We had a great lunch/farewell party for Wareen and her dad. We ate Kurdish biryani for lunch and a chocolate cake for dessert. Suheil and I took them to Ben Gurion Airport and everything went very well and fast at the airport. All the staff there were very friendly and helpful. Many of the staff wanted to see Wareen’s sweet face and wished her the best in life. Our lovely Wareen is in Kurdistan now, but she will always be in our hearts and in our prayers. God bless you, Wareen!
Today we met the doctor again for another echo. Dad was nervous and we could see that he now wants to go home to Kurdistan.
After checking Wareen’s heart, the doctor told us that she and her father can go home to Kurdistan, but there are still some complications that need to be checked now and then. Right now the doctors don’t want to do another surgery because of the mitral valve problem she has now. Even if they do a surgery implanting a mechanical valve, they don’t know if this will help because Wareen is very young for that.
It may also be necessary to return to Israel if the parents and doctors notice that Wareen is not doing well back in Kurdistan, but only when Wareen is older. The doctor told us that he knows that they can´t do so much right now and that they don´t want to let them wait here.
The doctor has written out everything that the doctors in Kurdistan need to know. Wareen’s dad was both happy and sad – happy to finally be able to go home after four months, but sad that Wareen still has some complications. Dad wants to think positively and hope for the best for sweet Wareen.
Wareen and her dad will be back in Kurdistan tomorrow night. We will miss them and we will keep Wareen in our prayers here at Shevet Achim. Please keep Wareen and her family in your prayers and that she will be fine back in Kurdistan.
Yesterday was a bit hard for Wareen’s dad. We went to Sheba for an echo appointment which might be the last one for Wareen. The doctor called Wareen and her dad to the room, and Wareen was calm as always.
The echo showed that Wareen has the same problem as before: high pulmonary pressure, not better and not worse than before. The doctors will discuss Wareen on Thursday and then they will decide if she needse more treatment here or if she can go home to Kurdistan and continue with the medicine she already takes. We will get the answer on Thursday!
Wareen also had some blood tests because of her thyroid. All the tests showed good results and now we have to wait for good news from the doctors. Please keep Wareen in your prayers.
Wareen had a busy 24 hours! She visited the Emergency Room about midnight last night due to a tumble off of a table (she’s getting stronger and moving more!) spent the night there, then had a head CT late morning— fortunately, normal results!
Then we tried to catch up on her other scheduled appointments for the day! She did great holding still for her echo, with dad playing Baby Shark and other music videos on his phone to calm her.
The echo results were positive — no fluid in the lungs or around the heart! — but also concerning, because the pressure in her lungs is higher and making her heart work harder. So, a new medicine will be started and she will have another cardiology visit and echo in 4 days.
Then, we trooped to the lab for Wareen to have several blood tests. We praise God that the nurse got the blood in the first try, because our whole group was pretty wilted by then, and Wareen needed a nap!
Dad was exhausted from the long trip to the hospital, but we were able to stop by the 4th floor and visit with a few other heart patients and their moms, and long enough for Wareen to get lots of kisses from the nurses that she charmed from her previous lengthy stay in that unit.
Please continue to pray for Wareen, that the pressure in her lungs will normalize. Also pray for dad — it’s been a very long haul and he is understandably weary. It warms my heart every time I see those two together— her father is so tender and playful with Wareen, and obviously loves his daughter so much!
It reminds me of our Heavenly Father, who watches over us with tenderness, singing, joy, and obvious delight when we return His attention with adoration, and snuggle up close to Him.
After over two months in the hospital, Wareen has come back to the Shevet house! The liquid in her heart has finally cleared after this long time, and we are so thankful. As Georgia wrote yesterday, her father had been expressing that maybe God hadn’t heard our prayers, but yesterday the echo showed that the fluid had dissipated, but just to make sure she was totally ready to come back to Shevet, they kept her one more night. So today Debi and I had the joy of bringing this princess back to Shevet!
