We had a great day at the hospital for two appointments and visiting our little Roman. He was finally extubated after the staff tried for a couple of days with no success. Praise the Lord for that good progress.
Unfortunately during the night he had a short event and his saturation went down to 30 or 40%. The doctors suspect that was a small seizure and they performed an EEG. Now they are waiting for the results from the neurologist to know exactly what happened. His respiratory system and last echo were good. His mother is really sweet and she is so happy he is drinking milk. She has always a big smile on her face.
About three weeks ago our community sat around the dinner table, Pesach was starting and the ministry of interior had not yet given permission for a two month old, whose window of time for a successful surgery was running out, to come to Israel. But in that time God worked miraculously to provide a visa in time for this baby, Roman, to come while he was still operable. Diana and I had the privilege of being with him and his beautiful mother today as he went in for surgery. He became unstable yesterday afternoon, so initially we thought his emergency surgery would be last night, but he stabilized and they held off until first thing this morning. Diana and I got to the hospital at 8, but the ICU nurse, Keren, told us that his surgery was not next to the pediatric cardiac ICU per usual, but instead was taken to a building nearby.
Thankfully Diana had been there before so we found Roman’s mother who was with Birhat’s mom just after they had taken him into surgery. We were told to expect a four to five hour wait, and Diana knew just how to comfort Roman’s mom, through reassuring embraces and words of affirmation (in Kurdish!) Diana was a blessing to this sweet mum throughout the intense wait. Much to our surprise, Roman was out of surgery in three hours; we rushed to follow the bed, doctors and machinery that hurried out of the Operating Room, to a transportation vehicle waiting outside to take him to the Children’s hospital.
As the doctors, with Roman unconscious in the bed, crammed into the back of the ambulance, they were saying that everything is good, as they must have understood the overwhelming sight before us. They also asked mum to come with them, and before she took one step she looked at Diana and said, “Bash?” Kurdish for “Good?”. And Diana replied “Bash”. It’s impossible for me to describe her face at that moment. Only that I wish that same reaction for every parent who watches their child come out of the OR. It was relief after prolonged waiting, yes, but more than that it was the culmination of audacious hope; whether whispered in prayer or shouted in sorrow when no hope seemed to be left, and God has heard.
Little two months old Roman arrived yesterday at the hospital. He will probably have surgery on Wednesday. As I arrived to his room, one of the nurses just did an ultrasound. Roman cried and kicked his legs, trying hard to defend himself. I was wondering how he can be so small yet so strong.
The nurse said that his brain and kidneys look good so far, however a doctor has to look over the results. Roman‘s mum didn’t look too worried, she was doing a great job as she sang all the time to soothe him. Thank you, father that you made it possible for Roman to come to Israel and please give him strength for his surgery!
Today I was very excited to pick up our little Roman at the airport. I know how long his family have been waiting for this moment. But, in the afternoon we got the news that on his long journey to Israel, Roman had to leave the airport because he wasn’t doing very well. His oxygen was very low and his heart rate was very fast. Thank the Lord, the Jordanian doctors was able to assist him.
I was very worried for him because we didn’t have much information on his condition. But I was very confident that God was with them. Later we got the news that he was able to fly to Israel.
We arrived to the airport so happy to pick up two beautiful families that took around one hour. Finally we could see them – one of them was Roman who is really beautiful. I took his vital signs and called the ICU and we went straight to the hospital. When we arrived there everything was ready for him. They performed different procedures, and later the cardiologist came and made a echo. He confirmed his diagnosis was correct. I was very thankful that Julio was with me, because he can speak Kurdish. And he was able to answer every question and explain everything to mom. Mom was very tired but she is really strong and sweet . Thank to the Lord we could eat something together as she was very hungry, and also our beautiful Roman.
Please pray for him, for wisdom for the medical team and the best decision and plan for him.