Praise God for lovely Sahand! He has such a sweet and gentle spirit, and is so much fun to be with. Today was his hospital appointment, and as he went into the ECG room and started to cry, I suddenly thought how could I have forgotten everything I’ve been told about Sahand in his last echos?! The poor boy had to be sedated for the initial appointment as he was so distressed. My thoughts went towards his father, who hadn’t shown any sign of worry about the next hour… And I watched as he got out all of his “provisions” for the appointment (drinks and a light up bubble gun), and felt so pleased that God knows Sahand so well, to have given him to such a caring father.
Sahand again found the ECG and the echo quite upsetting, but responded reasonably well to our combined effort of calming measures, and so the doctor was easily able to get all of the necessary assessments done. Thank God; he heard my prayers for this lovely boy.
We heard the good news that Sahand’s heart is looking very good, and there is no longer any fluid around the heart. The doctor was especially pleased that the pulmonary valve has not been cut, and so this may continue to work well throughout Sahand’s life, so the prognosis is good.
So, the surprise was that the doctor was happy for Sahand’s next follow up appointment to be in Kurdistan! Originally we had booked another echo for next week, but after some further discussion, this plan was changed.
Julio enjoyed joking with the father that the doctor had changed his mind and he needed to stay for a further fortnight(!) before explaining the new outcome that he can go home. This brought us all a lot of laughter!
So, praise God for bringing a healing into Sahand’s heart! We love this beautiful boy and will be sad to wave goodbye to him soon, but full of joy for the good works which God has done, and that he can return to his family.
Please pray that the Holy Spirit will work in the hearts of Sahand and his father and that they will have a revelation of Jesus.
Yesterday Dad and I were very worried how the echo was going to be for Sahand, because he always cries so much that they previously needed to give him sedation. So I really asked the Lord and my friends what we need to do, so they gave me some ideas. Today very early in the morning we went to the hospital for his first follow up after surgery. He enjoyed his time there, he played with the toys that I had, and he also was running and walking everywhere. Sahand and Taman had a good time together playing and drawing. His doctor was very happy to see him, he looks a very healthy and active boy. In the beginning when we took him to the echo room he cried a lot. I took out the bubbles, a toy with light, a puppet and I put music on my cellphone. And dad took out one bottle of milk and a bottle of water: “we were ready.”
It was really funny that we had a lot of stuff to calm him down. In the beginning, it was really difficult, and I thought “this can not be possible”. But thanks to God: Dad and I had grace and together we danced and sang and played together. They could perform his echo and ECG and vital signs. I remembered that:
Let us then approach God’s throne of grace with confidence, so that we may receive mercy and find grace to help us in our time of need. Hebrews 4:16
God is always teaching us. The doctor was very happy with his progress. He is in good condition and his surgery looks good. However he has some liquid in his heart, so she made some changes in his medication and he is going to have next follow up in one week. Dad was a little sad, but we trust in God and we declare that He is in control and He can make the miracle again. Please pray for complete healing also that he and Dad can go to home soon.
Today we had the joy to visit our children in the hospital. We got the good news that Sahand was going to be discharged today so here they were waiting for us to return home.
First of all I want to thank you for all your prayers because Sahand is recovering really well. He is a boy full of life and it does not look like he had an open heart surgery. His dad also does a great job taking care of him.
Upon discharge he was doing really fine. He will keep having his medicine as requested by the doctors. Next week he will need to have some blood tests then after one week he will have his first echo after the surgery. So far he is so happy to be back to our home.
Svea and I joined the group of Kurdish parents sitting outside the ICU doors this morning. Sahand went into surgery just after 8am.
Sahand’s father waited patiently for the process. These are the most difficult hours, when a parent entrusts their child to the medical team, and they disappear through the doors into the OR. Sahand has really grown in confidence during the time we have got to know him here in Shevet. He no longer cries when we check his oxygen levels at home, and we have got to see his beautiful happy personality.
Dad showed me and Svea some of the photos of Sahand’s hospital experience thus far, and so it is hard to see this usually happy boy bring so upset in these photos. Thankfully he has a strong and loving father with him, who is devoted to his wellbeing and care.
Sahand’s surgery took around 5 hours, and he was stabilised in the ICU. He is neighbours with Nyaz and also close to Wareen. Also as we were there with Mateen’s mum, she was able to translate the information from the surgery for dad. We have to wait over these next 24 hours and pray that it has been a success and that Sahand’s body will heal well.
Today, as our hospital team was in the midst of Gaza discharges, a catheterization for one of our Kurdish children and a surgery for another one of the Kurdish kids, we got a text from Sophie at the Jaffa base who said that the hospital wanted to admit Sahand today for surgery tomorrow! It was a day of ups and downs for him; he was endlessly patient during the waiting, but for the echo, the x-ray, and then eventually the blood tests, he was extremely distraught. But his father was calm and soothing for his son throughout it all. Sahand’s dad is extremely kind and very genuine in his graciousness, at one point he even got up from his seat in the waiting area to help a mother who was struggling to walk with her son in a wheel chair and the IV stand attached to him down the hallway. This man is truly a rock for his family, a joy to get to know, and a steadfast father to his son. We know that Sahand is and will continue to be blessed by his father’s presence and we pray that our Heavenly Father will be a Good Shepard to both Sahand and his dad as he goes into surgery tomorrow.
Finally today Sahand had his second (but first successful) echo, which had to be done under sedation. His father had a great idea because Sahand needed to fast from 5:00am till 11:00am so the father gave him an empty bottle of milk to keep Sahand calm.
The echo was performed successfully, but the recovery was not easy for Sahand. We had to wait for a long time until his saturation went back to his normal rate. The medical staff were so kind with Sahand.
Now we have to wait for the echo reading then the cardiologist team will meet to decide the next step. Please pray for Sahand’s father – the journey has just started.
We went today to the hospital with Sahand and his dad to have his first assessment. On our way to the hospital Dad was very anxious and told me that they have been waiting for this day for a year and a half! He couldn’t believe they were here! We had to wait while the doctor finished a cath so in the meantime they called home and talked to Mom and sister. He was smiling and answering back all of Mom’s loving words!
Sahand cried a lot during the echo and made it very difficult for the doctor to have clear images – we tried many things with the father. The doctor also was very patient and tried three different times with half an hour in between. Dad even put Sahand to sleep in his legs as a Kurdish mom will do to her baby – it was lovely to see this loving father trying his best to help his boy! He was sad when the doctor said that he needed better pictures of the Left Pulmonary Artery and that he was asking for an echo under sedation to have all the information that the operating team needs to make the best decision for the surgery. So we thank God together with Dad for this time and leave everything in God’s hands. Please join us in prayer for this little one, for a fast appointment for the echo and for strength and peace in his father’s heart.