Why should you wait alone when you don't need to
And again Rovar needed to spend a very long day in the hospital because he had an appointment for a blood test. For the last few days he also needed to stay in hospital very long and I thought about how I could be helpful should he need to do this again. So I prayed to God about it and as He always does, He took care of it.
As we started our day to the hospital the car was full of people. Lawi also should have had an appointment, so we weren’t alone. While Rovar very bravely had his blood test, Lawi’s appointment got canceled. Yes, you could be upset about it, but Rovar wasn’t at all because it meant he could spend the whole day waiting together with Lawi until his results came in. Together we had a lot of fun. Sometimes you have to see the situation through different eyes:
So, they and coworker Julio, tinkered with their own new eyes. But that wasn’t enough. Running through the hallways and greeting everyone in bits of Hebrew, saying “Shalom” (peace) and “Ma-nischma?”(how are you) brought so much joy to all of us.
The results came back saying that his hemoglobin dropped today and he needs a blood transfusion and needs to stay for a little while longer. I picked them up later in the evening and saw exhaustion in Rovar’s mum’s face. Even though Rovar has fun at the hospital, these long days are very tiring.
On Thursday he will have another appointment. Please pray that his blood test will be better and he will improve. Also pray for new strength for his mother. After all I‘m very thankful for God’s leading today. Something bad for Lawi turned into something really nice and supportive for Rovar and his mum. Praise be to our glorious God who always takes care of us.
Rovar had another long day at the hospital. He is going so regularly at the moment for blood tests which are mainly to check his haemoglobin levels which have been dropping dangerously low.
Today again was a really traumatic time for him having his blood taken but thankfully as soon as it was over, he had forgotten all about it. His haemoglobin levels are still low, but not so much that he required another blood transfusion today.
Whilst we waited to see the doctor, Rovar enjoyed himself by copying dance routines from some favourite YouTube videos. It was so sweet to see him. He has a lovely personality and is very kind and loving.
Some changes were made to his medication, and he still needs to come back yet again on Sunday for another blood test. It is not an easy time for him, needing to come so frequently to have blood tests, and sitting for long long days in the hospital.
Please keep praying for him and his mum
Written by Christiane
It’s always fun to be around Rovar. Even in hospital. He greets doctors and nurses with a big smile and open arms. Become like little children – have an open heart, trust, be joyful – I can see that in Rovar. Unfortunately he also experiences disappointments and screamed today when the nurse had to take blood. But as you can see on the photo Rovar was brave and got a badge. Since his haemoglobin level keeps dropping we needed to check on him but he didn’t need a transfusion today.
It was an intense day – not only because of recurring rocket alerts – but also because of a number of doctor’s appointments for Rovar and new appointments to organise in different departments (another blood test on Thursday, an EEG after his operation and he needs to be seen by a physiotherapist). And the neurologist we saw today suggested a change in medication.
Rovar’s mom seemed tired and frustrated today so let us pray for his mom to have peace and be able to trust the doctors, and also pray for interpreters since communication is not so easy at times. And let us pray for Rovar’s operation on December 3rd.
Safe in his mum's arms...
Once again our beautiful Rovar had to revisit the hospital for one of his least favorite appointments: a blood test. Even though he did not become friends with the procedure, he stood through it bravely.
Still courage wasn’t the only thing he and his mum needed for this day. They also needed an incredible amount of patience which, without which this day wouldn’t have been possible. After the blood test, the discussion of the results was delayed and we had to wait for a long time. Rovar and his mum took this waiting time and made the best out of it, which led to hot chocolate and cookies in the waiting area. The time was also filled with a happy Rovar running around and exploring this unknown part of the hospital.
Finally the doctor arrived but the waiting wasn’t finished. Rovar needed a blood transfusion because his hemoglobin had decreased over the last couple of days. This meant more waiting, waiting for the approval for the transfusion, waiting for the blood and waiting for the blood to flow into Rovar.
Rovar and his mum took this wait gracefully and patiently. As we placed Rovar on the chair for the transfusion, Rovar became a little scared again. Tears started rolling down his cheeks but the wonderful nurse looked at him and said “We know each other from the last transfusion. We are friends right?” Her calm and patient way of talking to Rovar made him feel better. As the blood transfusion started, Rovar fell asleep in his mother’s comforting arms. Even though this day involved a lot of scary procedures for Rovar, his mum was always there to comfort him and she made him feel safe enough to sleep.
In the end Rovar was able to smile again. He conquered this hard and long day with strength and love.
Please keep Rovar and especially his condition in your prayers.
Rovar is making new friends in the hospital!
The day started very early for Rovar. He had an appointment in the morning with his doctor. After a short meeting the doctor said he is very contented about his wound – it is healing very well.
From then on Rovar and his mum were happy and had new motivation to wait for the EEG, which was planned for the afternoon. In the Time between Rovar made many friends in the hospital. He is such a joyful and peaceful child. Doing a puzzle with a staff member, sharing a muffin with Christiane, giving me a overwhelming hug when he saw me!
Rovar brings so much happiness to the people with his behavior and patience he motivated me to do the same even if I‘m in periods of long waiting or difficult situations.
