Wareen had a busy 24 hours! She visited the Emergency Room about midnight last night due to a tumble off of a table (she’s getting stronger and moving more!) spent the night there, then had a head CT late morning— fortunately, normal results!
Then we tried to catch up on her other scheduled appointments for the day! She did great holding still for her echo, with dad playing Baby Shark and other music videos on his phone to calm her.
The echo results were positive — no fluid in the lungs or around the heart! — but also concerning, because the pressure in her lungs is higher and making her heart work harder. So, a new medicine will be started and she will have another cardiology visit and echo in 4 days.
Then, we trooped to the lab for Wareen to have several blood tests. We praise God that the nurse got the blood in the first try, because our whole group was pretty wilted by then, and Wareen needed a nap!
Dad was exhausted from the long trip to the hospital, but we were able to stop by the 4th floor and visit with a few other heart patients and their moms, and long enough for Wareen to get lots of kisses from the nurses that she charmed from her previous lengthy stay in that unit.
Please continue to pray for Wareen, that the pressure in her lungs will normalize. Also pray for dad — it’s been a very long haul and he is understandably weary. It warms my heart every time I see those two together— her father is so tender and playful with Wareen, and obviously loves his daughter so much!
It reminds me of our Heavenly Father, who watches over us with tenderness, singing, joy, and obvious delight when we return His attention with adoration, and snuggle up close to Him.
After over two months in the hospital, Wareen has come back to the Shevet house! The liquid in her heart has finally cleared after this long time, and we are so thankful. As Georgia wrote yesterday, her father had been expressing that maybe God hadn’t heard our prayers, but yesterday the echo showed that the fluid had dissipated, but just to make sure she was totally ready to come back to Shevet, they kept her one more night. So today Debi and I had the joy of bringing this princess back to Shevet!
When we got to the hospital Wareen was enjoying a bath that a nurse and her father were giving her, after many weeks of seeing her beautiful eyes be vacant, it was a wonderful surprise to see her smiling and giggling. Her dad packed up the numerous gifts she had amassed over her time in hospital, and once we had her medication and the discharge report we drove to Jaffa, where out excited staff ran out to greet Wareen and her father. She will have a follow up echo and a blood test next week, but for now we have such a sweet reason to celebrate. Our hope will never be put to shame, when it is in Jesus. Please join us in praising him for healing Wareen and for sustaining her father. How beautiful it is to write these words of Thanksgiving!
An excitable father wheeled Wareen in her pushchair out towards us in the echo area of the hospital today. Its the first time I had seen her out of bed for so many weeks! Her father’s face was bright and hopeful, as we took many many photos of this joyful time together. Earlier this week, he had said to me that perhaps God hasn’t heard our prayers for Wareen. Perhaps our prayers didn’t work? The idea of this is so painful, and we have lifted her up in prayer even more so.
So today, these words come to mind:
“I wait for the Lord , my soul waits, and in his word I hope; my soul waits for the Lord more than watchmen for the morning, more than watchmen for the morning. O Israel, hope in the Lord ! For with the Lord there is steadfast love, and with him is plentiful redemption.”
Wareen’s echo was really good today; there was no fluid. Praise God, its even almost hard to dare to believe that finally we are seeing our great Father pouring out his healing for little Wareen.
Her father was so happy to hear that maybe tomorrow she can come home. He said “I love her, I love her! I have given everything for her, I’ve sold my car and maybe lost my job and waited all this time, because she is my only daughter, and I love her!” Of course it’s a doubly special time because on Saturday it’s going to be her 1st birthday.
Let’s praise God for pouring out His Spirit, and continue to intercede for precious Wareen. We hope she can come home tomorrow. We know she is in the best, most trustworthy hands.
