Needing another catheterization
As we drove to Sheba Hospital for Lalo’s echo appointment today, his mother showed us the videos of her wedding. She is missing her family back home very much, and this was one of the things she is reminiscing about, as she thinks about her family.
Lalo was a changed man today, during his echo he didn’t cry and it was easy to keep him calm using a video and milk. The doctor also heard from mum and me that he is a changed boy at home as well; sleeping well, not crying or screaming, and generally sociable and happy.
The doctor explained to us thoroughly that Lalo’s echo showed that the right ventricle is showing signs that there is very high pressure in his heart, and it means that following a meeting with the medical team, they are sure that Lalo cannot return to Kurdistan with his heart in this condition, and that they think a catheterisation will help him by dilating his pulmonary arteries again; they are very small. The doctors would like to place a special stent which will keep the arteries open.
Thank you for your prayer support for this family and especially for Lalo.
It is a happy day for Lalo and his mother today. After three weeks in Sheba Hospital, they could return back to our Jaffa community home. Another Kurdish family also staying at our community home, came outside to welcome us as we arrived in Jaffa. There was so much joy, like a very special moment.
“Ballou’s” recovery took some time. After his last Catheterization, he needed oxygen, a blood transfer, his hemoglobin was too low or his heart was beating too fast. But the doctors wanted to wait and see how Lalo’s condition would develop. The balloon dilation did bear its fruit after all, which is what the doctors had hoped to see. The mother of Lalo had waited for her beloved son to improve and when she did not see improvement, she became discouraged.
But thank you all for your prayers. The happy day did eventually come. Ballou is doing well, without oxygen assistance and has been discharged to Jaffa. Oh happy day!
Please keep praying for this lovely family.
If he's well, then I'm well.
For volunteers serving at Shevet who don’t speak much Arabic or Kurdish, it’s always very nice when the parents of the children we are caring for, speak a bit of English like the mother of Lalo does. It makes it easier to get to know each other. We all miss little Lalo and his mother a lot in Jaffa.
When I went to Sheba Medical Center to visit her and our lovely “Ballou” today, it was nice news to hear that Lalo was moved to the Secondary Pediatric ICU over this past weekend. His mother is always happy to have one of us visiting her and is always telling us to give her greetings to everyone back at the Jaffa community house. When co-worker Carina or I are visiting with her, she is often communicating in German, which is lovely. She learned a bit from her husband who lived in Germany for ten years.
She was able to tell me that a balloon dilation procedure that the doctors used during last week’s catheterization, did not produce its wanted result, and that Lalo’s heart is beating very fast.
Now the doctors want to wait over the next few days to see if the procedure will yet bear fruit. If it doesn’t do so, he will need another catheterization. She is very worried about it and wears a lot of concern on her face. When I asked her how she is and if she is sleeping well at night. She told me, ” If Lalo is good, then I’m good. But if he’s not, then I’m not, and the same with my sleeping.”
Please keep this lovely mother and our lovely “Ballou” in your prayers.
Successful Catheterization for Lalo
Precious Lalo had an interventional Catheterization today at Sheba Medical Center. It was a success, thank God.
The day started early for Lalo and his mother. We were waiting about three hours for the surgery to finish and Lalo to return. While we were waiting, one doctor was so nice to write a text message from the Catheterization room, so Lalo’s mother wouldn’t worry. Such care for the mother!
And thank God, it was good news. Doctors made two balloon attempts in Lalo’s pulmonary artery. This should allow Lalo to receive better oxygen throughout his body.
After so much worry, we are so thankful to God, that He has everything in control, and now our lovely baby boy is doing well. He doesn’t need oxygen assistance now.
Thank you so much for all your prayers!
Our little Lalo is always called “Ballou” by his loving mommy when he cries and she takes him in her arms to help him calm down. Lalo’s mom is very worried about her little precious son because last night he experienced some Tachycardia. To get his heartbeat back to normal, Lalo was given medication twice during the night. Thank God that worked out well.
Another thing that worries Lalo’s mother, is that our little Lalo has problems with swallowing and because of that, he’s not eating enough. For this reason he has already lost 700 grams. In addition to oral feeding, he is now fed through a stomach tube to prevent little “Ballou” from losing even more weight and to regain his strength quickly.
It is always nice to see how much his mother loves him and cares for her “Ballou,” taking him lovingly in her arms when he cries and comforting him. Thank God, the little man does not need supplemental oxygen, his oxygen levels are very good.
