Seeing Mir walking around at the airport was just so lovely. He is such a cute little boy even though he is very moody. His facial expression changes so often and so quickly from really upset to really happy and the other way around.
On our way to the airport Mir’s dad told us that he knows his son would have died if Shevet Achim wouldn’t have been there. He thanked God for our community and said that he is going to miss all of us a lot.
I realized that I always loved to spent time with him and Mir. One of my best hospital experiences so far was probably when Mir looked into my eyes and fell asleep because I sang him a song after he had cried and been very upset for around twenty minutes because we bathed him.
“The name of the Lord is
A strong tower
The righteous run into it
And they are saved
Blessed be the name of the Lord”
For me it wasn’t really a farewell as I knew that Mir and his dad would have to come back in around four months in order to have Mir’s second big surgery. I told him that I would wait for him.
God I praise you, for what you have already done in Mir’s life. Thank you, that there is no heart that is too complicated for you! Please protect Mir during his time back in Kurdistan.
It is a happy day for Mir, as his dad has made a big decision to return home to Kurdistan and wait there for the next surgery. The doctor today checked his heart ahead of agreeing to this plan, and thank God that there is no fluid around his heart, so he can be sure that the return to Kurdistan is really very safe.
Mir’s father expressed how bringing Mir to Israel had been such a hard decision to make, but he is so pleased that the outcome has been good. The doctor agreed that there also had been much discussion here as to whether he would be suitable for a surgery, or if intervention had been left too long. But, she is also so pleased that Mir has done well with the surgery, and that it looks good for his future.
Mir is able to walk now on his own, and so this will be really special to return to his mother for the next few months. Thank God that Mir’s family can have peace about the decision to return home, and also to have the knowledge that Mir is safe in the hands of God.
Written by: Julio and Georgia
Thankful for Good Results
I got to spend the day with Mir and his dad. Both are very special. They are lovely and I enjoyed their calm and quiet nature except for some times when Mir starts screaming out of nothing. We got to the hospital with a relaxed Mir but as soon as the examinations began he started crying. His dad did a great job comforting him and cheering him up. He loves his son very much and couldn’t wait for the results of the echo and the ECG and the decision of the doctors. We are happy about a lot less liquid around his heart. In two weeks we’ll have another echo to follow up.
We are so thankful about the results. Please pray for Dad as he has a long time of waiting ahead since the next cath will be in only two or three months.
We had the opportunity to take Mir and his young father to his first echo after surgery. Mir was so happy driving our vehicle while I was fixing his car seat. I thank the Lord for Mir’s life. His case has been very complicated.
We had a very busy day at the hospital with lots of children, but that gave us the opportunity to pray for each and every one of them. First, Mir had an ECG test, and the technician sat Mir in a new car toy while performing the test. I think the dad was happier than Mir.
Dad had lots of questions that the doctor happily answered. Mir’s oxygen reduced yesterday but the doctor said that it was still within safe limits, so not to worry. Mir has a little water around his heart so she prescribed a new medicine for him.
Mir will need a new cath and another surgery but the doctor suggested waiting 2 or 3 month’s time, so his heart and body can grow. But this is too much time to wait for the father. So the cardiologist is going to ask her team if it would be possible to do it earlier. She mentioned also that he can go home (to Kurdistan) and be back in 6 months or so for the second surgery. However the father said that would also be difficult because his wife is expecting a new baby in 3 months.
It was very encouraging for the father when the doctor said that the new baby won’t necessarily be born with the same illness. Just trust the Lord that he or she will be fine.
Now we have to wait for a new echo in a week’s time to see if the liquid reduces and we need to pray that the second surgery will be done sooner that 2 months. Thank you for your prayers for both of them.
Praise God, on Thursday we were able to pick up Mir and his father from the hospital after he had been discharged!
When he had his last few checkups in the hospital they were not yet able really to decide whether he was ready to go or not. So it was even more pleasing to hear a few hours later that everything was fine.
When we arrived, it was a beautiful picture seeing them waiting for us outside the hospital already, having discharge papers ready and everything went so smoothly and easily, I would wish it was like this for every family.
Also very interesting, on the way back Mir’s father shared a bit of his life and also explained some historical background on the Kurdish parts of Iraq, Iran and Turkey, and all the political trouble around these areas, that lead to great suffering of the main population. We really came to the conclusion that all we can do is just cry out to God to change people’s hearts, for this is the only hope we have: that through Jesus hate can be turned into love.
As God promises to the people of Israel:
“I will give you a new heart and put a new spirit within you; I will remove your heart of stone and give you a heart of flesh.” Ezekiel 36:26
This can really be our prayer for so many leaders in this world and those who are in charge of making decisions, but also for the main population who in some parts of this world are from childhood on taught to hate anyone who would be different. God is our only hope in this.