When we got to the hospital Wareen was enjoying a bath that a nurse and her father were giving her, after many weeks of seeing her beautiful eyes be vacant, it was a wonderful surprise to see her smiling and giggling. Her dad packed up the numerous gifts she had amassed over her time in hospital, and once we had her medication and the discharge report we drove to Jaffa, where out excited staff ran out to greet Wareen and her father. She will have a follow up echo and a blood test next week, but for now we have such a sweet reason to celebrate. Our hope will never be put to shame, when it is in Jesus. Please join us in praising him for healing Wareen and for sustaining her father. How beautiful it is to write these words of Thanksgiving!
We are David and Gail from Somerset, UK. Our daughter is a volunteer with Shevet and when we visited her in April, we had the joy of cuddling Wareen and meeting her devoted father Mohammad on the first day they arrived in Israel. It was a pleasure to meet them both. Precious Wareen and Mohammad have now been in hospital for over 50 days. During that time it has been my privilege to keep in regular contact with Mohammad, who speaks good English, and to share their journey through this difficult time as Mohammad sits with his daughter. We had our own experience of being the parents of a very poorly baby and were sustained and encouraged by the kindness of not just family and friends but by the prayers of people we hardly knew at all. God met us in a new and real way. After our son’s visit to Shevet last week we decided to become local leaders to raise funds for Wareen’s treatment and to support the wonderful work being done by the community there. We have not done this before but are trusting that as we step forward God will bless our endeavours and the money will come. We feel that is important to encourage people to become involved not only by giving financially but by sharing Wareen’s story with your family and friends and keeping them in your prayers. Thank you. David & Gail
When we arrived to the hospital we saw Wareen’s father in the waiting area. He told us that his beautiful princess was already in the OR for her second surgery. He was in a good mood. After a few hours our sweet Warren was out of surgery, and the surgeon explained to dad what they did. He was very happy that the doctor gave him a very good explanation. She used a picture of the heart so this made it easier to understand. The doctor said that the surgery was successful and that hopefully today or tomorrow they were going to try to extubate her. Dad was really happy and I really hope that they can go home soon. Please pray for a fast recovery and complete healing and also that very soon they can come back home.
When I entered the big room in secondary ICU to check on Wareen, her bed was gone. She was having her catheterization. So Wareen’s father joined us as we were waiting for Zhya to come out of his surgery. Suddenly he jumped up and ran out of the room. I love the father’s heart when it comes to his beautiful daughter.
The doctor explained the results of the cath to us, saying that Wareen has a hole between her two ventricles (VSD) and that it is bigger than they expected. They need to repair it which is why Wareen is presumably going to either have another cath or surgery.
It’s sad to see how some of the children come to Israel and leave again quickly while others at the same time don’t even get out of the hospital. Please pray for Wareen and her dad. They need strength to continue!
Today, I saw Wareen just before they moved her from the fourth floor to the sixth floor. The reason behind this is that she is exhibiting signs of pneumonia and in the doctor’s words “she is deteriorating slowly but surely.” On the sixth floor she will be more closely monitored, because the symptoms and the fluid in her chest. Please pray for this precious girl, because she has been in the hospital for 40 days now, and it seems like one problem leads to another. But we know God sees her, and is watching over her. It is blessing that Sheba can provide such high quality care. And please also pray for her father whose job wants him to return by July first. We trust God’s timing, and ask Him to orchestrate a miracle to help Wareen recover in this time
We have a big praise report from the hospital today: miss Wareen is not on oxygen anymore! Please pray that she continues to have such good saturation levels that she need not be on oxygen! When I went to her room, both her and her father were asleep, but seeing her in person was so nice; her recovery is a huge answer to prayer especially because when she first came to Shevet she was extremely blue, so now to see the difference in her, that she is healing and becoming so much better is such a privilege. We love Wareen, and wholeheartedly thank God for his healing work. We also pray that God will use the extensive time her father spent in the hospital to draw him closer to his Saviour.
Today I was very excited to see Wareen because Georgia told me yesterday that she really looks different. So, when I went into her room my heart was very thankful towards God. Our beautiful Wareen was not blue anymore. She had a beautiful color on her skin and also had a really low oxygen supplement because her saturation is improving every day. We hope that she will not need the additional supplement soon. She was smiling all the time that we were with her. A beautiful nurse joined us in her room and she took her time to explain what is going on with her. Yesterday thank the Lord they removed the lung drain and her last x-ray was fine. Please continue praying for this beautiful baby, for completely and fast healing.
