Rovar’s location in the surgical unit was unknown, but it was easy to find him by simply listening for the Korean music he listens to every day. Over the last few days, Rovar has been recovering from his left indirect revascularization surgery. It is encouraging to see him walking and talking, and finding comfort in his mother.
There was one moment, when Rovar was in pain, but he sought solace in his mother’s embrace. It reminded me of 2 Corinthians 1:3-4, which states: “Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our affliction, so that we may be able to comfort those who are in any affliction, with the comfort with which we ourselves are comforted by God.” May we all seek solace in God our father, who is the God of all comfort.
There was a moment where he asked me to stroke his temple as he fell asleep. It was so heart-warming to see how much trust and comfort he found in his mother and I. As he fell asleep, I marveled at his beautiful face and the new surgical incisions on the left side of his head. Praise God for bringing him healing thus far.
Please continue to pray for Rovar as he continues to heal. In two weeks, he will have a follow-up appointment with his neurologist to determine his progress. Hopefully in one month he will have an indirect revascularization procedure–the same surgery he just received–on the right side of his head.
by Reba Jones
Rovar is recovering nicely from surgery.
His energy level is high, and he seems to be in good spirits. We spent some time playing with his toy helicopter and enjoyed tossing the ball around his room.
Alexa, Julie, and I had tea with Rovar’s mother while she expressed her great appreciation for all that Shevet is doing for them. Because Shevet Achim does not typically assist with neurological surgeries and procedures, Rovar’s mother is especially thankful. Rovar’s mother reports that he had a mild headache this morning requiring pain reliever but has not complained of pain since then. Joy showed evidently on Rovar’s face when he was able to video chat with his family during our visit.
He spoke with both his sisters and his father. Rovar’s sisters are 14 and 10 years old and were sharing with us about their current studies in multiple languages. Our visit with Rovar finished with him playing some American music on his iPad; which his mom informed us he much prefers over Kurdish music. We had a last laugh as we danced around a bit before saying our goodbyes for today.
It finally happened! Rovar’s long-awaited surgery took place today. Ruth and I headed to the hospital to sit with Rovar’s mum throughout the surgery. Still our first important task turned out to be finding the correct waiting area. To complete this task we had to enter a part of the hospital that I have never been to before. After searching for Rovar on the wrong floor we were told where the operating area was. Following the vague description “Go to the Lobby. Turn left, then right.“ We finally saw Rovar’s mum who jumped up to greet us. The moment I hugged her, her tears started falling. I could feel how scared she was and how deeply she loved her son. A few seconds later she looked at me and tried to smile, a smile that was filled with incredible strength. As we sat down in the waiting area, a man came from the other side of the room and gave us coffee. Little did we know that he would become an angel throughout the surgery. He was waiting for his grandson’s surgery to be completed, still he would come to us and provide loads of food and drinks. He showed so much love for us even though we were total strangers to him.
Rovar’s mum requested to pray for the surgery so Ruth and I fulfilled this request happily. Hearing that we sent the prayer request to the rest of the Jaffa staff made Rovar’s mum very happy. Although her thoughts must have been consumed by Rovar’s surgery, she was able to share pictures with us and have uplifting conversations with the other persons in the room. Still, you saw how scared she was whenever a conversation grew quiet. Her eyes would fixate on the glass door of the operating area and you could tell how deeply she longed to hold her son and tell him that everything would be alright.
Finally, the waiting ended and Rovar was brought to his room. His mum was so happy and relieved to see Rovar. She accompanied his bed, being always close to her son. Her happiness was lighting up her surroundings wherever they went. Rovar was brought up to his room and had to go through a few procedures before he could be alone. Even though this little boy was exhausted and did not like what was done to him, he stood through it bravely. During these procedures Rovar’s mum would never leave his side as well. In stroking his hair and holding him, she was pouring out her love for Rovar. A real-life superhero.
Rovar’s room was filled with strength from both Rovar and his mum. In the end, Rovar proudly announced that he is now like Spider-Man because of his line on his hand. And as Spider-Man needs to sleep after being a superhero, so did Rovar. With his mum stroking his head he fell asleep our incredibly brave superhero.
Sleepless mother on surgery eve
Rovar’s mother shared how she was unable to sleep last night because her heart was pounding in anticipation of the surgery tomorrow. However Rovar seems to enjoy his time in the hospital and loses no sleep over his upcoming surgery. When we first walked into the hospital building today, he eagerly pressed the elevator button and was excited to return to the pediatric surgery department.
Rovar also enjoyed exploring the hospital with his friend a fellow Kurdish patient Gashbin:
Rovar was admitted into the hospital for his indirect revascularization surgery tomorrow at 7 am. His blood test results also confirmed Rovar’s original diagnosis of beta-thalassemia and Moyamoya disease.
Please pray for Rovar as he has a major surgery tomorrow. Please pray for peace for his whole family. We trust that God has Rovar in his hands, and that he deeply cares for Rovar. We pray that his family will trust in God in all circumstances.
Rovar is having more tests and seeing the doctor today who is planning a strategy for Rovar’s upcoming brain surgery which should be in about two weeks. We had to go to the Lab for more blood tests. The technician who took the blood sample was so impressed with the bravery of Rovar. This little trooper was made very happy by the technician when she gave him a metal sticker.
We had to wait for almost two hours to see the hematologist for Rovar’s blood test results to be read. Rovar enjoyed his waiting time however by driving the train in the playground area. I happily took care of him while his mother visited some of the other Shevet mothers at the hospital.
When we finally met with the Hematologist we were told that the doctor will need another 4 blood test results from the other appointed professors in order to decide when to perform the surgery.
Lets keep both mother and son in our prayers for an anxiety-free waiting process.
Rovar was diagnosed with a condition called Moyamoya disease, which means that some of the arteries in his brain are constricted. After the doctors reviewed his previous exams, they planned to perform a brain procedure to help form an indirect connection to improve his blood flow in the brain. His procedure was originally scheduled for today; however, upon a blood test result and further review of his case, they are suspecting that he has another underlying condition. They are testing him for sickle cell anemia and beta-thalassemia intermedia, which are two blood conditions.
Rovar was discharged from the hospital and is currently at the Shevet Achim Jaffa Center. When we first arrived at the hospital, he welcomed us with his loving smile. He smiled the whole car ride back to the Jaffa Center. His mother was so loving, patient, and kind–despite the delay in Rovar’s surgery date. It must be difficult for Rovar’s family as many doctors have discovered different conditions and have differing diagnoses. Please pray that we all care for Rovar with wisdom and compassion. We love him with all of our hearts and are thankful to God for bringing Rovar and his mother to Israel.
Please pray for his blood test this coming Sunday. His brain procedure is still scheduled, but the date has been delayed for two weeks.
Written by: Lisa and Colin
We had to go to the hospital for an early morning appointment. Rovar had his initial assessment today in the neurosurgery clinic. He was really happy to see the big crocodiles at the entrance of the children hospital, so we had to stop for a photo.
We had to wait for quiet time and we had to download all possible information and previous tests at the x-ray section. So the surgeon will have a complete picture of his diagnosis. The mother answered all the questions the surgeon asked her and then he did the check-up.
Because this is a very rare illness they would like the radiologist to see his case with all the information then decide if they need to do new tests like an MRI or SPECT, to see the vascular reserve of the brain. Then they will consult and decide whether he needs a surgery or other kind of treatment. This is just the beginning.
Please keep Rovar and his mother in your prayers as they adapt to the new family here and the Lord opens a door of healing for him.