Mir's Intricate and Complicated Heart
I sat today with Mir’s father and tried to explain to him the intricate and impossible anatomy of his son’s heart. It has been a challenging time in Israel for Mir and his father, first with the agonising wait as to whether surgery was even possible, then the news that two surgeries would be required with an extended time in between and now as new understanding arises we learn exactly how Mir’s impossible and miraculous heart can even function. In a normal heart there are four chambers which pump the blood around the body; Mir only has three. What this means is that Mir is constantly oxygen deprived, with newly oxygenated blood mixing with the old and the heart valiantly trying to keep up with his growing needs.
Mir has made it to Israel only through the tenacity of his father, the grace of God and his older cousin who begged for Mir to receive surgery despite the rest of the family hesitant or even hostile to the idea of his traveling to Israel. As a child Mir’s cousin received a similar diagnosis of heart disease. Unlike with Mir, no help was available and by the time the issue was recognised it was too late and resulted in irreparable damage to the cardiac muscle. Now in his twenties, Mir’s cousin is in chronic heart failure and recognising he will not be long in this world, he did not wish to see Mir suffer the same slow, agonising journey. His pleading led Mir and his father to Shevet and the possibility of a hope and a future.
Please pray for Mir and his entire family that the love they are shown here is Israel will bring about a change in their lives that only God could foresee.
Rays of Sunshine for Mir’s Surgery
The moment we met Mir and his father you couldn’t help but notice that both of them were very tired. Mir’s father told us that Mir cried a lot during the night and that they had to get up way too early. Still the first miracle of the day was on it’s way. Mir’s surgery was the very next appointment so they didn’t have to wait too long.
Mir’s father seemed very tense and scared while Mir got ready for his surgery. But as God’s provision of every needed thing took place, the brother of another child came to accompany Mir’s dad through this hard time. Even though Mir’s dad carried his sorrows without losing his smile, you could see the relief in his face as the doctor informed him that the surgery was nearly done and everything went well. Still it’s a miracle that little Mir was able to live this long with his heart disease.
After the successful surgery we had to wait for Mir to leave the OR. During that time other parents came by and created a joyful and encouraging atmosphere. The room was filled with laughter and happy conversations.
Mir was already extubated and is now in the ICU. Please pray for his fast recovery and for strength for Mir’s dad.
With an IV in his hand and a pulse oximeter sensor on his foot, Mir still managed to play this morning, following his cardiac catheterization yesterday.
And the BEST NEWS for this cute little guy: He IS a candidate for surgery!
Mir’s lung pressure is high, but the cath showed that he can move ahead to have the first (of two expected) surgeries. This surgery will bring more oxygenated blood to Mir’s body, and help to keep the lung pressures from going higher. Praise the Lord! Pray for Mir and his family, for patience and peace as thy wait for a scheduled surgery date.
Sweet Mir had a disappointing discharge today; he came home instead of having his catheterization. Dad was dejected, but so patient and accommodating. Mir’s dad is eager to see his son have the procedures because he works in an important department in the Peshmerga (Kurdish military). There have been many urgent children coming to Sheba, so it happens that stable children, such as Mir, can afford to wait a little longer. Both Mir and his dad are so kind, please pray for them as they wait, for understanding from his dad’s work and that Mir would become more comfortable at Shevet.
A Strong and Loving Father
It was a short drive from the Shevet home to Sheba Medical Center where Mir would undergo his second assessment for his first procedure tomorrow. As Mir’s father entered the van, he muttered under his breath, “ahumdulalla” (which means praise God in Arabic). We discussed his situation and he said, “inshalla” (which means God willing) that his son will be well again. A few minutes later, Mir wailed and his father soothed him. He attended patiently to him and played with him til he smiled again.
At the hospital, Mir really enjoyed the play area whilst waiting for his appointment.
After an hour, the nurses called for Mir. They checked his heart rate, pressure, oxygen level and weight for his procedure tomorrow. The doctor explained Mir’s heart condition and explained the catheterisation procedure tomorrow. It is going to check the pressure in his lungs to see what operation he can have. A complete repair of his heart doesn’t seem to be an option, but they can do other things to give him a life with less symptoms.
After the appointment, Father changed Mir’s diapers and gave him some biscuits to eat.
Mir’s father comforts and assures Mir that everything will be okay.
He shared that Mir is his first and only son. He works in the military in Iraq and has taken time off to care for his son. He has to return to work soon because there is no one that is able to replace him. It made me think about how God is our Father, he is the King of all Kings, but yet he came down to earth and washed the feet of the disciples. In the same way, Mir’s father is a strong man in the military yet sensitively loves his only son.
Mir is a 14 month-old boy from southern Kurdistan. His name means “Prince” in Kurdish. He had his first echo assessment today. At the beginning he was not very happy – even the echo technician was playing songs to him on the phone.
The doctor explained that he has a really complicated heart. He has a lot of flow going to his lungs so they need to know if there is pulmonary hypertension or not. First they will need to perform a cath, after that they will decide what is the next step. The doctor also asked for an x-ray to see if there is any congestion in his chest. It was fast so he did not cry a lot.
After the cath the medical team will have a long discussion and decide what is the best kind of operation for him. After the echo, Mir was so happy at the playground driving the train.
Let us pray for his father as he is a little bit concerned about whether Mir gets sick before his big operation.