Today Zakaria came to Sheba hospital with his mother from Gaza. Zakaria was seen by a nurse at the Gastroenterology clinic. They have to change his PEG, so a new appointment is scheduled for that.
The nurse who helped Zakaria was really friendly. She already changed a part of the tube, as it needed to be changed.
Zakaria was not totally himself today, he was having a cold. He was crying a lot and a bit exhausted. But he is adorable.
His mother is very nice. She speaks a little English so it was easier to communicate while spending time with her and getting to know her a little.
Zakaria was sleeping soundly today at Sheba hospital before returning home to Gaza. It has been a difficult week for him since having to go through the ER upon receiving his blood-test results. There is so much that is poured into the care of each child, and he is no exception. His mother’s care and the hospital’s is wonderful.
The hospital staff ordered one months’ worth of medicines for Zakaria’s mom to take back with her to Gaza. The medication Zakaria was on before going to the ER has been stopped. Zakaria should return in a month for an assessment.
Please continue to pray for Zakaria, ask God to continue to take good care of him. Zakaria’s mother said today that God loves him. He has lived through so much in his one year of life.
This lovely boy is still in Sheba hospital under the supervision of the doctors there. It will be a process before he is discharged to restart the medicine which he needs for his heart, but their levels were dangerously high in his blood when they tested them. Restarting this medicine will be done slowly and over time.
It has been nearly one year since he arrived urgently to Sheba, where he was extremely unwell, almost died and then made a long and difficult recovery. He is still being cared for here as there is always a place for him with us and with Sheba.
Please continue to pray for little Zakaria’s life.
Zakaria was due to come to Israel for an echo-cardiogram at Sheba Medical Center, but has ended up being admitted to the hospital. In his echo, the doctor ordered a blood test is to check the levels of a medicine he is taking, and he needed to be monitored.
They were on their way back to Gaza today when the hospital phoned to say he needs to come back immediately and go to the ER to repeat the blood test. Hassan’s text from earlier had showed dangerous levels of the medication.
He is being monitored now in the intermediate ICU, and is having much blood work and other tests done. Please pray for lovely Zakaria; thank God that he was able to come to the hospital and for the vigilant staff who are caring for him.
Zakaria returned to Gaza this week after an appointment to check his p.e.g tube. The gastro doctor could see from a graph, that Zakaria’s weight is progressing nicely. He will still need the tube to receive the medications he is on.
Over the weekend, his mum and I went out to stroll around Jaffa. At one point, I remember saying to her, who would have thought last summer, when Zakaria was on the ECMO, that we’d be here on this summer night walking at Jaffa Port with Zakaria?
Every moment we share, is a treasure. Nursing a child back to health after being as sick as Zakaria was, continues long after they leave the hospital, and Zakaria’s mother has done an incredible job raising him.
We celebrated his first birthday over the weekend also, and it was one of those moments where you stand back sort of in awe that this is happening. Please continue to pray for this wonderful boy. He will return to Israel in one month for another echo, and follow-up exams for his p.e.g. tube.
Tomorrow will be Zakaria’s first birthday, which means one year ago around this time, he arrived at Sheba hospital and would endure open-heart surgery, would have to go on life-support and survive being taken off of the machine, and then four months recuperating in the hospital after the fact.
Reaching his first birthday is a miracle, but I don’t think of that term as God snapping his fingers and healing Zakaria. Rather, I think of his mother’s grief as she kissed him goodbye before surgery, unsure if he would live through the operation to disconnect him from the ECMO machine, and of the faithful work co-worker Amar put in to getting Zakaria urgently out of Gaza, of the surgeons who spent hours and hours correcting his complex heart, and the doctors and nurses who cared for him day in and day out. This is the everyday work at Sheba, yet I think it miraculous, nonetheless.
So this lovely boy has come back for an echo today, which showed his heart function has decreased since his last echo two months ago. Zakaria will need a higher dose of medicine, and to be seen more often to monitor him. For many of the hospital staff, the last time they saw Zakaria, he had lost all of his hair. Now he has a full head of beautiful, curly black hair, he’s taller, and even though he is seven kilos, holding him feels like he is double that.