Then it was time to get to take the EEG in another building where a car took us. Rover was waving at the buildings to say goodbye and his mother and I just enjoyed this short trip. In the EEG area we met a lovely Doctor and the doctor and Rovar became friends pretty quickly because they share the same taste in music – Korean music! In moments like this I‘m so thankful for God and His way of building relationships and sending distraction from all the stuff that is going on. He is the one we can always count on and He will make a way for us. While Rovar had his EEG, his mum could rest a little bit and in this situation the song “Rest In You“ came to my mind.
“Our hearts are restless
Until they find rest in You
This is where my hope lies
This is where my souls sighs
I will always find my rest in You“
In God I can find my rest and He is the one who gives me new strength every day. So my prayer for Rover and his mum is to find rest in our awesome god. Through all the time in the hospital, the waiting, the tests, the surgery, they are able to find God in all of it. I have hope that the results of the EEG will be good so that Rovar can have his second surgery in the beginning of December.
Rovar’s attentive mother noticed that his hands were paler than normal and immediately sensed that his hemoglobin levels were probably dropping. Rovar previously needed blood transfusions, perhaps due to his blood condition called beta-thalassemia intermedia. This is an inherited disorder that affects the body’s ability to produce adult hemoglobin, which helps carry oxygen from the lungs to the tissues in the body. Anemia, or decreased hemoglobin levels, is correlated with beta-thalassemia.
To get a better picture of his blood levels, we took him to the Emergency Room. We waited for an hour or so, and during the meantime Rovar happily played the drums and explored the different game facilities at the hospital.
When we finally were able to talk with the doctor, Rovar fell asleep before the doctor listened to his lungs, and then later fell asleep in my lap as we were discussing our concerns with the doctor.
He seemed more tired than usual. Rovar later had to endure a blood test and intravenous cannula insertion, which involved lots of screaming and tears.
We waited for another few hours. Lisa played with Rovar and also comforted him during the waiting.
Then the doctor told us that his hemoglobin level was rather low and that he would need a blood transfusion. They also decided to keep Rovar overnight for observation and to perform the long blood transfusion.
The waiting reminded me of waiting patiently for God with joyful expectation for the return of God. Our God, who loves righteousness and justice, but is also our steadfast love…who created the expanses of the sky and sea, and who created Rovar so intricately and wonderfully…is our hope in the waiting. Psalm 33: 20-22 states,
Our soul waits for the Lord;
he is our help and our shield.
For our heart is glad in him,
because we trust in his holy name.
Let your steadfast love, O Lord, be upon us,
even as we hope in you.
Please pray for Rovar and his mother as they are now in the hospital. Please continue to pray for wisdom for the doctors in knowing how to best care for him.
Rovar’s location in the surgical unit was unknown, but it was easy to find him by simply listening for the Korean music he listens to every day. Over the last few days, Rovar has been recovering from his left indirect revascularization surgery. It is encouraging to see him walking and talking, and finding comfort in his mother.
There was one moment, when Rovar was in pain, but he sought solace in his mother’s embrace. It reminded me of 2 Corinthians 1:3-4, which states: “Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our affliction, so that we may be able to comfort those who are in any affliction, with the comfort with which we ourselves are comforted by God.” May we all seek solace in God our father, who is the God of all comfort.
There was a moment where he asked me to stroke his temple as he fell asleep. It was so heart-warming to see how much trust and comfort he found in his mother and I. As he fell asleep, I marveled at his beautiful face and the new surgical incisions on the left side of his head. Praise God for bringing him healing thus far.
Please continue to pray for Rovar as he continues to heal. In two weeks, he will have a follow-up appointment with his neurologist to determine his progress. Hopefully in one month he will have an indirect revascularization procedure–the same surgery he just received–on the right side of his head.
by Reba Jones
Rovar is recovering nicely from surgery.
His energy level is high, and he seems to be in good spirits. We spent some time playing with his toy helicopter and enjoyed tossing the ball around his room.
Alexa, Julie, and I had tea with Rovar’s mother while she expressed her great appreciation for all that Shevet is doing for them. Because Shevet Achim does not typically assist with neurological surgeries and procedures, Rovar’s mother is especially thankful. Rovar’s mother reports that he had a mild headache this morning requiring pain reliever but has not complained of pain since then. Joy showed evidently on Rovar’s face when he was able to video chat with his family during our visit.
He spoke with both his sisters and his father. Rovar’s sisters are 14 and 10 years old and were sharing with us about their current studies in multiple languages. Our visit with Rovar finished with him playing some American music on his iPad; which his mom informed us he much prefers over Kurdish music. We had a last laugh as we danced around a bit before saying our goodbyes for today.
It finally happened! Rovar’s long-awaited surgery took place today. Ruth and I headed to the hospital to sit with Rovar’s mum throughout the surgery. Still our first important task turned out to be finding the correct waiting area. To complete this task we had to enter a part of the hospital that I have never been to before. After searching for Rovar on the wrong floor we were told where the operating area was. Following the vague description “Go to the Lobby. Turn left, then right.“ We finally saw Rovar’s mum who jumped up to greet us. The moment I hugged her, her tears started falling. I could feel how scared she was and how deeply she loved her son. A few seconds later she looked at me and tried to smile, a smile that was filled with incredible strength. As we sat down in the waiting area, a man came from the other side of the room and gave us coffee. Little did we know that he would become an angel throughout the surgery. He was waiting for his grandson’s surgery to be completed, still he would come to us and provide loads of food and drinks. He showed so much love for us even though we were total strangers to him.