We have not done this before but are trusting
We are David and Gail from Somerset, UK. Our daughter is a volunteer with Shevet and when we visited her in April, we had the joy of cuddling Wareen and meeting her devoted father Mohammad on the first day they arrived in Israel. It was a pleasure to meet them both. Precious Wareen and Mohammad have now been in hospital for over 50 days. During that time it has been my privilege to keep in regular contact with Mohammad, who speaks good English, and to share their journey through this difficult time as Mohammad sits with his daughter. We had our own experience of being the parents of a very poorly baby and were sustained and encouraged by the kindness of not just family and friends but by the prayers of people we hardly knew at all. God met us in a new and real way. After our son’s visit to Shevet last week we decided to become local leaders to raise funds for Wareen’s treatment and to support the wonderful work being done by the community there. We have not done this before but are trusting that as we step forward God will bless our endeavours and the money will come. We feel that is important to encourage people to become involved not only by giving financially but by sharing Wareen’s story with your family and friends and keeping them in your prayers. Thank you. David & Gail
When we arrived to the hospital we saw Wareen’s father in the waiting area. He told us that his beautiful princess was already in the OR for her second surgery. He was in a good mood. After a few hours our sweet Warren was out of surgery, and the surgeon explained to dad what they did. He was very happy that the doctor gave him a very good explanation. She used a picture of the heart so this made it easier to understand. The doctor said that the surgery was successful and that hopefully today or tomorrow they were going to try to extubate her. Dad was really happy and I really hope that they can go home soon. Please pray for a fast recovery and complete healing and also that very soon they can come back home.
When I entered the big room in secondary ICU to check on Wareen, her bed was gone. She was having her catheterization. So Wareen’s father joined us as we were waiting for Zhya to come out of his surgery. Suddenly he jumped up and ran out of the room. I love the father’s heart when it comes to his beautiful daughter.
The doctor explained the results of the cath to us, saying that Wareen has a hole between her two ventricles (VSD) and that it is bigger than they expected. They need to repair it which is why Wareen is presumably going to either have another cath or surgery.
It’s sad to see how some of the children come to Israel and leave again quickly while others at the same time don’t even get out of the hospital. Please pray for Wareen and her dad. They need strength to continue!
Today, I saw Wareen just before they moved her from the fourth floor to the sixth floor. The reason behind this is that she is exhibiting signs of pneumonia and in the doctor’s words “she is deteriorating slowly but surely.” On the sixth floor she will be more closely monitored, because the symptoms and the fluid in her chest. Please pray for this precious girl, because she has been in the hospital for 40 days now, and it seems like one problem leads to another. But we know God sees her, and is watching over her. It is blessing that Sheba can provide such high quality care. And please also pray for her father whose job wants him to return by July first. We trust God’s timing, and ask Him to orchestrate a miracle to help Wareen recover in this time
We have a big praise report from the hospital today: miss Wareen is not on oxygen anymore! Please pray that she continues to have such good saturation levels that she need not be on oxygen! When I went to her room, both her and her father were asleep, but seeing her in person was so nice; her recovery is a huge answer to prayer especially because when she first came to Shevet she was extremely blue, so now to see the difference in her, that she is healing and becoming so much better is such a privilege. We love Wareen, and wholeheartedly thank God for his healing work. We also pray that God will use the extensive time her father spent in the hospital to draw him closer to his Saviour.
Today I was very excited to see Wareen because Georgia told me yesterday that she really looks different. So, when I went into her room my heart was very thankful towards God. Our beautiful Wareen was not blue anymore. She had a beautiful color on her skin and also had a really low oxygen supplement because her saturation is improving every day. We hope that she will not need the additional supplement soon. She was smiling all the time that we were with her. A beautiful nurse joined us in her room and she took her time to explain what is going on with her. Yesterday thank the Lord they removed the lung drain and her last x-ray was fine. Please continue praying for this beautiful baby, for completely and fast healing.
When I arrived to visit Wareen this morning the nurses and her father told me it is important for Wareen to stay still as as he begins to wake from her sedation. Wareen of course was doing her best to wriggle out of her hospital blanket keeping her in place.
Later in the day as Nyaz was being admitted to the ICU just 2 doors down from Wareen I was able to see the team of nurses and the doctor in her room extubating her. Praise God this went well.
Please pray for Wareen’s ongoing healing.