Please continue to pray for Zakaria. He will be staying at our house in Jaffa until his appointment next week with for his p.e.g tube that hopefully can be removed soon.
The echo for Zakaria showed that his heart function is good, though not 100%. The cardiologist said for the near future, he does not need another surgery, which means that it may be possible to close his PEG tube soon. He and his wonderful mum will return in two months for another follow-up.
Handsome Zakaria arrived yesterday evening to our Jerusalem guesthouse. His mother was very happy to see other Kurdish moms also staying in our guesthouse because they know each other very well. Today in the morning, I took them all together to Sheba Hospital for different appointments. Zakaria’s mother wanted to make a Selfie before we left, so we took one.
Zakaria had an appointment to check his PEG today. The nurse was very helpful, and wanted to make sure that Zakaria’s mom understood everything. They know each other well from the last appointment, when the same nurse checked his PEG. During this checkup, the nurse were affirming. She said things were excellent and very good. The nurse said she would like to see even better, or a change in the PEG which would come with some risks to Zakaria. This is not an urgent change needed, but she would like to get it done at some point in the future. She needs to talk about this at length with the cardiologist. Also Zakaria is having an Echo tomorrow which may or may not indicate Zakaria needs another procedure. Thank you for your prayers. After the Echo tomorrow, little Zakaria will get a new appointment to check his PEG again in two months.
This morning I arrived to Sheba Medical Center with Zakaria and two other families that needed to come to the hospital for appointments. Co-workers Carina and Moshe met me at the entrance and collected them for me so I could park the car.
This was the day for Zakaria’s needed Gastroenterology consult. Thank God that our neighbor Moshe was in the hospital today to help us with a lot of things and went to the appointment with the lovely mother of Zakaria and little Zakaria himself. Our little patient was quiet and peaceful during the whole appointment. Sometimes he showed his cute little smile.
Zakaria’s mother told the nurse that there was some leaking in his feeding tube (peg) during the night. The nurse was very friendly and kind and helpful with everything the mother wanted to know. Later, the doctor recommended that food intake is reduced during the night when there is a leak because maybe the reason for the leak is that he is receiving too much food at night.
Cute Zakaria has a small inflammation at the site of the feeding tube or peg. The nurse recommended a specific ointment for treating that. All the medical staff in the hospital who know little Zakaria and his friendly mother, were so happy to have seen them today.
We found out that Zakaria’s mother has an impressive Hebrew vocabulary since she had to spend such a long time in the hospital with little Zakaria. After his appointment was done, Zakaria’s mother was asking if she could go to the mall in the hospital because she wanted to get some things for herself. So she went and I took care of this precious little boy. After a long hospital day, we returned to the Erez border crossing to bring them back to Gaza. There we waved them off, knowing that they will come back in two months for a follow-up.
We look forward to the lovely opportunity of seeing them again. Please continue to pray for this precious little boy and his lovely mother.
Today was one of the days in Sheba hospital when a lot happened. Just when I didn’t know how to divide myself by three because three of our children were in Echo-cardiograms at the same time and the doctor wanted to talk to me about one of the children. I was thankful when Co-worker Sebastian came at just the right time. The Lord knows exactly what we need even before we ask him.
Our sweet little Zakaria and his extremely kind mother had to travel from Gaza to the hospital today for an Echo, an ECG and a stomach examination. Co-worker Sebastian was with the loving mother and her sweet son in the Echo, while I tried to have the examinations and conversations with the doctors with the other two children.
Sebastian said that Zakaria has been one of the most relaxed children he has accompanied so far during an Echo and ECG. The Echo showed that Zakaria’s little heart is very weak, so he has to continue taking his medicine as before and nothing has changed with that. Due to the fact that the Echo and the waiting for the doctor took so long today, the loving mum and little Zakaria were not able to keep their appointment for the abdominal examination. Therefore, co-worker Sebastian and I brought them to our community house in Jaffa today where they will spend the night and make their rescheduled appointment tomorrow.
It was nice for Zakaria, his friendly mother and co-worker Alena to see each other again. Everyone was happy to see them again. Zakaria’s mother is a very relaxed and calm person with a cool sense of humour. When co-worker Sebastian and I put her in the car today and told her to please wait, she didn’t complain at all that it took us about an hour to get back to the van with another child to transport along with them. The lord also knows that we needed her patience today.
