. Her echo today led to another cath before her second surgery. The doctors want to be positive that she can handle another surgery at the moment, so the cath will measure her lung pressure. The objective of surgery will be to connect a large vein which delivers blood to the right aorta, called the superior Vena Cava to her lungs, that way her blood will be more oxegenated. Please pray for Marya, as she still has another surgery and another recovery process to go through, and will have to go through again at the age of three. Please pray for protection over her, and stamina for her precious and patient mother, who is the embodiment of gentle and quiet spirit. We love them both, but even more, does Jesus care for these two:
Are not five sparrows sold for two pennies? Yet not one of them is forgotten by God. Indeed, the very hairs of your head are all numbered. Don’t be afraid; you are worth more than many sparrows. Luke 12:6-7
I went today with a few volunteers to Sheba hospital. In my care was dear Marya, who is 4 months old, and her mum. Marya came for a blood test and she only gave one small whimper then was fine. Afterwards I had the privilege of wheeling Marya in her buggy around the clinic area. She gently fell asleep with a really peaceful look on her dear little face.
While waiting to go back to Shevet Achim, she awoke and it really touched my heart to see how happy she was in the buggy making gurgling noises and giving out heart melting smiles I played her nursey rhymes on my mobile and her little feet were tapping to the music.
It came to me how each baby child in Shevet Achim’s care is so precious to our heavenly Father. And I was so thankful for all Shevet does to constantly reach out to these dear ones in godly love and all the amazing Israeli doctors, surgeons, and nurses do to save these precious lives. Thank the Lord.
As parents we are keen to know all the answers to our concerns about our children and Marya’s mother is no different. When we entered the echo room this morning, our nurse Diana had a list of questions for the doctor from mum. During the echo Marya lay placidly focusing her attention on a song coming from the phone. When her doctor entered he ask for specific images to be taken. He was concerned about Marya’s laboured breathing and tight tummy, both of which were on her mother’s list. Her oxygen saturation levels are satisfactory and the echo images showed her liver is slightly enlarged, which may be the reason for her tummy tightness. There were no new issues with her heart today. As the doctor explained to us his plan for adjusting her medications and fluid intake, more of the list could be marked off. Good blood test results from last week answered more questions and finally the doctor finished the list by saying that Marya can begin strengthening exercises for her legs and trunk. At the end of the week she will have another blood test and then her third follow-up echo in 10 days. From this a time maybe set for future surgery.
As we put our trust in our Heavenly Father for Marya we can have confidence that his father heart has many blessings in store for her. Thanks for praying.
Little Marya had an exciting day of blood tests, her echo, ECG, and vitals. She and her mom were patient through it all. The doctor listened well to our concerns about her fluid levels that cause an increase in her work to breathe and lower oxygen levels. The nursing team are working with her mom to keep good track of her feedings so as not to overload her heart with too much liquid. Her medications have also been increased to reflect her blood and echo results. Pray for continued improvement in her health and that her fluid levels are managed well.