“God, I look to You,
I won’t be overwhelmed
Give me vision to see things like You do
God I look to You,
You’re where my help comes from
Give me wisdom,
You know just what to do”
This song came to my mind while we were waiting for Dr. Sharon to tell us if Nyaz can go home to Kurdistan or not.
On our way to the hospital this morning we were quite optimistic as we thought that it’s going to be Nyaz’s last appointment. After Nyaz had her ECG and her echo, Dr. Sharon inspected the images of her heart and realized that she has some fluid in her lungs. Just a tiny bit, but it was sad news as Nyaz has fought against the fluid in her lungs for many weeks since her surgery and everyone was so relieved and happy when there was finally no more fluid.
The atmosphere was a little depressing when we went down to the first floor. Nyaz needed a blood test and an x-ray. Eventually we had to wait for the results to find out if it’s safe for Nyaz to fly home or not. In this maybe three hours of waiting I got very tired and sad, probably because of Nyaz mum’s sadness and also because I didn’t understand God’s plan.
Nyaz was sleeping and while I was leaning my head against her stroller this song came to my mind “God I look to you…”. Of course it brought immediately Psalm 121 to my mind: “I lift my eyes to the hills. From where does my help come? My help comes from the Lord, who made heaven and earth…” This gave me confidence and I realized that whatever is going to happen is in God’s hands.
Finally Dr. Sharon came out of her room. She only had time to tell us that Nyaz is alright and can go home to Kurdistan. Thank you God, that you are always in control even if we are not!
Today our little Nyaz had an appointment with the doctor of the neurology department to check her lungs. We didn’t have to wait long for the administration papers and just came at the right time to meet the doctor which was a blessing! During the examination Nyaz was very calm and made it easy to check her. Her Mom was very quiet in anticipation for a good answer about Nyaz’ condition.
It didn’t take long and we left a room with a very grateful. The result is that Nyaz’ lungs don’t have any liquid and her breathing is fine. She doesn’t need to get a therapy what mom was afraid of so she was very happy! Joyfully we left the second floor to meet the other families in the hospital.
I am grateful for the quick process and the positive result and I was touched by mom’s happy shining eyes. She started hugging and kissing me and now I could see how afraid and nervous she was before the appointment. Thank God for these great news!
Today very early in the morning we took our beautiful Nyaz with her lovely mother for a blood test and follow-up with her cardiologist. Mom was really hoping that today she was going to be discharged. Nyaz seems really good, she has a beautiful color in her skin and also she is smiling, and active. She looks much better.
They did a blood test, echo and checked her vital signs. Praise the Lord the echo showed a really good result: she doesn’t have liquid in her lungs! Still the doctor wants to be sure that this liquid is not coming back so she wants to check her again in 10 days. Also next week she is going to have a pulmonary appointment because she has been making a weird sound. Depending on both results they can go home soon! Please pray for a good result so that Mom and Nyaz can go home; they really need that.
Nyaz was sleeping during my visit. I spent time with her mum looking at photos from back home and learning Kurdish. She also said with a smile that Nyaz started eating again and had some meat which is a big step for her! She has been at the hospital for three months and we hope for her to get better soon!
When I went to the secondary ICU, I really expected to get good news about Nyaz. I know how brave she is and how strong her mother is. I was really sad when I asked the nurse about her and with a sad voice she told me that the liquid is not gone. Yesterday they had to put in a drain again and she can not eat anything solid or liquid so she is with intravenous nutrition again. When I went into to her room she was sleeping and her mom gave me a big smile and a hug like always. I don’t know how she is feeling inside and I don’t know how tired she is but she teaches me how to face our battles with hope.
We need a miracle in this beautiful life. Mom and Nyaz are tired because they have been in the hospital a long time. Please join us in prayer for complete healing, for the liquid to be gone in the name of Jesus! Nothing, absolutely nothing is impossible for our God and I believe that we are going to see another miracle.
