Beautiful Adam had another post-operative echo today at Sheba Medical Center. Because we have been delegating work to fixed teams of Shevet personnel, co-worker Georgia and I, who have been a hospital visit team, have not been allowed to visit the Shevet house that is home to our Kurdish and Syrian families for over a month now. So I haven’t been with Adam in a while, but it was so good today to be with this sweet boy.
I recently learned the term ‘xapa gyan,’ which is a Kurdish term of endearment, it doesn’t translate well to English as it literally means, ‘chubby of my life,’ but I heard his mother calling him this and for the rest of the day I often said it to him! He is so beautiful.
And the echo today was wonderful. His oxygen was 95, he has gained weight, and the doctor said his heart function is really good. He is cleared to return home to Kurdistan, after one last echo, which, hopefully, will be closer to when there are flights available! His mother asked for a celebratory picture with his cardiologist, too!
The doctors are a bit like celebrities sometimes, as the Kurdish families love taking pictures with them to commemorate their care of the their children. Praise God for this outstanding report for dear Adam!
We prayed this morning for Adam and his mother ahead of today’s appointment, which was his first echo after surgery and also a blood test. I remembered that previously the medical staff had difficulty finding a vein for placing a cannula for Adam, and how hard this was also for his mum to hear.
In hospital today, we started the day in good spirits, laughing together at Adam wearing a mask, as we waited for the blood test to start. The nurses worked very hard to try and take blood for Adam, and I think at least 5 nurses attempted without any success. It was very sad to see Adam crying and his mum fighting back her own tears as she was unable to give him any comfort. After over an hour and a half, we were released with apologies from the nurses who were unable to take any blood. Finally Adam’s mum was able to gather him close to her, and breath and cry into him, finally able to comfort him.
We returned upstairs for Adam’s echo. This brought very nice news as the cardiologist said Adam’s heart and surgery result was “beautiful” and that he is happy to reduce Adam’s medication with a view to being able to discharge him after two weeks. The mother was pleased to hear it, and the final blessing was to hear that the doctor felt that it wouldn’t be necessary to attempt the blood test again today. At this news she breathed huge sighs of relief, and started to cry again. Then I shed a few tears with her! She is a very loving and kind mother, and it has been terrible to see her distress for her baby during his blood tests.
Thank God that He is with us always and that Adam’s heart it looking good so far.
We were at the hospital for a very short time today. But it was a nice short time! We got all the information we needed for little Adam very quickly. Then we had a nice phone call from Adam’s mother. She showed us the picture below of how hungry Adam is how much milk he’s drinking. Amazing to see this little fighter! And only one day after surgery, he is extubated. Praise the lord!
Punctually, at eight o’clock in the morning, our little friend Adam entered the operating room at Sheba Medical Center today. His mom brought him in. It was a very hard distance for her and fear overwhelmed her in the moment she exited and the door closed behind her. Great tears ran down her cheeks. My wife Anna and I didn’t know how to comfort her; our Kurdish is, after six weeks, very limited. We asked via Google translator if we can pray for her and the surgery. She said YES.
After this prayer we felt how God’s blessing came over the situation. At first, another Kurdish mother whose child is also being treated at Sheba, came outside the ICU and spent a lot of time with us. Together with the two mums, we started to learn some Kurdish and Arabic words and had a lot of fun.
Then Adam’s mum showed us some lovely pictures of Kurdistan and of Adam, she loves her latest son very much. Other Kurdish families came and sat down, so she was distracted from the sorrows about her son. The special thing was that during the waiting time, she get maybe two or three updates about Adam’s condition from doctors coming out of the operating area. That was something new for us. We want to bless the Lord, that after 4,5 hours, finally Dr. Katz came out with a thumbs up! Everything was ok! Surgery successful, no complications! Hallelujah!
Well, now her face lit up and she expressed her joy. We waited another hour for Adam’s stabilization and enjoyed a delicious lunch together. Then she could finally go back to her beloved baby. Thank you Lord, for this blessed day!
Adam released home to Jaffa
We are happy to announce that Adam returned home to our Shevet community home in Jaffa after his diagnostic catheterization.
The doctors will plan his surgery, so please continue to pray for him and his mum during the waiting.
Adam had a cath procedure today. He was crying most of the time before the cath because of the lack of food. This worried his mother seeing her son so hungry. She worried and often cried with him all the way up to the procedure. She prayed for him every ten minutes, and often she’d ask me why this was happening to her son.
When the cath was finished, she was filled with much joy and happiness to know he was going to be OK. It was a very difficult time for her, but she is very happy now to see her son doing well. The exam from the procedure is being reviewed by the doctors to see what necessary steps should be taken next. Right now he is stable and doing well in recovery.
Adam's catheterization admission
On the way to the hospital, I looked into the rear view mirror and saw the crinkles on Adam’s mum’s forehead. She looked so anxious. Probably she didn’t expect her son to be called in for a cath and have to leave so soon. I tried to buoy her up by saying that usually you just need to stay three days in the hospital for a catheterization.
Adam’s mum is so brave and is doing everything she can to stay strong for her sixth son. When we entered the hospital room where they would be staying, she breathed deeply in and out, trying not to cry. It was also so beautiful and remarkable to see during her short time there, fearful herself, Adam’s mum managed to comfort another mum who was crying a lot.
It was really difficult to leave Adam and his mum behind. Especially because he was so upset after the doctor had tried to put a cannula in unsuccessfully. Both mum and child were crying. Normally Adam stops crying as soon as you start to tickle him underneath his feet or in the palm of his hands (he loves that). But this time he didn’t.
Today was a very long and exhausting day for Adam and his mum. Please pray that both of them can rest tonight to be prepared for tomorrow’s diagnostic catheterization.
Adam's first hospital day
Adam had his first assessment today at the hospital. The cardiologist has reviewed his echo and will discuss with the other doctors regarding the possibility of a diagnostic catheterization. Adam needs a surgery, and the cardiologist is advocating for a short wait time specifically because Adam is at higher risk for developing high pressures in his lungs.
His mother dearly loves Adam, and talks to him in such a loving way. During the echocardiogram, she even shed tears for him.
Please pray for Adam and his mother as they wait for news regarding the timing of the next procedures scheduled for him.
Adam is a seven seven-month old boy who has been diagnosed with Down Syndrome and Complete AV (atrioventricular) Canal (AVC). The AVC means that he has a hole between the upper and lower chambers of his heart. Because of this hole it causes more blood to travel through the lung arteries, and it is possible that his lungs can easily become congested if his heart and lungs cannot compensate for this increase in blood flow. He has not received any surgery yet, but is receiving medications to help his heart function.
Adam’s mother, Ameerah, shared how Adam was “blue” upon birth. After his birth, the doctors predicted that he would die in three hours. Adam’s mother shared how Adam is a gift from God, and I could not agree more.
During his assessment, she said “he is beautiful.” I love how she sees her son as a beautiful gift from God. We all fell in love with Adam immediately, and are thankful to God for giving him life.
His first hospital appointment in Israel is in three days. Please pray for Adam and his whole family (including all five other brothers), as Adam starts his journey in Israel.