Please pray for our precious “Ballou” and his worried mommy, that her beloved son will get better little by little, and that she will have peace and trust in God.
Improvement little by little
Our lovely Lalo was moved to the Secondary Pediatric ICU on the fourth floor of Sheba Medical Center this past Friday. He is getting better.
When I came today for a visit, his mother was worried about her beloved son. She was telling me that he had an EEG done today and one doctor from Neurology examined him. His mother did not understand why and with insufficient communication between herself and doctors, her heart is rushing with concern for Lalo.,
But a nurse who spoke Arabic was able to help with some translation. Lalo’s mother received long sought-after information as to what is happened with her son, also what the doctor has so far done. Doctors believe that Lalo has failed some reflexes. But after his examination today, they found our small boy healthy! What a blessing it was! His mother calmed down directly after receiving this news and was smiling before the end of it.
Lalo’s heart is working very well after the surgery last week. But he has developed some edema in his lungs. He is getting some medicine against it every day.
We hope to see our lovely Lalo soon coming back to us in our community home in Jaffa, as a result of all your prayers. Thank you for your support.
It was a special moment to see Lalo’s mother this morning at Sheba Hospital. Despite not seeing her for only one day, I truly had missed her. So when she responded to my and co-worker Alena’s message, asking if she wanted to come and sit with in an upstairs waiting area, we were very pleased. I was not expecting her to burst into tears as she hugged with Alena. A long embrace, with so much said, silently.
Lalo’s strong and beautiful mother has apparently come to realize it is not the case that Lalo’s surgery yesterday would fix his problems for life. Instead, she learned that as he grows, the newly-placed valve of yesterday’s surgery will need to be replaced, a few times perhaps, during his lifetime.
Lalo’s mum was very upset to think of Lalo’s future, filled with surgeries, for which she would have to travel each time, making the situation so difficult for her family.
Thankfully Lalo is recovering well from this surgery. She sent this photo, cuddled up in a blanket, and now he is extubated. He has started to drink milk already!
Please pray for peace in the heart of this beautiful mother.
Lalo's surgery, a big success
Our beloved Lalo had his big surgery today in the morning. His mother was waiting for this day for so long a time. Thanks be to God, she had the patient endurance and could a little bit enjoy the time with us in our Jaffa home.
Lalo’s surgery took about five hours. His mother was in tears in the waiting room. I could feel the whole weight of worry about her son as we hugged each other. She needed some support. Our Lord was with us. We prayed together for Lalo’s heart, for the doctors and nurses. In the midst of this, I received a text message from a co-worker,“ This is the day which the Lord has made; Let us rejoice and be glad in it.” ( Psalm 118:24). This was truly God’s provision.
After we prayed, the mother wanted to have breakfast with me. The day before, she made an extra cake in anticipation of this event! So we spent the time talking, looking at family pictures, and sometimes conversing with other mothers in the hospital. We had such a good conversation while waiting for her blessed boy.
Two hours before Lalo came out of the surgery, a doctor visited us. He told us that the surgeon was almost finished the intervention successful. What a great announcement it was! The doctor explained what they did for Lalo’s heart, that it could be everything was repaired. But what Lalo’s mother did not expect, was that the pulmonary valve was replaced by a biological valve, which after some years, would have needed to be replaced. This was a stunning piece of news as well, the mother was so thankful for this skillful and insightful help! She was saying this again and again.
Now Lalo is recovering well in the Pediatric Cardiac ICU at Sheba medical centre. Please keep praying for his recovery and for the strength of his mother to be renewed as well.
Lalo and his mum travelled to Israel, arriving last night, with four other Kurdish families. Lalo’s mum is very happy to have arrived, firstly as she is concerned for the health for her baby. Lalo is her fourth child; she has two boys and two girls, and all the others are healthy and well. Just Lalo, who is almost two months old, has been diagnosed in Kurdistan with Tetralogy of Fallot (TOF). His oxygen levels are very low. He looks very blue, and he needed oxygen on the flight, although he is stable now.
The other reason mum is happy to have arrived is because she likes to meet new people, and practicing her English and German. I told her that although she is an Arabic and Kurdish speaker, maybe she would also learn Hebrew in the time she is here, as she is very clever with languages. Please pray for Lalo and mum’s time in Israel, for a good surgery and for peace in their hearts.