Please continue to pray for our little Zakaria and his kind mother.
Zakaria returned to Gaza today after five days of being monitored and scheduled check-up appointments. In a little under a month, he will return for an Echocardiogram and Gastroenterology consult.
He has grown so much in these last months, and we can’t wait to see him and his mother again.
Zakaria’s life is an incredible gift from God; it is hard to believe this was the same boy who was so near death in September, and is now flourishing. There are no words to describe my joy over his life and the state of his health. Thanks be to God that when his survival seemed beyond hope in September, that these moments of Thanksgiving awaited us.
It was joy to welcome back Zakaria today! He was discharged to return home to Gaza about two months ago and has returned today for follow-up exams in the coming days. After a long, hard stay in the hospital this past summer and fall, just seeing his beautiful, smiling face was amazing. His mother’s meticulous care of him has ensured that he is doing really well.
When we got to the hospital we had to wait a little while for Zakaria’s hospital room to be made ready, so we sat outside and drank coffee from the small shop near the Children’s wing of the hospital. For the families coming out of Gaza, the days are very long. They have to go from their house in Gaza to the Gaza/Israel border, through intense security, an (at least) hour-long car ride to the hospital, and then wait some more at the hospital until things are settled. This makes the moments where we can give them some respite from an otherwise chaotic day, is something we Shevet workers all try to find ways to do.
After a rapid Corona test which was thankfully negative, we went up to the room prepared for Zakaria. Interestingly, most of the staff recognized Zakaria from his previous stay.
Please pray for Zakaria as he undergoes these rounds of tests! For all that he has gone through, such as being on the ECMO machine, please pray for God’s continued grace, that little Zakaria’s body would continue to prove resilient.
The first thing we saw entering Zakaria’s room this afternoon was him looking up at us expectantly from his car seat. Somehow he knew that after three months at the Sheba Medical Center it was time to go home! Alongside him were copious amounts of medication and equipment put together by the dedicated Sheba nurses and doctors, with support from the Shevet community.
On our way to the car virtually every one in the unit came out to to embrace Zakaria and mother with an outpouring of love:
On the drive home we talked with the mother about the calling of the people of Israel to be a blessing to all the families of the earth, and she could only acknowledge it was true now in her own experience.
Zakaria had a P.E.G tube placed because his oral feeding has not been enough for him. He continues to struggle with restlessness, so please pray for him.
His beautiful mom is doing a wonderful job taking care of him. We pray that soon he will be able to be well enough to be discharged back to Gaza!
Zakaria was receiving physiotherapy today, and it was so nice to hear from coworker Claudia, that Zakaria was crying less and even smiling at times!
Zakaria is still waiting for many various tests to be performed. We hope that his mother would be able to find rest and to be filled with peace about Zakaria’s health.
We hope that Zakaria one day will be filled with so much joy, and that he would smile often.
Today, at Sheba Medical Center, I had the privilege of holding Zakaria for the first time! As I held him I was praying silently in thanksgiving to God that this was happening; one of the hardest things I’ve experienced was awaiting his surgery to come off of the ECMO machine, and now today I held this sweet boy.
It was a few minutes before he wanted to return to the much more familiar arms of his m0ther, but at any rate I treasured this time. He is still struggling with restlessness, but after many inquiry tests, the best hypothesis is that his restlessness is doe to an intense period of post-operative care, and this will take time for him to adjust and situate his surroundings.
I was recently reading from the works of a Catholic theologian. He expounded on the metaphysical significance of the first experience a person has in beholding the love of their mother. Amidst all the trauma Zakaria has undergone in his first few months of life, his mother is a place of love and safety, and I pray that this would bring him peace.
Today , as I was with co-worker Alena in the Sheba Medical Center to visit Zecharia. We found him peacefully sleeping on his mother’s bed which is what he likes, according to his mother. He is still receiving some food by tube, hoping this will help him to relax.
