Today I was given the chance to visit the hospital. We walked around and dropped off a few things the different Shevet families had asked for. After a while we found Nila’s mother and were able to talk to her. She had just come from dropping off Nila to surgery. She was upbeat but worried. Personally, due to the language barrier, I was not able to talk to Nila’s mother but Sophie and Georgia were able to. She is exhausted as Nila hasn’t slept much in the past five days.
I am astonished at the strength of the mothers of these children. They continually go, caring for their children, talking to other people, catering to everyone but themselves. The amount of phone calls each mother makes to update people is incredible. Nila’s mother greets everyone in Arabic even though she speaks Kurdish. She smiles at everyone even though she is very worried about her child. She told us that the surgery is expected to take 6 hours.
It was hard for me to wait as I couldn’t say or do anything due to the language barrier and the necessity of just sitting and being. At some points just giving encouraging facial expressions or even pained ones to recognize the mother’s struggle was helpful.
I visited Nila today, and she had been moved to the secondary ICU from the general ward. This was due to increased concern in the general ward about her condition as she waits for surgery – for example her laboured breathing. So Nila continues to be hospitalized due to having Enterovirus, but the plan is to wait until she has been a few days without fever, and then move towards scheduling a surgery to repair the AV canal.
Nila had a nasal cannula today for oxygen and her cannula had been moved from her foot to her head, and so she was really not looking so good today. She was very restless when I saw her.
Her sweet mum continues to be hopeful and in a good mood. She is ready for Nila to have the surgery which she has come all this way for. Please keep Nila and her mum in your prayers.