Yes! It’s time for the pretty little girl to go back home! Only yesterday the hospital confirmed that Razbar can leave. She had her final echo and everything looked well.
So everybody started preparing for the farewell party in the evening. We started with singing and continued with a time of sharing which turned out to be really great. People told about their experience with Razbar and her Dad. Also the other families shared their thoughts and we were amazed how friendships had been growing for the last months.
One thing stood out clearly that Razbar has a really caring and loving father. Yesterday again he dressed her up adorable and made her hair- who wouldn’t like to have a daddy who knows how to do your hair?
She got a gift with toys and clothes to take back home with her and later we watched a video about Razbar’s long walk to get treatment and had delicious cake and pop corn for the children. We finished with taking pictures out on the balcony- it was a really nice farewell party!
And today around 4pm it was time to say “goodbye.” The families came outside to see her and Daddy one last time and waved with tissues until the car disappeared in the next street. At the security everybody was so kind to us and they loved Razbar. We were very grateful since there have been times when the security is making it hard for us and the families. But today the staff cheered up Razbar and liked to hear about the work Shevet Achim does.
We took one last picture and the family went to their gate.
We are happy for them to go back home and we pray that God continues working in their life. Please join and keep her and her family in your prayers. We hope them to see that God is the One who really can take care of Razbar’s heart and they would see His hand in all they experienced with her healing.
Razbar had a appointment with a dermatologist today. She and her father have been here for almost four months now.
Today I felt that her dad wanted to go back to Kurdistan. He had questions about this appointment and wanted to know about the results from the MRI Razbar had last week. He expected that after we had the MRI results and some good signs from the doctor, then he and Razbar could go home to Kurdistan.
We went to Sheba and met the doctor. She has some questions about Razbar’s breathing and some questions about her medicine. And that’s all we got for the day – she had no results from the MRI. Razbar’s father was frustrated about this and told me to ask why they didn’t have the results. She said that it takes more than one week maybe two weeks.
He told us that it will be difficult to stay here more than four weeks, as his job will not allow him. We hope that we get a result and good answers from the doctors soon.
Treating the Mass in Her Throat
For Razbar, the day she and her dad have been waiting for was today! Her pulmonary appointment, as well as her echo, were scheduled for today. In the waiting they’ve been so patient, and her dad really understands that it was imperative to his daughter’s health. Her echo looked great, and cardiologically, she needs no further intervention. But to deal with the mass in her throat and chest, doctors must meet to discuss the MRI results from yesterday, and she must also see an ENT doctor, to check her throat for after effects of intubation, and the dermatologist next week.
Please pray for lovely Razbar, even though her heart is working properly, it’s hard to celebrate when she has more appointments before her, but thank God for his work in her life. And thank God for the doctors and nurses that have helped heal her. Please pray for the path ahead, with more appointments coming up, that they would be in God’s time.
The Lord Shines His Face Upon Us
Praise God with us today for the favour which he poured out on us at the hospital throughout Razbar’s appointments. Her cardiologist was thorough and delivered the great news to us that the surgery looks to be very sucessful and that her heart appears to be in a good condition.
The doctor was attentive to hear the concerns which the father of Razbar still has about her; she continues to present with congested sounds and has some breathing difficulties. She took up Razbar’s cause and phoned the pulmonary doctor to arrange for us to see her straight away afterwards. She also helped to ensure they Razbar would be seeing a dermatologist and have an MRI scan to further assess the causes of her breathing difficulties.
The pulmonary doctor remembered joyful little Razbar and was pleased to meet her again. She too was so thorough, and prescribed some medication for inhalation to help clear Razbar’s congestion.
Jana and I really enjoyed our day with Razbar and her father. Razbar is such good fun, and really enjoys clapping and dancing along to music. Her dad is so committed to Razbar’s health, even though she is a complex case and she has to stay in Israel (to address the breathing issues) for a longer period of time than he previously anticipated. He is a peshmerga soldier, and has been given a month off of work to be able to come here to be with Razbar. He expressed his worries now about having to stay here such a long time. Please pray for him to have peace about staying here for longer than he expected to. It is a joy to see how much more relaxed he is, and for some of use to be able to form friendships with him here at Shevet.
Please also praise God for his favour and blessing over our day today, and for his healing for Razbar. Please continue to lift up this sweet girl in your prayers.
When I entered Razbar’s room in the ICU, she was hiding under her blanket as she was very tired. She had been extubated on Friday and looked so so lovely. Even still, it was very weird and unusual to see her so quiet. Normally Razbar is the one who is constantly talking, laughing and clapping. The doctor told me that her echo shows that she is doing great. She has neither fluid in her lungs nor around her heart.