While we were there, Zakaria’s mother and father were also visited by an Israeli husband and wife. The Israeli man and Zakariah’s dad had work connections they discussed with each other. Zakaria’s mother looked peaceful during this time.
Please pray that this peace continue for the time laying before them, and that they feel covered from many prayers.
When I was heading to the Sheba Hospital Intermediate Care Unit and was in the elevator, as the doors opened, I was surprised to see the mother of Zakaria standing right in front of me.
Zakaria has spent all of his time in the Intensive Care Unit, but today he was transferred to a lower Acuity Unit. We exchanged greetings and she welcomed me to see Zakaria.
It was my first time seeing Zakaria, and I am thankful for the opportunity to have met him. Zakaria is a strong fighter. He was without oxygen support today. His mother has been working with him to improve his movement and strength. His eyes were able to follow the little mobile hanging above his bed,
which included the snail in the above photo. We hope that Zakaria’s heart function will continue to improve. We praise God for sustaining his life.
Thank you so much for your continued prayers for this little one.
I found Zakaria today still in the PICU, but off of the ventilator and breathing on his own! His mother seemed very happy for our visit.
Zakaria has made much progress in the past few days. He has been weaned off the intravenous medications previously required to keep his blood pressure normal and his heart functioning. In fact, today his mom was allowed to hold him and offer him a few drops of milk from a bottle!
This amazing, resilient little guy still needs many prayers: his brain has been affected by the days and weeks of low blood pressure and oxygen levels; he could still lose part of his fingers on his right hand due to the many days of extremely poor circulation; several of his organs still need to recover; and his neurological or brain function outcomes are uncertain.
So please pray for little Zakaria and also for his sweet mother, that she will be wrapped in loving arms during this prolonged time of concern for her son and for the strain of hospitalization to be eased.
The last blog I wrote on Zakaria was when he had surgery to be taken off the ECMO machine. He was thankfully able to be weaned from it. Weeks later, he is on mechanical ventilation and his heart function remains poor. There is no possibility of further intervention until it improves.
In the previous blog there was so much more I wanted to articulate but found myself at a loss for words the night after these events. Things can change very fast. On his surgery day I didn’t know Zaria was having surgery until a few hours before. I wasn’t fully prepared for all that might happen to him. It was also a catheterization for another child, and these procedures overlapped by a half hour or so.
While I was waiting with another mother, Zakaria’s crib from the ICU was wheeled into the operating room, his mother wept as she trailed behind him. Before he went beyond the sliding doors to the theater itself, one of the nurses said to his mother that she could kiss him. His mother sobbed, said his name with a pained voice, and bent her head to his to kiss him, his hands, his feet. I went to her and brought her to sit down, as we settled in for whatever the next hours would bring.
One of the nurses who came out from the OR, double-checked with me that I knew the gravity of the situation, that it was extremely precarious and Zakaria might not make it, and to make sure Zakaria’s mom understood this. The statistics of coming off of ECMO are only 50/50, and this I kept in mind. After a while Zakaria’s mother and I conversed somewhat, then a lot. Initially I was stressed about the logistics: what happens if he doesn’t make it, I’ll have to translate that to her, what about bringing her back to the border, what paperwork must I get for him to go back, and other thoughts like this.
But within a few minutes, it’s not that those concerns disappeared, rather the Spirit worked in me to engage with this woman sitting beside me. Somehow my attention, though scattered before, was now fully on her and how to support her. I have no other explanation of how the time passed, other than we spent it by sharing so much of our lives. She showed me pictures and told stories of her life in Gaza with her other kids. She is a master chef and loves to cook and makes everything from scratch. She has a teenage daughter with an incredible aptitude for interior design. They, like many Palestinian families, go on family trips to the beach, and the beach-side coffee shops. We talked about homeschooling kids or sending them to public school and many other things. She came alive when talking about her family. Her love for them radiated from her expression and words. This time made me love her more but simultaneously to dread more the possible outcome of the surgery.
So when two hours had passed, and Zakaria had been able to come off ECMO by the end of it, I was surprised and overjoyed. But I don’t think either of us were prepared for what his body looked like after the surgery. They allowed me this once into the ICU, and his mom came out of his room and asked why his hands and feet were blue. I’ve seen children with blue discoloration before, but never with extremities that are so deeply blue it looked similar to the end stages of frostbite. When I looked at him my brain didn’t comprehend what I was seeing. We were able to inquire via an Arabic speaking nurse the reason for this, which was due to a lack of oxygen circulating to his hands and feet.