Nyaz welcomed us today with a smile on her face. After two long weeks she was able to eat a little bit of meat and drink some water! She will slowly be introduced to food. Please pray that her body adjusts well and the liquid in her lungs reduces. Her mother was a great help for us. She translated between the doctor and the father of one of our kids.
Today, sweet Nyaz had the first catheterization of the day. This procedure was for a diagnostic purpose: to identify where the liquid was coming from and a therapeutic purpose: closing her pulmonary artery. Her beautiful mother calmed her down as she began to stir from her sedation. A few minutes after Nyaz was back in her room they did an ecg, and the nurse was so kind and attentive to her. We could see her oxygen saturation jumping from 65 to 85 every couple seconds, so the nurse tarried with giving her supporting oxygen, but eventually her saturation stabilized, thank God. God willing this will make the chyle in her lungs drain, and tomorrow, will hopefully tomorrow will be the last day of fasting. Although she is getting all the nutrients she needs through an I.V. it’s still very hard on Nyaz’s body. Please pray that the cath today will be effective. We thank God for His grace in preserving the strength and joy of Nyaz’s mum.
Sweet little Nyaz has been fasting for nearly two weeks now… today she was chewing on a plastic lid, simply to have something in her mouth!
Today, a slight disappointment in that her echo from yesterday showed a “small amount” of fluid in her lungs ( although small, it is an increase from the hoped-for “none”). The plan now is that she will have a cardiac catheterization early tomorrow morning (Tuesday) to help figure out the lung fluid situation. This fluid is actually “chyle”, which is made up of fat molecules, and requires specialized treatment.
Nyaz is busy watching “Baby Shark” animated videos as a distraction to the long hours and days in the hospital. Her mom is joyful and a delight; she told us on today’s visit that she herself “is good”, and not to worry about her. She visits other moms in the hospital and lights up the area with her calming presence and her ready smile.
Please pray with us that Nyaz’ catheterization will go well; that she will remain stable; and that the information will be useful in planning how to best help her. Above all, pray for our Heavenly Father— the true Healer— to be very real and present with Nyaz and her mom as they continue to walk this road to healing.
Please keep our precious Nyaz in your prayers. Today I was blessed to have a cardiac nurse, Debi, who is volunteering with us come to the hospital. Last night she said the particular type of fluid Nyaz has in her chest is a fatty liquid and hopefully by fasting, her body will get rid of this. But one week of fasting was not enough, so as of today she has another six days of fasting. Today as always it was a joy to see them both, Nyaz was even watching an old American cartoon called Tom and Jerry, which her mum explained many Kurdish kids watch in childhood as well.
We love them both so much. Being hungry much of the time is tiring, and then of course being both hungry and tired is really hard, so please keep Nyaz in your prayers, that the fluid would respond to the fasting, and that her mother would feel the presence of the Holy Spirit in the hospital with her. We eagerly await their return to the Shevet base! Thank you for your prayers to our Father!
Fighting Liquid in Her Chest
Beautiful Nyaz is in the midst of a one week fast, with three more days to go, to see if this effects the liquid in her chest. Over the weeks, different Israeli groups who visit children in the hospital have given her gifts, and now she has amassed quite the collection. A stuffed koala and a sparkly squishy ball filled with gel were among the toys that were strewn across her bed when she was awake. She keeps occupied in her hospital crib, and her mother, who had just recently clipped Nyaz’s bangs, was all smiles.
Georgia and I enjoyed sitting outside the secondary ICU with Nyaz’s mum, Wareen’s father and some guests; it’s always fun to hear English, Hebrew, Kurdish, and Arabic being spoken, sometimes all four languages in one sentence. When we left, Nyaz was half asleep, which must be some reprieve from the discomfort of fasting.
Please keep praying for Nyaz and her mum; God has the wisdom and foresight of keeping her in hospital for so long, so even though we don’t know why the liquid isn’t clearing up, we trust that in His timing it will. Her mother is so admirable and so strong, please pray that the Holy Spirit continues to fill her with joy and peace. As Abraham waited on the promise of God, so let us wait on the Lord with Nyaz, not ceasing to praise him for her life and petition him for her future.