Later when I checked on her again, she had been fallen asleep. It’s a miracle for me that her breathing was completely quiet and normal (Before it sounded always as if she had a horn in her throat. Her father was so worried). Thank you God for Razbar’s great healing process! All honor to you!
Sweet Razbar was asleep this morning, and not much had changed since yesterday at first glance because she was still intubated. But the nurse said that they had tried to extubate her last night, except she couldn’t breathe because of her stridor, so they had to reintubate her. Please pray for progression and no complications for her heart, because of her respiratory illness! The doctors will monitor her for today and try again to extubate her tomorrow.
All Together on Razbar's Surgery Day
Razbar had the first surgery of the day today, and it took around 4 hours. The doctor said that they surgery was very successful, and so it was clear to see from her father’s face just how relieved he was when he heard the news.
There were quite a few families at the hospital today, and so it was good for the father of Razbar to have the company of Sahand’s father and Julio to share conversation with whilst he was waiting for the surgery. Time always seems to pass so much more quickly in good company, and especially today, there were quite a few jokes exchanged between them.
Razbar’s father is a strong character, and has always been so focused on Razbar’s health. There was a sweet moment when Razbar was wheeled out of surgery on her bed, and her father saw her through the doors. We all stood up and followed as far as we could into the ICU, and there was a lovely feeling of solidarity, hope and joy as we watched as Razbar was taken to her room, followed by the hospital staff to stabilise her. The doctor was so friendly to Razbar’s father as he explained that the surgery had been a success.
Then we sat down again, all together.
The ‘togetherness’ was such a steadying feeling for me, and I hope and pray that the father of Razbar knows that we treasure them both as members of our family here in Israel.
Please continue to pray for Razbar’s healing and protection over her life, especially during these critical 24 hours after the surgery.
Today my mom and I thought that we were going to have a short day at the hospital but just few minutes before we were going to leave, they called us and said, “tomorrow Razbar is going to have a surgery.” I was very happy for that, because her Dad has waited for this moment for a long time. So we had the pleasure of taking our smiling and sweet Razbar and her father to the hospital for her admission.
It was a long long day, but it was very beautiful. Although we can not speak their language, we had a good time. The surgeon explained everything to Dad. Thank the Lord someone translated into Arabic, so he could understand what is expected to happen tomorrow with his young daughter. After that we waiting for a while and we could get some lunch, but the only one who ate the lunch was Razbar – she was really starving. Later we went for a chest x-ray and quick check from a doctor.
Although the waiting was so long they were really patient. Finally I went to the ward and the nurse was very nice with us. He understood that we were very tired for a such long day, so he tried to get Razbar’s room ready as soon as possible. They brought food, blankets and sheets for them. They asked a lot of question about Razbar. We were very happy that finally she was in the room. My mom and I left the hospital, and Razbar’s dad was very happy that we went with them through everything. Our beautiful Razbar cried when we said bye to her. Tomorrow she is going to have her surgery early in the morning. Please pray for her, for wisdom for the medical team and a good surgical report. We declare the power and healing of God in this beautiful life.
Razbar had two appointments today. The first one was with the respiratory doctor, the other one with the cardiologist.
Razbar has been under medication because of the respiratory illness she has, but now the doctor said she is doing better. Razbar will start two new respiratory medications from today. Both doctors will meet after we finish all the echos and check-ups to decide when the heart operation can be done.
Margarita’s help during both appointments was amazing. She is our new volunteer from Colombia. She doesn’t speak Kurdish but does speak the language of Love, so Razbar was calm when Margarita was singing and playing with her.
Please pray for the father because he needs to go back to his job and they have been here for one month.
Please pray for wisdom for the doctors so they can set the final date for her surgery and please also pray for her father’s patience. They have been here for a month but he needs to understand that the doctors are treating the respiratory illness too.
Today we left very early in the morning to take three beautiful families to the hospital. One of them was Razbar and her father. She is really sweet. I really enjoy every time she speaks, laughs and smiles with me, and also when she claps. She is a really beautiful and special girl. She had a neck and chest MRI today. Thank the Lord, Mr. Suhail was with us and he did a wonderful job. He can speak Arabic so he could help dad with translating and wait with him. Praise the Lord her MRI was without complications. Tomorrow she is going to have two appointments with her respiratory doctor and cardiology doctor. Please pray for the best plan for her and for an open schedule so that she can schedule her appointments soon, and for peace in her dad’s heart.