We sat together in his room for a few minutes, and I could tell she was disturbed. A lot of the hope that came from him surviving the surgery and in many ways beating the odds of getting off ECMO, now dwindled at the image of his body
Now two weeks on, he is still in critical condition. Today at the hospital, I saw his beautiful mother who was gracious and kind as always, and my heart hurt more. What she must be experiencing, I can’t imagine. Suffice it to say that even if I could, no words would grasp the breadth and width of it. But I think that at precisely the point at which words fail, that is the place where the power of prayer in its rawest and most true form, begins!
I went up to the sixth floor of Sheba Medical Center in the middle of the day, and found many of the mother’s from Gaza sitting together in the waiting room there.
Zakaria’s mother was among them. She told me Zakaria was having surgery today as a means of taking him off the ECMO. As planned, nurses took him into the OR at 2:30 p.m. His mother, weeping, kissed him goodbye before they closed the doors.
This would be a risky surgery, but they had hope his body would work without the machine. Around two hours later, he came out of surgery having been successfully weaned. This good news was balanced however with the seriousness complications caused by having been on life-support, everything struggling for its proper order within his little body.
This is a really critical time for Zakaria, so please, please keep praying for him. He does not look well, and the dark blue shade of his feet and hands was very upsetting.
Sweet young Zakaria from Gaza remains on ECMO (full cardiac and respiratory support) in the PICU at Sheba Hospital.
The nurse coordinator and nurse for Zakaria gave us somewhat discouraging news when we visited there today. A special medication infusion was given to him yesterday, then an attempt was made to wean him off of the ECMO support. Unfortunately, his heart did not respond well, and he was quickly returned to full support. He remains in critical condition at this time. Fortunately, he has not suffered any serious complications from this support.
In the natural, this is quite concerning for Zakaria and his family. Please join with us in prayer for his healing, and comfort and peace for his family.
This morning at Sheba Medical Center, co-worker Alena was met by Zakaria’s mother, who shared that Zakaria was in surgery. We found it strange that Zakaria was again in the operating room, just two days after surgery. We inquired and were told that Zakaria was urgently taken to the operating room to be placed on a life-support machine, ECMO. This will allow his heart and lungs to rest, while the machine is operating for his organs.
We were able to spend time with Zakaria’s mother and all the other escorts from Gaza that currently have children in the Sheba Intensive Care Unit. We shared biscuits and beverages, talked about life and supported each other. Zakaria has beautiful siblings who truly love Zakaria. His mother joyfully showed Alena and me photos and videos of Zakaria’s sister sweetly holding him. At one point, Zakaria’s mother kindly offered words of encouragement and support to another mother in the waiting-room circle, also facing a difficult time.
God is sustaining Zakaria’s life and is in control. We must simply surrender and trust. Zakaria’s mother had this peace, to trust in whatever God wills for Zakaria’s life. Please pray for Zakaria during these critical days of his life.
Praise God, Zakaria was finally transported from the operating room to his mother after a long, eight hour surgery. His little four-week old body looked so small compared to the large, adult-sized bed. The surgeon confirmed it was Zakaria and assured us that he was well.
Please continue to pray for Zakaria as he recovers from this major operation. Please pray for Zakaria’s family, and the other children in the family waiting at home in Gaza. Please pray for strength for the mother as she supports Zakaria.
Zakaria came urgently to Sheba Medical Center last night with his mom. Please pray for them as they prepare to go into a big surgery tomorrow.
When I asked medical staff about his operation, they said it would be a full repair: an arterial switch for his TGA, a VSD closure, and correction for the Coarctation of Aorta; all of this and he is he’s just under two months old.
His sweet mom seemed quite nervous, so please pray for strength and peace for her, and that our staff could practically minister to her tomorrow. Thank God for the doctors who will do this surgery and for our Gaza team who worked all weekend for Zakaria to be able to come and receive treatment.
