Beautiful Dima had a consultation for the next steps to address her hearing problems. She came with two other families who were having echos, so we all waited together on the cardiac floor; it was so great because I got to spend time with just Dima today, which I hadn’t before. She was so adventurous (and maybe a little bit of a rebel) as she climbed all over the train play area of the waiting room. At one point she was sitting in her stroller and managed to wiggle down from the seat to the ground to get out of it, so she could go back to playing! After two hours of waiting Dima, her mum, and I set out for the E.N.T building. It was a really good time for the appointment because it wasn’t too busy, so we didn’t have to wait too long.
When the doctor called us in, he went straight to the point: she needs a set of very high quality hearing aids. In her left ear they will be able to help, but in her right side, they won’t be of much assistance because there is severe hearing impairment on that side. He went on to stress the importance of rehabilitation. He likened the hearing aids to a car: you don’t buy a car and then never bring it into the garage for maintenance, right? The same goes for the hearing aids. It’s not a quick fix solution and she will need to be continually trained in a center that will help her learn. Medically, this is a straightforward case. What complicates it is the outside factors: Dima’s mum wants to have everything done in Israel, but there is an organisation that works in Kurdistan that would be able to help. And since the follow up rehab will be a continuous process there may be wisdom having everything in Kurdistan. One of the doctors drafted a letter explaining everything about Dima’s case, so that if we go to Kurdistan for the hearing aids and rehab, then any basic ear doctor will be able to see what she needs and help her. Please pray that the Lord will lead and guide all the decisions being made. And may He bring peace to Dima’s mum, who is quite sad because she doesn’t trust anything medical in Kurdistan.
It has been a long journey for Dima. She has been sick most of her short life. First, her heart condition was healed here in Israel at Wolfson hospital 3 years ago, then the gastronomy closure, now it’s treatment for the loss of hearing.
Please pray for the mother first of all. She is very tired and sometimes feels hopeless. I told her that the Lord can still do miracles and can do one in Dima’s life. We need to wait for the final report tomorrow but the technician and speech therapist told us that both ears are, in fact, damaged. The right one is profound 85+ decibels of hearing lost. The left one is slightly better at 50-70 decibels of hearing lost. The technician suggested that both ears need to have hearing devices, but the right side will also need to have a cochlear implant.
The nurse and the anesthesiologist here are very kind to Dima and her mother. We pray that the Lord will give peace to Dima’s mother during this time.
Dima had an appointment with the doctor today to remove her stitches.
Her mother told us in the morning that Dima had a long and difficult night. Our nurse took Dima’s temperature and it showed a temperature of 37.8* C. At the hospital, we told the doctor about her condition but the doctor thought it had nothing to do with the surgery. The stitches were removed and everything else seemed fine.
After a while at the hospital, her mother felt that things were getting worse and worse. So we decided to take her to the Emergency Room.
We were in the ER for a few hours and after the doctor examined her they saw that Dima had inflammation in her ears and in one of her lungs. They prescribed her antibiotics for ten days. Dima is a very cute girl who cares about everyone around her and always keeping her eyes on Mom. She really spreads love and joy when you are around her.
It felt weird to see her down and sad but we hope they she gets better every day. She needs our prayers.
Dima had her surgery today to repair a stoma from her PEG tube which was not healing. Dima was very distressed by having to fast before her surgery and her mother did an amazing job comforting and distracting her while we waited. Praise God her surgery went well and the doctors were pleased with how it went. She is now back to fasting until tomorrow when they will try to introduce fluids and hopefully her nasogastric tube can come out by Sunday.
It’s so beautiful to see the result of a successful heart surgery: Dima is a cute bright girl, that loves to explore and has lots of energy. Today the little one was admitted to the hospital for her surgery tomorrow.
After her heart surgery two years ago she hadn’t been able to eat which is why she got a gastrostomy tube. A few weeks ago she finally started to eat herself so the tube was removed but the hole didn’t close itself. For this reason she needs surgical repair.
We had to talk to three different doctors. Even tough we had to wait for very long periods, we enjoyed one another and were laughing a lot. Dima’s mum was so kind and attentive. Please pray for Dima’s surgery tomorrow that everything will work out.
This is the second time for Dima here in Israel. The first time was to heal her heart and now she is is going to have a gastronomy closure surgery. Today is a pre-surgery echo, just to ensure her heart is fine.
We had to wait for a long time for the echo and for the doctor to read it and write a report. She was crying while the technician performed the echo, but during our long wait, a group of teenagers showed up with a small, electric car and she was so happy driving it.
Finally the doctor said that she can be operated. Thank you, Lord!