Wow, what a day we all had at Sheba today! What an amazing privilege it is to bear witness to the miraculous works of our Father and see how He alone is where our hope lies.
Today we went to visit children in Sheba hospital. We saw a tiny baby called Aram and we then went to visit Leen. The grandmother who was with us had to take Jabali, her little grandson, for a blood test. After this was done, Magda and I had to take grandma to the Emergency room as she had a painful ear and swollen glands in her neck. We were asked to take her to the Ear, Nose, and Throat department to see a special doctor. The doctor examined her and prescribed drops for her ears. All this time Jabali was as good as gold; quiet and very contented as long as you didn’t put him in the carrier.
It was so lovely to share with Jabali’s grandmother today that their time hospital had come to an end and Jabali could come home! Jabali’s grandmother instantly changed in her posture and facial expression and quickly started planning her shopping trip for gifts. It was so wonderful.
Today the doctors are hopeful for Jabali to soon be discharged in our care. He is weaned off oxygen and eating a little. Praise God! We are waiting for the cardiologist and neurologist to sign off on his discharge. His grandmother remains hopeful to be out of the hospital soon. Thank you for your prayers of recovery and wisdom for the doctors.
Today we went to visit our beautiful Jabali and it was a joy see some progress in this beautiful baby. He is eating, his oxygen is good, and also he is trying to have a little eye contact and was trying to smile. Grandma is so happy! She wishes to be home!
Today he was going to have an EEG but it wasn’t possible. Please pray for this beautiful baby and for his quick healing and also for strength for his amazing grandmother!
I came to Jabali and his grandmother just at the right minute, when two nurses were preparing Jabali to leave his room and his confused and worried grandmother was standing in the middle trying to figure out what was going on. Jabali got an ultrasound of his brain today. A nurse explained to me that the doctors are concerned about him because he does not smile. So they wanted to check his brain, fearing he could have an hemorrhage.
I went down with Jabali in his bed and his grandmother. She was so caring and lovely to Jabali. I could feel her deep love for him. Also I remember her talking about Jabali’s mother at my last visit. I had the impression that they are really a close and caring family and she is trying her best to take care of her sweet, small grandchild. The nurse at radiology was really friendly and explained to me that she does not see any signs of bleeding in her pictures. But the doctor will have a look at the pictures this afternoon and figure out the final result. Let us pray, that this small fellow does not have any bleeding and that his path and his next surgery will come soon and go smoothly without any complications. The Lord has been so good to our Jabali and he will be faithful to him – now and also for the way ahead of him.
Our little Jabali’s heart continues doing well after the surgeries. He had another positive echo today and is handling room air (no supplemental oxygen) well. In this next week he will be seen by neurology and speech therapy to assess why he is not swallowing well and why he seems to have other neurological difficulties. Please pray for continued healing and that he will surprise the doctors with his quick improvement.
Today, we received good news for Jabali. In the morning they closed his chest and it went well. He looks much better. Tomorrow they will start to reduce the medication. The grandmother is very happy about it. Please continue to pray for Jabali.
Our little Jabali went into his second big surgery today. He was born with Transposition of the Great Arteries, so today they planned to switch them. We waited with his sweet grandma for four hours surrounded by other mums who could speak Arabic. They were chatting the whole time which really helped his grandmother to be distracted. From time to time she also prayed and talked with her family in Kurdistan. In general the surgery was successful! The medical team was able to switch the great arteries but then he had a lot of bleeding so they started to give him medication. Unfortunately, he had an allergic reaction towards the medication, and his blood pressure dropped. But they were able to stabilize him and he is doing well for now. His chest is still open and they will a follow up with an x-ray.
Please pray for a good recovery for Jabali from the surgery, and for him being stable for the next critical 24 hours. Please pray also that his bleeding will decrease and that they can close his chest soon. May the Lord protect him and his lovely grandmother.