Things have not been easy for our brave Musa. After he had his ECG and his X-ray, Musa had been admitted again for his cath. The dad was still quite upset that it didn’t work out last time. And he has a big impact on his son.
Musa was sad from the moment we got into the car this morning, not talking, serious mien, leaning his head against the window. When he finally got into his room at the hospital, I wanted to organize some blankets for him and had to leave. When I came back he was crying. He misses his mum a lot and is scared of the blood test and the hospital in general. Besides he is quite sensitive.
Please pray for Musa that he will have peace before, during and after his cath tomorrow. And please pray especially for the father. He needs patience and understanding.
Musa’s father joined the large group of Kurdish families in the hospital waiting area today, as Musa had been taken into his catheterisation. The idea is to close some blood vessels which are supplying an AVM in his lung, which is taking the blood supply away from the heart. This is why his oxygen levels are fairly low. Musa has had this procedure before, just a few weeks ago, which was successful, but the doctors needed to do some more work to continue his improvement.
Sadly, today there was not a bed available in the ICU for Musa to go into after the cath, so it was not possible for the procedure to go ahead today. It was disappointing for Musa and his father, and he was brought out of the surgery area and into the ward.
Musa was very good-natured about it, and just said that he wanted to go home immediately. So, the hospital staff worked quickly to write a discharge report, take out his cannula and prepare him to come home with the other families who had had outpatient appointments today. We need to wait until next week now to speak to the cardiac department to reschedule the procedure.
Musa has such lovely relationships with all of the other families here. He spent some time relaying the news to Darbaz on the phone, who was a nice friend during his early days here in Israel. So, everyone is happy for his company back at home, if not a little disappointed for him that the cath wasn’t possible for him today.
Praise God for His timing! Hopefully we will update soon about the rescheduled catheterisation.
The irrepressible Musa was admitted into Sheba hospital today for his second cath. His pre-admission workup was good and they were pleased with his echo but it was a very hard long day for Musa and his father. We went in early because of other appointments and after the workup was completed Musa was obliged to wait until a bed on the ward became available. This did not suit the always energetic and easily bored Musa who suggested we return to Shevet for a delicious Kurdish lunch. Unfortunately this was not possible but we were able to have a nice time with the other children and Musa as always was a fun big brother to hang out with.
Please pray that this second cath is successful and that the abnormal vessels in the lungs are eradicated fully and that another procedure is not required. Pray also for Musa’s father who has such a quiet strength and dignity but who is tired from living in a strange land away from his family.
Musa is our funny and charming big brother at Shevet for the other kids. But in the hospital he turns out to be quite restless as he wants to leave immediately after every appointment he has. But this is not always the case since he goes to the hospital with other kids from Shevet and has to wait. Today he was with Wareen in the hospital. He first went to the echo which turned out to be good! Still he needs another’s cath which was disappointing for him and his dad, we talked to the doctor but until now we don’t have an appointment for the next cath.
Today day at the hospital was very busy, after his echo he had a ECG and they took his vital signs. When we finished to talk to his cardiologist we went to his second appointment with his endocrinologist, praise the Lord all of the test that were done before he was discharged came out with good results, everything shows that he doesn’t have any endocrine problem. So this was good news for Dad and Musa.
Finally after a long day we could go home. Please pray for peace in Dad’s and Musa’s heart and good time with us in the waiting and also for open the schedule and correct time for his second cath.
Written by: Rahel and Diana
Discharged After a Long Day
I saw Musa at 8.30am this morning, in his hospital pajamas being led to the lift to go downstairs for an x-ray and ultrasound. He was looking like he was in some pain after the cath yesterday. He immediately asked if we are going home.. He really doesn’t like the hospital..! We waited a long time, but after the x-ray and the ultrasound were done, we went back upstairs to the ICU, and received the news that yes, he could go home.
However, we still needed to wait for Musa to see an endocrinologist, have another x-ray and have some blood tests done. This took a very long time, and it was difficult for Musa to wait, as he was so anxious to get home!