Healing and Resting at Shevet
It was a joy to collect Razbar today following her brain MRI yesterday. The hospital team were really kind to us at the time of her being discharged having already arranged the follow-up appointments on our behalf to take place in a few week’s time. Razbar needs to stay at home for a few weeks now whilst her body adjusts to taking a new medicine. Having recently found suspected build up of blood vessels near the larynx which is impacting on Razbar’s coarctation the doctors very much want to see this reduce in size before the time of her surgery. Please pray that Razbar will be healed over this fortnight.
We were able to bring Razbar back to the Shevet house this evening and we are pleased to have her and her father back with us. We pray we are able to get to know them better over this time and that we will share a lot of joy together.
Today, our lovely Razbar had her second CT scan. Being already hospitalized, she had the privilege of being escorted. That means she was sitting in her own bed, was monitored and guided by a pediatric physician. So today, especially the monitoring really helped the team of the CT scan to check her oxygen and to respond to her breathing. Praise the Lord! She was fighting hard against the anesthesia and they needed a second shot to help her fall asleep. But finally they have good pictures they can work with!
According to the CT scan results they will decide about her surgery plan. So please pray for everything ahead of her. May God provide a surgery soon and a healthy recovery afterwards for our little babbling Razbar. Please also pray for her father, as he really wished to have the surgery as soon as possible.
More Tests in the Hospital
Julio and I met Wareen’s father in the hosptial, and he told us that Razbar had been moved in the evening to another section of the ICU. We went upstairs to find her and her father.
I asked the doctor if she was going to be coming home today, and she replied firmly that Razbar is certainly staying in the hosptial. It became apparent that although Razbar was hospitalised yesterday just to monitor her breathing, the medical team have some more concerns about her, and want to continue to carry out assessments.
Today she was due to see the ENT doctor, to assess her upper respiratory system. She later was due to have a bronchoscopy. She will also need further imaging of a potential mass which presses onto her trachea. The hospitla team hope to be able to have more answers for her on Sunday.
For her assessments today, she required sedation, and so whilst we were there, Razbar was fasting and feeling quite upset. The doctor was keen to make use of Julio’s translation skills. She was very friendly and kind to Razbar’s father.
Please keep these two in your prayers, for wisdom for the medical team, and for strength for Razbar’s father.
Today our beautiful Razbar had a busy morning in the hospital. Thanks to the Lord all her processes have been so fast. On our way to the hospital she was talking to us a lot; she is so sweet. She had two appointments, the first one was with a respiratory doctor. Praise the Lord our translator was with us and he was able to translate everything to Dad and to the doctors. The father showed the doctor a video of Razbar’s breathing. Since she was two months old, she has had noisy and difficult breathing (called stridor
). The doctor checked her and she cried a lot, but after she enjoyed the toys that the doctor had in her desk, she stopped crying. The doctor thinks that she has this problem because her great vessels are pushing on her trachea. This makes her breathing noisy and she needs to exert more effort than normal when she is breathing. The doctor called Razbar’s cardiologist and both agreed to order a CT scan so that they can see how her great vessels are in relation to her trachea. After that the doctors can decide what is the best plan for her. The doctor was able to answer all the questions that dad had and she also took time to listen to the dad.
After that, we went to the next appointment, with the neurologist, who told us that praise the Lord she doesn’t seem to have neurological problems. After her surgery she is probably going to be better in the development and movement of her legs, because of her heart problem and bad breathing she doesn’t have enough blood in her legs.
I went to the secretary to ask about her CT scan appointment, and when she told me that she is probably going to have that this Wednesday, I was very happy. Some of our babies need to wait a long time for procedures like that, but thanks to the Lord the schedule for her was open, and she can have that soon.
On our way home she was so tired she fell asleep. Please pray for Dad, peace in this time and that he can really enjoy his time with us, and pray also for our beautiful Razbar.
Julio, Sophie and I were happy to meet beautiful Razbar and her father this morning at the airport. She was quite upset and tired, but luckily she presented in a good condition. We already had her first appointment booked at the hospital, so we brought her here. Julio was with her and her father during the appointment, and was able to translate everything for the doctor.
Razbar’s diagnosis is Coarction of the aorta. We found out that she has some possible breathing difficulties which need further assessment. The dad had brought some helpful videos for the doctor to see.
Razbar was very upset during her echo! But for the rest of the time, she was happy and chatty. Julio is completely in love with her, and has really enjoyed listening to her babbling away, holding the phone up to her head.
Razbar needs some more assessments carried out before her surgery can be planned. Thank God for the helpful work from the secretary at the hospital, who worked her magic and had already booked an appointment for next week for one of the assessments.
Please pray for this little one and her family.