When Margarita and I went into the secondary ICU we saw our beautiful Nyaz and her mother. Nyaz was crying a lot because she was fasting to prepare for the cath, so she was really starving. We prayed for her and we also tried to play with her. She still has water in the lungs so they put a drain in some days ago.
We went to visit another child and then we came back to see Nyaz. But we only found mom who was already in the OR and was in a really good mood. We had a lovely lunch together and after we went to the waiting room. This cath took a little more that 3 hours and finally Nyaz came out. The doctor explained everything to mom and took her time to answer each question that mom had. Wareen’s dad and Suhail helped her to understand it better through translation. They fixed some things and also they found more things that are very important to decide the next steps. For now we need to wait and see how she will be with the changes that they made. Mom was a little sad because her beautiful baby has a complex heart but I know that God is going to continue making a big miracle in her body. Please pray for Nyaz, for complete healing and that soon they can come back home.
I saw beautiful Nyaz in the hospital today, and she was sleeping. Her mum was in a great mood, and was very happy to chat with me, Jana and Roman’s mum. Nyaz is neighbours across from Wareen now, in secondary ICU, so it is nice to see these two little ones on their journey together.
Yesterday it was noted that Nyaz had one cold leg and one hot leg, and after a scan it was found that she has a blood clot in her right leg. She has started on a medication to help with this. Please pray for Nyaz’s body to be protected by the Holy Spirit, and that she would respond quickly to the new medication.
I reviewed a photograph of Nyaz from her mum first thing this morning, in which she is drinking milk. So when we arrived at the hosptial, I knew already that God has done a great healing in Nyaz’ body through the hands of the doctors and nurses here.
Nyaz’ mum was sitting with the mother of Marya and the father of Sahand, as we arrived upstairs with Mateen’s mum. There is a nice little community of Kurdish families in the hospital at the moment.
The update from the doctor was brief, but completely positive, and it is clear to see that Nyaz is doing so well already, just 1 day after surgery. She is extubated and awake, alert and so happy. She still has chest drains in. The other wonderful thing is of course the transformation in her mum; the weight of worry has lifted, and she was full of joy.
Please keep praying that Nyaz will heal well and we can have her home soon.
We really could see the Father at work today perfectly orchestrating the timings of everything happening at the hospital. One lovely example of this today was how Zinar and Razbar were ready to leave the hospital at the same time as Nyaz arrived to be admitted for her surgery tomorrow. The transition was seamless!
For Nyaz and her mother this day could not have come soon enough and it was such a pleasure to spend time with the two of them today in such high spirits and so relieved knowing that the surgery would be tomorrow.
Nyaz attracted quite a lot of attention today from those working at the hospital be it radiographers, cleanse, nurses and doctors as she just lit up the spaces she was in with her beautiful smile. Nyaz had all of the standard tests the children have when they are admitted for surgery including, an X-ray, ECG and blood tests. When Nyaz had finished her preliminary tests she was able to go straight to her room in the ICU. It was wonderful to see that just 2 rooms away from Nyaz is Warren and her father. It is always calming when there are multiple parents from Kurdistan in the ICU together as generally the families rely strongly on their community, like us at Shevet.
Nyaz settled into her room ell. She will have the first surgery of the day tomorrow. Please join with us in praying for every aspect of her surgery tomorrow, the hands, minds and hearts of the medical team, Nyaz’z physical heart and for mum as she waits for the surgery to take place tomorrow.
Sweet Nyaz was sleeping when I arrived today at the secondary ICU at Sheba hospital. She was discharged today, after having her catheterization yesterday morning for evaluation before surgery. Her mother was so happy to go back home.
The doctors will discuss the results of the cath. Thanks to our heavenly Father that she is doing well today. The nurses recommended that the mother should do everything possible to prevent her from crying, otherwise her oxygen level will reduce. Nyas will have a follow-up with the cardiologist next week.