Rovar’s mum requested to pray for the surgery so Ruth and I fulfilled this request happily. Hearing that we sent the prayer request to the rest of the Jaffa staff made Rovar’s mum very happy. Although her thoughts must have been consumed by Rovar’s surgery, she was able to share pictures with us and have uplifting conversations with the other persons in the room. Still, you saw how scared she was whenever a conversation grew quiet. Her eyes would fixate on the glass door of the operating area and you could tell how deeply she longed to hold her son and tell him that everything would be alright.
Finally, the waiting ended and Rovar was brought to his room. His mum was so happy and relieved to see Rovar. She accompanied his bed, being always close to her son. Her happiness was lighting up her surroundings wherever they went. Rovar was brought up to his room and had to go through a few procedures before he could be alone. Even though this little boy was exhausted and did not like what was done to him, he stood through it bravely. During these procedures Rovar’s mum would never leave his side as well. In stroking his hair and holding him, she was pouring out her love for Rovar. A real-life superhero.
Rovar’s room was filled with strength from both Rovar and his mum. In the end, Rovar proudly announced that he is now like Spider-Man because of his line on his hand. And as Spider-Man needs to sleep after being a superhero, so did Rovar. With his mum stroking his head he fell asleep our incredibly brave superhero.
Sleepless mother on surgery eve
Rovar’s mother shared how she was unable to sleep last night because her heart was pounding in anticipation of the surgery tomorrow. However Rovar seems to enjoy his time in the hospital and loses no sleep over his upcoming surgery. When we first walked into the hospital building today, he eagerly pressed the elevator button and was excited to return to the pediatric surgery department.
Rovar also enjoyed exploring the hospital with his friend a fellow Kurdish patient Gashbin:
Rovar was admitted into the hospital for his indirect revascularization surgery tomorrow at 7 am. His blood test results also confirmed Rovar’s original diagnosis of beta-thalassemia and Moyamoya disease.
Please pray for Rovar as he has a major surgery tomorrow. Please pray for peace for his whole family. We trust that God has Rovar in his hands, and that he deeply cares for Rovar. We pray that his family will trust in God in all circumstances.
Rovar is having more tests and seeing the doctor today who is planning a strategy for Rovar’s upcoming brain surgery which should be in about two weeks. We had to go to the Lab for more blood tests. The technician who took the blood sample was so impressed with the bravery of Rovar. This little trooper was made very happy by the technician when she gave him a metal sticker.
We had to wait for almost two hours to see the hematologist for Rovar’s blood test results to be read. Rovar enjoyed his waiting time however by driving the train in the playground area. I happily took care of him while his mother visited some of the other Shevet mothers at the hospital.
When we finally met with the Hematologist we were told that the doctor will need another 4 blood test results from the other appointed professors in order to decide when to perform the surgery.
Lets keep both mother and son in our prayers for an anxiety-free waiting process.
Rovar was diagnosed with a condition called Moyamoya disease, which means that some of the arteries in his brain are constricted. After the doctors reviewed his previous exams, they planned to perform a brain procedure to help form an indirect connection to improve his blood flow in the brain. His procedure was originally scheduled for today; however, upon a blood test result and further review of his case, they are suspecting that he has another underlying condition. They are testing him for sickle cell anemia and beta-thalassemia intermedia, which are two blood conditions.
Rovar was discharged from the hospital and is currently at the Shevet Achim Jaffa Center. When we first arrived at the hospital, he welcomed us with his loving smile. He smiled the whole car ride back to the Jaffa Center. His mother was so loving, patient, and kind–despite the delay in Rovar’s surgery date. It must be difficult for Rovar’s family as many doctors have discovered different conditions and have differing diagnoses. Please pray that we all care for Rovar with wisdom and compassion. We love him with all of our hearts and are thankful to God for bringing Rovar and his mother to Israel.
Please pray for his blood test this coming Sunday. His brain procedure is still scheduled, but the date has been delayed for two weeks.
Written by: Lisa and Colin
We had to go to the hospital for an early morning appointment. Rovar had his initial assessment today in the neurosurgery clinic. He was really happy to see the big crocodiles at the entrance of the children hospital, so we had to stop for a photo.
We had to wait for quiet time and we had to download all possible information and previous tests at the x-ray section. So the surgeon will have a complete picture of his diagnosis. The mother answered all the questions the surgeon asked her and then he did the check-up.
Because this is a very rare illness they would like the radiologist to see his case with all the information then decide if they need to do new tests like an MRI or SPECT, to see the vascular reserve of the brain. Then they will consult and decide whether he needs a surgery or other kind of treatment. This is just the beginning.
Please keep Rovar and his mother in your prayers as they adapt to the new family here and the Lord opens a door of healing for him.