As we reached the hospital this morning, Wareen’s surgery has been already started. But when we found her dad, he was, considering his situation, really in a good mood. He spoke with all the different nurses and doctors to find out about Wareen and even took a selfie with the surgeons assistant of his daughters surgery. They also exchanged their numbers and he proudly showed us their chat. He is a humorous men. Of course he was really concerned about his daughter, but still we could chat a lot and also had many laughs about our funny Kurdish and English mix we are speaking with one another, so. And we also prayed together.
Wareen’s surgery went well. The doctors could fix six different problems she had, for example closing a whole in her heart and preparing her valves. But still the doctors are a bit worried about her low blood pressure and other small problems which came up. So, please really pray for her next hours, which are important for the outcome of the surgery.
First of all I will ask you to pray for strength and patience for Wareen’s father, because they will need to be at the hospital for 14 more days under an antibiotic treatment.
Her dad speaks basic English but I was able to translate from English to his heart language, Kurdish, and give him some words of encouragement.
But in the middle of the long waiting there is hope and healing. The staff did a new blood culture and the result was negative which means that the treatment is working!
Her general condition is stable but she is still on oxygen. Hopefully soon the surgeons will be able to decide when to perform her operation.
Last night we had a big scare. Our beautiful Wareen was not doing well. Her oxygen dropped, her heart rate and temperature were high, and her breathing was difficult and she was more blue than she is usually. We tried to manage the situation, but this did not improve enough to be sure that she was safe at home. Sophie and I took Wareen and her Dad to the ER around 11 o’clock pm, and on our way to the hospital her oxygen continued to drop. We were praying all the time for her.
Thank the Lord we arrived safely. Immediately the ER staff took care of her. They performed an echo, x-ray, ECG, blood test, and they put in an IV line for fluids. They were able to stabilize her. And then, she was admitted to secondary ICU for a cardiology check. Sophie updated them with the medical information while I was taking care of Wareen, who fell sleep in my arms. I was very thankful to God that Wareen was safe and stable. Please pray for her and for her Dad. For her soon recovery of her viruses and she can have her surgery
No surgery for Wareen today. Last night, she had an unexplained increase of temperature. The temperature was fine early this morning, but increased just before surgery. Since the doctors cannot explain the increase, they did not accept it as a risk for the surgery. However, she will remain in the ICU, waiting for better conditions for surgery. Father Mohammed is very much looking forward to the surgery!
Fortunately we got in the morning a phone call from the hospital that Wareen can come to the hospital for her admission and possible surgery tomorrow. So we all were very happy about that and her father as well. When we arrived at the hospital Wareen was almost getting her bed in ICU straight away. From the first moment there every nurse who saw her was just loving her and her cute smile and blue eyes, so she made a lot of friends there. After making some tests in her room there which Wareen didn’t like, the nurses took her to make a CT scan. They made the CT scan with sedation but it was fine for her. Afterwards they gave her oxygen.
Wareen’s father and Diana went to the surgeon to speak about the procedure tomorrow. Wareen and her dad had a long day with a lot of tests but they both were patient and lovely. It was also very helpful that Wareen’s father can speak English. Hopefully Wareen will have her surgery tomorrow early in the morning. Please pray for a successful surgery and for the surgeons that they will be calm and do a good job.
Today, Wareen was diagnosed by echocardiography. The echo started well, but after 10 minutes she started to cry and we could not stop her crying. After a break there was a second attempt. Again she started crying before the flow measurements started. Finally she got a sedative to sleep. While sleeping, the echo was successful.
We took samples of body material to test if she bears any high risk bacteria. Dr. Uriel Katz took further information from our medical records and from her father. His conclusion is that Wareen needs full repair. We have to wait for her to be scheduled.
Today we picked up Wareen and her father from the airport, together with two other families. They left Kurdistan at 4:15 Erbil time and landed at Ben Gurion airport at 7:49 Israel time. They had a very short night for sleeping. So on arrival, sweet Wareen was fast asleep. Wareen was born 9 months ago with Down’s syndrome and cyanotic congenital heart disease. She was referred by her local pediatric cardiologist to an advanced cardiac center abroad. During flight she used oxygen. On arrival her heart rate and oxygen saturation were at acceptable levels. She did not look blue. Father speaks a bit English.