Mir's Intricate and Complicated Heart
I sat today with Mir’s father and tried to explain to him the intricate and impossible anatomy of his son’s heart. It has been a challenging time in Israel for Mir and his father, first with the agonising wait as to whether surgery was even possible, then the news that two surgeries would be required with an extended time in between and now as new understanding arises we learn exactly how Mir’s impossible and miraculous heart can even function. In a normal heart there are four chambers which pump the blood around the body; Mir only has three. What this means is that Mir is constantly oxygen deprived, with newly oxygenated blood mixing with the old and the heart valiantly trying to keep up with his growing needs.
Mir has made it to Israel only through the tenacity of his father, the grace of God and his older cousin who begged for Mir to receive surgery despite the rest of the family hesitant or even hostile to the idea of his traveling to Israel. As a child Mir’s cousin received a similar diagnosis of heart disease. Unlike with Mir, no help was available and by the time the issue was recognised it was too late and resulted in irreparable damage to the cardiac muscle. Now in his twenties, Mir’s cousin is in chronic heart failure and recognising he will not be long in this world, he did not wish to see Mir suffer the same slow, agonising journey. His pleading led Mir and his father to Shevet and the possibility of a hope and a future.
Please pray for Mir and his entire family that the love they are shown here is Israel will bring about a change in their lives that only God could foresee.
Rays of Sunshine for Mir’s Surgery
The moment we met Mir and his father you couldn’t help but notice that both of them were very tired. Mir’s father told us that Mir cried a lot during the night and that they had to get up way too early. Still the first miracle of the day was on it’s way. Mir’s surgery was the very next appointment so they didn’t have to wait too long.
Mir’s father seemed very tense and scared while Mir got ready for his surgery. But as God’s provision of every needed thing took place, the brother of another child came to accompany Mir’s dad through this hard time. Even though Mir’s dad carried his sorrows without losing his smile, you could see the relief in his face as the doctor informed him that the surgery was nearly done and everything went well. Still it’s a miracle that little Mir was able to live this long with his heart disease.
After the successful surgery we had to wait for Mir to leave the OR. During that time other parents came by and created a joyful and encouraging atmosphere. The room was filled with laughter and happy conversations.
Mir was already extubated and is now in the ICU. Please pray for his fast recovery and for strength for Mir’s dad.
With an IV in his hand and a pulse oximeter sensor on his foot, Mir still managed to play this morning, following his cardiac catheterization yesterday.
And the BEST NEWS for this cute little guy: He IS a candidate for surgery!
Mir’s lung pressure is high, but the cath showed that he can move ahead to have the first (of two expected) surgeries. This surgery will bring more oxygenated blood to Mir’s body, and help to keep the lung pressures from going higher. Praise the Lord! Pray for Mir and his family, for patience and peace as thy wait for a scheduled surgery date.
Sweet Mir had a disappointing discharge today; he came home instead of having his catheterization. Dad was dejected, but so patient and accommodating. Mir’s dad is eager to see his son have the procedures because he works in an important department in the Peshmerga (Kurdish military). There have been many urgent children coming to Sheba, so it happens that stable children, such as Mir, can afford to wait a little longer. Both Mir and his dad are so kind, please pray for them as they wait, for understanding from his dad’s work and that Mir would become more comfortable at Shevet.
A Strong and Loving Father
It was a short drive from the Shevet home to Sheba Medical Center where Mir would undergo his second assessment for his first procedure tomorrow. As Mir’s father entered the van, he muttered under his breath, “ahumdulalla” (which means praise God in Arabic). We discussed his situation and he said, “inshalla” (which means God willing) that his son will be well again. A few minutes later, Mir wailed and his father soothed him. He attended patiently to him and played with him til he smiled again.
At the hospital, Mir really enjoyed the play area whilst waiting for his appointment.
After an hour, the nurses called for Mir. They checked his heart rate, pressure, oxygen level and weight for his procedure tomorrow. The doctor explained Mir’s heart condition and explained the catheterisation procedure tomorrow. It is going to check the pressure in his lungs to see what operation he can have. A complete repair of his heart doesn’t seem to be an option, but they can do other things to give him a life with less symptoms.
After the appointment, Father changed Mir’s diapers and gave him some biscuits to eat.
Mir’s father comforts and assures Mir that everything will be okay.
He shared that Mir is his first and only son. He works in the military in Iraq and has taken time off to care for his son. He has to return to work soon because there is no one that is able to replace him. It made me think about how God is our Father, he is the King of all Kings, but yet he came down to earth and washed the feet of the disciples. In the same way, Mir’s father is a strong man in the military yet sensitively loves his only son.
Mir is a 14 month-old boy from southern Kurdistan. His name means “Prince” in Kurdish. He had his first echo assessment today. At the beginning he was not very happy – even the echo technician was playing songs to him on the phone.
The doctor explained that he has a really complicated heart. He has a lot of flow going to his lungs so they need to know if there is pulmonary hypertension or not. First they will need to perform a cath, after that they will decide what is the next step. The doctor also asked for an x-ray to see if there is any congestion in his chest. It was fast so he did not cry a lot.
After the cath the medical team will have a long discussion and decide what is the best kind of operation for him. After the echo, Mir was so happy at the playground driving the train.
Let us pray for his father as he is a little bit concerned about whether Mir gets sick before his big operation.