The good news is that he is now back home here at Shevet with his father. But, his time at the hospital is not yet over, as he will need to go back next week to see the cardiologist and also to have a CT scan of his head. This is because there were really a lot of work AVMs in the lung which was causing the original symptoms, so the medical team decided it is necessary to check that these are not also in the brain.
Please pray that Musa will know the peace of God as he thinks about the next appointments.
Today, Musa had his catheterization, and praise God it was successful! His father was very calm and steady as we waited for Musa’s cath to finish. When they brought him to his room from the cath lab, his dad was eager to see him regain consciousness. There were four blood vessels the doctor wanted to close to stop from contributing to the mass on his lung, so the operation did what it was supposed to do, but in the cath they saw there were other blood vessels contributing to this mass as well, so they aren’t sure of he will need another cath or maybe a surgery. But first they want to see how he does without oxygen, and moniter him. Please pray for reassurance for Musa and his father, that they will be at peace and rest after this long day. And please also pray for the doctors who work themselves to exhaustion for our kids. May they be rested and restored by God’s grace. And lastly, please pray for Musa’s family back in Kurdistan. Tara, a new volunteer who speaks Kurdish conversed with Musa’s dad as we waited, and he explained that sweet Musa misses his mother, and that Musa has four sisters, who all miss their father and brother. I am always struck by the fathers’, like Musa’s dad, who are so gentle and kind and patient, and selflessly devoted to their family. And if that is only a reflection of God’s character, who is the ultimate Father, then all of our prayers and petition we can trust are heard by Him and find their place in Him.
Brave Musa had a long day, which he wasn’t looking forward to at all. He needed to be admitted today for a catheterisation tomorrow, but because his problem is complex, he also needed to be seen at the pulmonary clinic.
I waited with him and his father for a few hours today to carry out some lung functions tests and to be seen by the pulmonary doctor. I very much enjoy going to different departments with the families, and today was no different; it’s because I always feel so honoured to be able to explain to new people that these lovely families have come here from Kurdistan for their interventions, and then I feel so blessed that I have the privilege of knowing all these Kurdish families now. Musa and his father show so many of the beautiful characteristics of the Kurdish people which I have observed; Musa is brave in the face of what he fears. He is confident, fun and polite to meet all the hospital staff, and tests out bits of English. And his father is a calm and steady rock, and I can see how deeply committed he is to Musa’s well being.
So praise God for this family, made in His image and reflecting His glory!
So Musa is now in the hospital, waiting for a complex catheterisation tomorrow. The cause of his breathlessness, and cyanosis is due to there being a mass in one of his lungs. And in Israel, the medical team in the cath lab here will be able to fix this issue from inside the blood vessels tomorrow, God willing.. I was astounded to hear the doctor explain that this morning, the team had a meeting to review his CT scan from the previous day; they have measured each of his relevant blood vessels and are able to use a specifically sized coil to be able to block off the blood supply to this mass in the lung, which then should cause the blood flow to be functioning properly.
Praise God for the wisdom and skill of the doctors here in Israel! And praise Him for working in Musa’s life to bring him here. Praise Him for giving wisdom to the Kurdish doctors, who had the humility and hope of sending him here, instead of attempting a risky surgery in Kurdistan.
Please keep Musa in your prayers, he is a special young man, and God has been working to being him here and breathe his life into him.
“For this reason I bow my knees to the Father of our Lord Jesus Christ, from whom the whole family in heaven and earth is named, that He would grant you, according to the riches of His glory, to be strengthened with might through His Spirit in the inner man, that Christ may dwell in your hearts through faith; that you, being rooted and grounded in love, may be able to comprehend with all the saints what is the width and length and depth and height— to know the love of Christ which passes knowledge; that you may be filled with all the fullness of God. Now to Him who is able to do exceedingly abundantly above all that we ask or think, according to the power that works in us, to Him be glory in the church by Christ Jesus to all generations, forever and ever. Amen.” Ephesians 3:14-21