When co-workers Grant, Kathy, and I arrived at the fourth floor of Sheba Medical Ctr., Rahaf’s father was waiting in the ICU. We had brought some Arabic coffee with us to bless him; I entered the secondary ICU kitchen to get some hot water.
I saw Arkan, awake and talking with his mum! I got to meet this lovely woman for the first time over the phone! She spoke great English, and as we briefly chatted about his cath today, she said to me words that I often heard her husband say: “All we can do is pray.”
After this Arkan and his dad came out to the waiting area with us and Rahaf’s father. Honestly, there was no apprehension in Arkan’s demeanor.
We joked around and played silly games, like trying to speed walk on a single line on the floor, and took funny pictures, including one where he is pretending to receive hand sanitizer from Dr. Uri whose photograph is on the elevator.
Georgia came to join us shortly before he was called in, and when they did call him for the cath, and he went behind the sliding doors to the O.R. we stood at the opaque door looking in, and he came down and made funny faces at us through the door.
I’ve never had a brother, but I consider Arkan to be like a little brother, which made the wait, even just for a diagnostic cath, quite hard. His cath today was to see whether the intervention would be a catheterization or a surgery, and the results were more complex than initially thought. Basically the calcification on the conduit in his heart is alot and because of this there is more risk to the therapeutic cath they hoped to do for him.
Nothing is finalized yet, the doctors will meet to discuss what the treatment should be. Please pray for wisdom in this. His father was subdued with the news, but still remains an steady anchor for his son. This family is deeply loved. Please join with us in bringing them to God in prayer. He promises to incline his ear and hear our petitions.
After Arkan’s last Cath had to be rescheduled, we were very happy to take him to the hospital for a second try today. Arkan was smiling with excitement for finally having his Catheterization. On the way to the car he just smiled immensely. Still the Shevet Family didn’t let their beloved Arkan go without a proper goodbye. Everyone gathered around the car and prayed for Arkan’s and Rahaf’s admission. The love that was shown through this touched Arkan’s heart.
As we arrived at the hospital Georgia and I thought that admitting both Rahaf and Arkan might take a few hours. But the spoken blessings from the Shevet Family took place right away.
Arkan who has been to the hospital quite a few times now started his admission on his own.
With his incredibly fast improving English, Arkan told Tali that he was here to do his Cath. Arkan took the rest of the admission process as excellent as at the beginning. Going to the Radiology, doing an X-Ray and going back to his room was handled by Arkan with a steady smile and professionalism. His admission was because of God’s blessing, quick and easy. Please pray that the upcoming Cath will be blessed as well and will be done tomorrow.
My heart is so full after today; Georgia, Julio, and I went to the hospital for Arkan’s admission!
He will be having a diagnostic cath tomorrow to plan for either a therapeutic cath, which the doctor is optimistic he will be able to have, or a surgery. Some days are long draining days of waiting, but even though we waited a few hours for a room for him, it was a wonderful time in the process.
He had his echo, met with the doctor, and had his x-ray finished all within a half hour! After that we went to go get ice cream and played different games to kill the time, we often took funny selfies and made jokes, Arkan and I even had a short race to see who was faster (the results were that he was four seconds faster than I was).
We then went back into the hospital and Georgia and I went to visit the other children in the ICU. Then we went to check if his bed was ready, and even though it was still a little early, that did have his room prepared! The nurse came in to ask some questions, and then it was time for us to go, and white honestly Julio, Georgia, and I all expressed that it was hard to leave Arkan and his dad! Today was so special, getting to spend quality time with them is a gift, and Arkan is a like a little brother to us.
Please pray that a therapeutic cath would be possible and for God’s peace to be with Arkan during this time. When the doctor spoke with us after the echo, his father said, “All we can do is pray,”
……….and he is right, so please join in praying for safety, hope and peace for wonderful Arkan.
It was a surprise to hear that lovely Arkan was having chest pains yesterday evening. He gets pain each day for 2 or 3 seconds, but last night it was different. The pain lasted for much much longer, and so we decided it was better to take him to the emergency room for an assessment. An hour after the chest pain stated, we arrived at the ER, and the pain was continuing. Although Arkan bravely dealt with it, it was clear that he was in pain, as his personality changed, he was very quiet and not interactive at all; a completely different character than the fun and kind young man who we love spending time with at home. So this was quite sad to see, and I was very pleased that despite the business of the ER, Arkan was seen quickly by the medical team there.
Arkan, calmly supported by his father, had various assessments, including a blood test (the least fun) and a chest xray (the most fun, as we all had a ride there and back in a hospital transport van).