I was very happy to spend time with Mom while we were waiting for Nyaz’s cath, but when I arrived to the hospital Nyaz was in her room and had already had her cath. It was very early in the morning. Our sweet Nyaz was sleeping, but when her mom saw me, she gave me a big hug. She was very happy that Nyaz had a successful cath.
In the beginning we were a little worried, because her leg was a little cold – red and white looking – but they used heat therapy and the doctor checked her. After around 30 minutes her leg was normal. Thank the Lord. The doctor explained to us that her cath was good, and her lung pressure is fine, but her right ventricle is too small, so the doctors need to think if they can make only one ventricle or one and a half. Praise to the Lord mom can speak Arabic, so she could understand.
After that, Nyaz awoke and cried but the doctor told us she could drink milk, so she was very happy drinking her milk. After that she was happy in the bed moving and smiling with us. And also mom and I drank tea together, and I prayed for them.
Please pray for wisdom for the hospital team for the best plan for Nyaz and an open schedule for her.
This morning Sophie and I had the joy of bringing Niyaz to the hospital for her admission for her catheterization. The procedure will take place tomorrow, so please pray for her and her mother! Today we went to an echo and an x-ray before she got a bed in the secondary ICU, and Niyaz was so wonderful for both tests. She was very calm, and especially for the echo, the technician who did it was very good with her as well. Please pray for her cath tomorrow and that a clear surgery plan would follow!
Today we were called to the hospital for a second echo as a team of cardiologists wanted to look at Nyaz’s right ventricle on ultrasound. We were accompanied by 3 visitors from Oxford in the UK today who were so lovely with with Nyaz playing and dancing with her whilst we waited for her appointment.
Nyaz’s mum showed us some beautiful family photos from home and it was a privilege to get a little insight into her life back in Kurdistan. Nyaz has two older siblings who look like they are very close to her.
Praise God the echo went really well and due to Nyaz being so calm throughout the assessment the doctors were able to determine that the best next step for her will be catheterisation. Everyone at Sheba was very taken with Nyaz today and it is obvious why, she has a smile that just stops you in your tracks and disarms you. We pray that this heavenly joy long continues for sweet Nyaz. We also pray that a surgical plan become available following catheterisation.
I had the pleasure of accompanying both Nyaz and Tre for their initial assessments at Sheba today. I haven’t had much opportunity to meet these mums who are new to our community yet so it was great to spend some time with them. We had fun in the car using the little bits of all of the languages we know together to talk about Israel and the hospital.
Nyaz had an echo, ECG, chest x-ray and check of vital signs today. She was such a good girl throughout all of the tests and her mum did a beautiful job of quickly distracting her whenever she started to become unsettled.
Nyaz has a lovely temperament she really enjoys being sociable and she seems to love music. Her skin is very blue at the moment and despite this being a reflection of her significantly lower than average oxygen saturation levels her energy and joy is surprising.
The cardiologist reported that Nyaz will now be presented to the medical team to discuss her next steps. In addition to her diagnosis received in Kurdistan Nyaz appears to have a smaller pulmonary artery than would be expected. For this she may require an angio-CT or a catheterisation in order to gain better insight into the working of her heart.
Please pray for Nyaz and her mother that they will know the love of Jesus throughout their time here in Israel. Please also pray for knowledge and wisdom during the medical discussion regarding Nyaz’s case.
Nyaz and her mother arrived to Israel this morning! While both are tired from the trip, they provided plenty of smiles in the arrival hall and in the car. Nyaz has a complicated heart defect (TOF with complete AV canal) with her oxygen saturation reported to be quite low in Kurdistan.
And the effects were obvious with the shape and color of Nyaz’s fingers and toes, but praise the Lord the oxygen level reading at the airport was around 80% and Nyaz fared very well during the travel. After contacting Sheba to ensure the decision, we headed home to our Jaffa base with Nyaz and her travel companions (Wareen and Tre).
Nyaz and Mom will rest at home today and we will soon hear when their assessment appointment at the hospital will be. What a blessing we have to get to know beautiful little Nyaz and her mother as they are here with us in Israel!