It was so lovely to see how Taman’s mother has changed since her time here. I remember when she first arrived and was so worried for her baby. Today she was so much more relaxed as she held happy little Taman’s hands during his echo.
We were called into the echo almost straight away this morning. By now his mother knows exactly what to do, and how it works. Taman seemed very at home as well, his big brown eyes absorbing the echo room with all its faces, shapes and colors. Afterwards, in the waiting room, he was very content, sitting in his pram, clutching my finger with his little hand. We enjoyed some hot chocolate and cakes together from the tea trolley as we waited for his doctor. It’s become a little tradition now; whenever I’m in the hospial with Taman’s mum, we always get hot chocolate
Taman’s doctor was very happy and said he is clinically well. He has moderate pericardial effusion, which means there is still some fluid around his heart. He is on medication for this and will have another echo this coming Wednesday.
Taman is a very calm boy and did not cry even once during the echo. He was laughing with the technician most of the time. Last week, Taman had a great echo but unfortunately he developed water around his heart. The Doctor said Taman’s operation looked good, but she consulted with another cardiologist and decided that Taman was not ready to go yet.
It is very cold, rainy and windy these days here in Israel, so many of the children get flu easily. Please remember Taman and his mother in your prayers.
Taman’s mother received the news with dignity and calm. She was of course disappointed not to be able to fly back with the group of other Kurdish mothers. Please pray for Taman, that tomorrow at his next assessment, we would see healing in his heart.
Taman’s mother seemed to really enjoy the trip to the hospital. From our departure from the Shevet Center until arriving at Sheba Medical Center, she was filming every moment of our lively car journey. It made me smile as she replayed these back to me later – what was such a familiar journey to us was so new and exciting to her.
I was amazed by how quickly Taman was called into his echo. It felt like we’d only just arrived when we were beckoned into the hospital room. Throughout the whole process, he seemed relaxed and content, completely unphased by everything going on around him.
Later, as we waited together after Taman’s echo, his mother seemed very much at home – taking pictures, sharing many cups of hot chocolate and sitting with beautiful Taman in her arms as he drifted off to sleep. I got myself a drink from the tea trolley and accidentally put way too much coffee in my cup. She found it absolutely hilarious watching me struggle to drink this.
Through our time together I was really reminded of God’s goodness and perfect timing. On a day when we had so much going on, He provided a fast appointment for Taman. His peace seemed to be very evident with his mother throughout the whole day.
Little Taman was finally able to go home! A joyful day for him and his mum.
My day started with a little bit of confusion. In the last update I received, I was told that Taman was in the same hospital room with Halbast. However, during my visit there, I could not find Taman. Luckily I met Taman’s mum in front of the Echo Area. She smiled happily at me and showed me where they had been moved. As we walked she was watching a YouTube video to learn some English. I was impressed by her initiative to learn and to see the joy it gave her. Since my Kurdish is not the best, we started a “Dual learning experience“. I was repeating the Kurdish phrases and she repeated the English. It was a lot of fun and Taman seemed to enjoy it as well. His cute little smile was shining on us.
As I talked to the nurse she told me that Taman would probably be discharged at around two o‘clock. I left the ICU to talk to Colin about how we could arrange the day since it all seemed quite complicated. But as we were trying to figure out a plan, God provided the best way possible. One of the nurses came to me and told me that Taman would be discharged immediately. At first I couldn‘t believe what I had heard. He continued and said that they needed the bed and they prepared everything so we were able to go. As I told Taman’s mum, she seemed quite surprised but incredibly happy. We collected her things and Taman, and started to leave. Passing the nurses’ station, the two nurses celebrated with us and were blessed with Taman’s beautiful smile. It was lovely to see how much the nurses care about our kids and their parents.
As I said, God had prepared the perfect way. Unexpectedly, Daryan’s and Paula‘s appointment (same hospital) ended at the same time as we were leaving and we were able to fill up our van called ‘Junior’ and drive all of them home, where Taman was greeted lovingly.
Good news for our beloved Taman: He is doing better every day! He has been extubated and moved to the secondary ICU. Entering Taman’s room, I was welcomed by his lovely mother. She showed me to Taman’s bed in which a wide awake Taman laid.
co-authored by Ruth
Taman came to Sheba with an atrioventricular Canal (a hole in the centre of his heart). We are thankful he had a successful surgery, after the cancellation yesterday. Yet, God was even at work in this. The surgeon is a friend of shevet; his daughter has visited Shevet and plans to visit again.
Taman’s mother was earnestly praying throughout the surgery, kneeling on a little baby blue blanket. It was a beautiful moment, to be able to pray together after the surgery, kneeling side by side facing north. Thanking God together for his life was a beautiful moment. I was unfamiliar with her way of prayer and just prayed in the way I knew how, with palms open, thanking Christ for his gift of eternal life and for the life of wonderful Taman. This was a beautiful bonding moment between the two of us. It was so special to be able to spend this time together – eating together in the kitchen…..
He was the third cath of the day so they started at around two o’clock. At this point, the mother of Darya and Daryan, who was in the process of being discharged, came to the waiting area to sit with Taman’s mum. At one point Neena’s mother came out to talk with her while I stayed with Neena in her room in the ICU.
Today was Taman’s first assessment. It was a long day of waiting, but it was fruitful because Taman was able to have his echo and ECG, before being admitted for a catheterisation tomorrow.
I had the opportunity to spend lots of time with Taman’s mum and share with her about many things. We talked about life in Kurdistan and she spoke about the difficulties she faces raising a child with Downs Syndrome there. For example, in Kurdistan, they wouldn’t be able to find a centre or school with trained teachers who could help Taman properly. The resources are limited for helping children with extra needs.
The doctor explained that Taman will be admitted today for a diagnostic catheterisation tomorrow. She hopes that he will be a good candidate for surgery. We waited a long time for the room to be ready for him. He had a nice lunch.
It was our joy to receive Taman at the airport tonight alongside two other Kurdish families who have come for heart surgeries in Israel.
Taman is a seven-month boy diagnosed with Down Syndrome and Atrioventricular Canal. Taman has a diagnostic catheterization scheduled six days from now. From the first moment I met Taman, I had a feeling of gratefulness to God for bringing him to Israel. I am excited to listen to his family’s stories and to learn more about Taman.
Because of the imago Dei, we can develop an appreciation for self and others. Life inherits intrinsic value by virtue of its divine endowment. Taman has been created so beautifully in the image of God (Genesis 1:27). I pray that our care for him would be motivated by agape, a self-giving love that that reflects the incarnational and redemptive love of God in Jesus Christ.
We welcome Taman warmly to our home and we are so thankful for an opportunity to walk alongside Taman in his first journey in Israel.