On the way back from the xray, Arkan felt that that pain was decreasing slightly, and certainly I was pleased to be able to observe his mood improving. As we waited for the doctor after this, we sat together happily eating our way through a packet of sunflower seeds.
The doctor soon came, and he explained that all the tests have come back normal, and that they will be able to assess further and address the situation properly at his catheterisation, which will be later this week. So Arkan was discharged to come home!
Thank God that He is looking after Arkan, who is special and dear to all of us here at Shevet.
Arkan and his father were both excited and happy to hear that the doctor wanted to make a meeting to discuss Arkan’s case. We spoke yesterday and Arkan’s father and I both said we were going to pray for a good outcome from the meeting today, and also for the storm to stop before the morning.
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So, when the stormy night had passed and this beautiful and peaceful morning had arrived, we agreed that the first prayer had been answered.
The meeting today was also a sweet answer to prayer, as Dr Sharon was able to explain many things, including, in detail, the treatment pathway to the father so that he was really able to get a good understanding about his son’s condition. When she turned the meeting towards him making a decision, he respectfully told her that he trusts her opinion, and his decision is to let her decide. He is a wise and humble man and clearly wanting the very best for his son.
There are two issues to solve for Arkan, firstly to address a conduit which has calcified and therefore narrowed, and secondly that he needs to have a valve replacement. The artificial valve comes at an extra cost, which we need to be trusting God for. The exciting thing is that hopefully these procedures can both be carried out with catheterisation, so no need to open his chest on this occasion. It is a highly specialist procedure, and so they would like to bring one of the most experienced doctors in Europe over for Arkan’s procedure.
More good news is that hopefully this would prevent Arkan from needing any further surgeries for more than 5 years.
It felt like today there were many questions answered for Arkan’s father. He is a very wise and balanced man, who begun the day by reminding me that whatever the Lord wants to happen is going to happen. So, thank God that today he opened the windows of blessing for this family and there is a plan in place. Before we got home, we had a phone call to invite Arkan in for a diagnostic cath in a week and a half, to help prepare for the “big cath”.
Please keep praying for the windows of blessing and provision to open for Arkan’s case.
Today I had the pleasure of bringing Arkan for his CT angiography. We left at 7 in the morning, and just as I was walking out of the door to see if him and dad were ready, we bumped into one another in the hallway! I’d been looking forward to get to know Arkan more; him and his dad are so kind and humble. During the wait Arkan and I played several rounds of tic tac toe (he won three times and I won once). This special because I was praying for insight for how best to help him feel relaxed during this time leading up to the CT, and he seemed to genuinely enjoy playing this game. We waited for two hours, and as he had been fasting since last night, it would have been understandable if he was frustrated or upset, but he was so calm and quiet all the way through. Around 10 he had the CT done and it took less than ten minutes! He drank several cups of water after as we waited for another 15 minutes per orders of the nurses to make sure he was okay after the scan.
Now we wait for the cardiologists to interpret the CT scan and decide what to do next! Please pray that soon Arkan will be able to have surgery, and please continue to pray for building relationships with the sweet boy!
At a young age, Arkan was diagnosed with Double Outlet Right Ventricle, which means that two of his major arteries are connected to the same right ventricle. Throughout his life, Arkan has experienced many assessments, procedures, and even a major surgery.
Now at thirteen years old, Arkan is in Israel seeking cardiac surgery to replace a conduit, or a channel between his right ventricle and pulmonary artery. His conduit has suffered from calcification, which has narrowed the channel. This makes it difficult for blood to travel through the channel. Arkan’s father is a civil engineer and is very interested in learning about his son’s condition. His love for Arkan is evident in his desire to learn more so that he can provide the best care for his son. He is willing to wait for as long as needed for him to receive the best care. Today Arkan and his father patiently waited for not only his assessment, but patiently waited hours for the Shevet Achim hospital team to complete all the tasks needed to be done at the hospital. It reminded me of how much God loves his children and is our good Father. Here is the first stanza of “How Deep the Father’s Love for Us”:
How deep the Father’s love for us How vast beyond all measure That He would give His only son
To make a wretch His treasure
A doctor at the hospital will discuss his case tomorrow to decide if he needs a pulmonary circulation CT angiography to get a better picture of how his lungs are functioning. The doctors will also discuss what is best for Arkan in terms of medical procedures.
Today, it was so nice to meet Arkan, who is 14 years old! I always think God is doing something special when an older child comes to Shevet. They get to experience life alongside the staff, and we bond like siblings with them. We’re so excited to have him and his kind father here with us! Please pray that he would feel at home here, even while waiting for surgery. His operation will be to treat his Double Outlet Right Ventricle (DORV), and his first assessment is September eighth!
