Within seconds of entering the room, Rafif had stolen a place in my heart. Watching this little baby from the bedside, I was struck by how beautiful she was. In some ways it’s hard to take in, watching this precious little girl surrounded by tubes and monitors.
Outside, the doctor explained she has been reintubated because of her infection. My heart dropped a little at this – we were hoping for better news.
“For you created my inmost being;
You knit me together in my mother’s womb.
I praise you because I am fearfully and wonderfully made”
It’s a times like this I need to be reminded of God’s immense power and unending love. He is there in every breath Rafif takes, she is fearfully and wonderfully made in his image, and he loves her deeply.
Please pray for Rafif and her family. Pray that the infection will not spread any further, pray that her condition will improve quickly and pray that the peace of God would surround her.
Today when we entered Rafif’s room his grandmother was fixing the mobile she had hung over the bed as Rafif was looking around and being very alert. The grandmother was looking excited and we found out that the nurses were planning on extubating Rafif as she had improved over the weekend.
This is such an answer to prayer as we had received different information from different staff members, some optimistic, some sad. We spent some time with Rafif and her grandmother and I introduced our new volunteer Joela to the amazing nursing and medical care that they provide at the Sheba paediatric cardiac ICU.
When I returned in the afternoon I found a different looking Rafif. Her face was no longer covered in tape to protect her from the tubing and for the first time I could properly see her beautiful face. A face that yes is jaundice but so peaceful compared to the last time I saw her.
We pray this improvement will continue and that Rafif and her grandmother will return home soon.
Today in our morning meeting, we had a special time praying for our babies – of course one of them was our beautiful Rafif. When I went to the hospital I had the expectation of hearing more good news about Rafif but I didn’t find it like this. I saw her grandma in the waiting room looking so tired and sad. She told us that Rafif was not good, and we went together to her room. The doctor came and told us that she was glad that we were there to visit Rafif, and that grandma needs us because they are in a difficult moment. Rafif crashed this morning. They reintubated her and put in drains. The doctor was close to grandma, and gave words to encourage her and both started to cry. This was a beautiful picture.
Rafif is not doing well. She has been in the hospital a long time with a complicated diagnosis. But we know that nothing – absolutely nothing – is impossible for our God.
Today I really felt so so bad with Grandma because I couldn’t speak her language. I only gave my hugs and my prayers, but I know that only God can grant peace in the middle of the storm. Please pray for this little baby and for her grandma; they need our prayers.
God has been gracious today; fortunately we have good news about Rafif! Even though her face looks somewhat yellow-ish, the nurse told us that she is improving and the fluid in her lungs has decreased. God willing, the drainage will be taken out tomorrow.
For now, Rafif is still in the ICU, as she continues to have fluid in her abdomen and her liver is not functioning sufficiently, hence the yellow skin.
Let us thank God for this improvement and keep praying for Rafif and her family, especially her grandma, who is getting increasingly tired. May God bring healing to Rafif’s heart and be glorified in her life so that the whole family may see His mighty hand.
I visited Rafif in the ICU today. She has been here a long time now, over a month. Her grandma has been with her the whole time, and now she is really feeling tired. There has been no change in Rafif’s situation for quite a long time now, just each day we hear that she is still intubated in the ICU.
Today we were told that there is fluid in Rafif’s chest, and that she was having chest drains placed. We were also told that Rafif has had a bleed in her brain, which is very sad news. Please pray that God will heal Rafif.
Stable but Needing Prayer
It was my first time to see Rafif and she really touched my heart. Although she is going through a lot her doctor told me that she is stable at the moment. I was glad to hear this news since her condition went up and down the last days. Watching this little baby I knew the Lord is caring for her. He loves her more than anybody, watches her day and night and has her life in His hands. He is the Almighty One who made heaven and earth, the little sparrows in the field and He cares for them everyday! How much more does He care for every need Rafif has!
Thank you for every prayer you speak! We can’t impact the whole world but we can work and live for Jesus where ever He places us.
We know Rafif needs every prayer she can get – so let’s pray for her with a thankful and trusting heart because we know – our God is control!
Little newborn Rafif remains very ill in the ICU at Sheba after her initial pacemaker placement, followed by a palliative but emergent heart surgery just a few days later. As you see, she is on the ventilator and requiring much support, including medications for sedation and blood pressure.
Rafif’s hospital course has been a variable one, marked by periods of stability and progress, interspersed with deterioration and the need for resuscitation and increased support. One of the PICU Nurse Supervisors told us yesterday that they suspect that Rafif may have as-yet unidentified underlying genetic or metabolic abnormalities complicating her situation.
Rafif’s grandma remains at the hospital, hopeful for improvement and thankful for all that is being done. She is open and appreciative of visits. It is obvious that sh loves this baby. May our Father cradle Rafif and her family in his loving arms.
Little Rafif is 10 days old, and arrived to the hospital here in an ambulance. She came from Gaza with her grandma. As I went into the ICU to look for them, I passed an incubator and felt pleased to know that this little life has reached the hands of the medical team here in Israel.
There was a lot of work going on to welcome Rafif by a fairly large team of people; they placed a cannula, did an x-ray and echo, as her grandma sat watching, seeming a little detached from the process. It must have been a really difficult week and a half for this family. She told me she was tired, and Rafif’s mother is tired, and Rafif is tired…
Later in the day, Diana and I were able to see Rafif after the medical team were finished working on her; and we prayed a lot. Rafif is so small, and she startled so easily at every sound, her body was tense and shaking and she cried often; really she seemed very distressed.
The nurse explained that Rafif has a complete AV block, and so we are seeing her heart rate at around 60bpm, which is so slow. Her oxygen saturation were also low, at around 85%. So she is not in a good condition. She is going to have a CT scan tomorrow and then maybe straight into surgery; they can use the CT scan to decide how urgently she needs to be operated on; she’s going to need a pacemaker.
Please pray for little Rafif, and her family. Please also ask for a blessing over the ICU staff as they help sustain her life as we move into the evening here.