As we reached the hospital this morning, Wareen’s surgery has been already started. But when we found her dad, he was, considering his situation, really in a good mood. He spoke with all the different nurses and doctors to find out about Wareen and even took a selfie with the surgeons assistant of his daughters surgery. They also exchanged their numbers and he proudly showed us their chat. He is a humorous men. Of course he was really concerned about his daughter, but still we could chat a lot and also had many laughs about our funny Kurdish and English mix we are speaking with one another, so. And we also prayed together.
Wareen’s surgery went well. The doctors could fix six different problems she had, for example closing a whole in her heart and preparing her valves. But still the doctors are a bit worried about her low blood pressure and other small problems which came up. So, please really pray for her next hours, which are important for the outcome of the surgery.
First of all I will ask you to pray for strength and patience for Wareen’s father, because they will need to be at the hospital for 14 more days under an antibiotic treatment.
Her dad speaks basic English but I was able to translate from English to his heart language, Kurdish, and give him some words of encouragement.
But in the middle of the long waiting there is hope and healing. The staff did a new blood culture and the result was negative which means that the treatment is working!
Her general condition is stable but she is still on oxygen. Hopefully soon the surgeons will be able to decide when to perform her operation.
Fighting a Virus and Rash
Wareen continues her stay in the secondary ICU today. I arrived at the same time as a doctor for infectious diseases. He has been called to check Wareen as she has developed a rash over the whole of her body. This is likely to be a result of the virus she is currently fighting but it is naturally a very big worry to her father.
It was clear from our conversations today that Wareen’s father is starting to feel quite frustrated and helpless about needing to wait in hospital whilst his daughter needs heart surgery. It must be very difficult for Wareen to be so close to the treatment she needs surrounded by children in and out of surgery. However, whilst this virus persists she cannot have her surgery. Please pray for the healing of Wareen and for God to support her father at this difficult time.
Last night we had a big scare. Our beautiful Wareen was not doing well. Her oxygen dropped, her heart rate and temperature were high, and her breathing was difficult and she was more blue than she is usually. We tried to manage the situation, but this did not improve enough to be sure that she was safe at home. Sophie and I took Wareen and her Dad to the ER around 11 o’clock pm, and on our way to the hospital her oxygen continued to drop. We were praying all the time for her.
Thank the Lord we arrived safely. Immediately the ER staff took care of her. They performed an echo, x-ray, ECG, blood test, and they put in an IV line for fluids. They were able to stabilize her. And then, she was admitted to secondary ICU for a cardiology check. Sophie updated them with the medical information while I was taking care of Wareen, who fell sleep in my arms. I was very thankful to God that Wareen was safe and stable. Please pray for her and for her Dad. For her soon recovery of her viruses and she can have her surgery
No surgery for Wareen today. Last night, she had an unexplained increase of temperature. The temperature was fine early this morning, but increased just before surgery. Since the doctors cannot explain the increase, they did not accept it as a risk for the surgery. However, she will remain in the ICU, waiting for better conditions for surgery. Father Mohammed is very much looking forward to the surgery!
Fortunately we got in the morning a phone call from the hospital that Wareen can come to the hospital for her admission and possible surgery tomorrow. So we all were very happy about that and her father as well. When we arrived at the hospital Wareen was almost getting her bed in ICU straight away. From the first moment there every nurse who saw her was just loving her and her cute smile and blue eyes, so she made a lot of friends there. After making some tests in her room there which Wareen didn’t like, the nurses took her to make a CT scan. They made the CT scan with sedation but it was fine for her. Afterwards they gave her oxygen.
Wareen’s father and Diana went to the surgeon to speak about the procedure tomorrow. Wareen and her dad had a long day with a lot of tests but they both were patient and lovely. It was also very helpful that Wareen’s father can speak English. Hopefully Wareen will have her surgery tomorrow early in the morning. Please pray for a successful surgery and for the surgeons that they will be calm and do a good job.
Today, Wareen was diagnosed by echocardiography. The echo started well, but after 10 minutes she started to cry and we could not stop her crying. After a break there was a second attempt. Again she started crying before the flow measurements started. Finally she got a sedative to sleep. While sleeping, the echo was successful.
We took samples of body material to test if she bears any high risk bacteria. Dr. Uriel Katz took further information from our medical records and from her father. His conclusion is that Wareen needs full repair. We have to wait for her to be scheduled.