A little more patience and weight needed
Hena went to Sheba hospital today for another Echo and to check if she is ready yet for her catheterization. She enjoyed her Echo and wasn’t crying because her uncle, who is with her all the time, took loving care of her, making sure she wasn’t crying.
In the Echo today, the doctor could see both of her pulmonary arteries which is a good sign. However, Hena is weighing only 3.9 kilograms now which is still not enough for her to undergo a catheterization. The doctor is very helpful and wants to make sure that little Hena will be okay for her cath.
Hena’s uncle needs to be patient for at least two more weeks. They scheduled an appointment for a catheterization for lovely Hena in two weeks, hoping that she may have gained enough weight by then.
Please pray for this and for ongoing patience for her uncle.
Today, Hena had her appointment with the nutritionist as I wrote in her last blog.
Before we had another blood test, Hena was staying calm because she really likes the sugary water which she gets in moments like this. While waiting for the other appointment, she was resting on my lap and I took these pictures, where you can see that she was very happy today.
We entered the nutritionist’s room where it took a brief moment for the doctor to recognize Hena and her uncle from their earlier time in the hospital. We explained the situation that Hena is not growing although she’s eating normally and also sleeping well, so no obvious problems.
Hena’s uncle is preparing a special mix for her milk, which now will have some changes. We hope and pray that these changes will bring about the effect of Hena growing at least a few hundred grams to have her catherization and surgery.
Today, my co-worker Sabrina and I took Hena and her uncle from our community house in Jaffa to Sheba hospital. From there, it was a full day for Hena.
First, Hena had an echo, then an ECG, her oxygen saturation was measured, and she was weighed. It was the same as last time, where Hena was very interested to look at the echo screen to check her own heart, which was funny for all of us in the room.
Everything looked quite good for Hena. Her doctor said her echo results are ok and as expected for her heart situation. However, last time her weight was 3.7 kilos and now, one month later, she weighed in at 3.5 kilos. This is a problem because the plan is and was that she would gain weight to have a catherization and a surgery which would require growing a little bit.
We and also the doctor didn’t know she wasn’t gaining. In general she’s doing well, eating normally, but still isn’t gaining weight. So that’s why she will have some changes with her medicine and also an appointment on Wednesday with a nutritionist to maybe also do some changes with her milk.
Please pray these changes will work out as planned, that Hena will grow, and can have surgery soon. Please also pray for her uncle. He’s taking very good care of Hena, making her milk recipe, all her medicine, and looking after her all day and night.
Today I went to Sheba hospital with Hena and her uncle where she first had an echo. Although we forgot her pacifier in the car, she managed to stay calm for most of the time. Especially it was very funny and cute when she heard the sound of the echo machine and was then looking on the screen to check herself.
After this, the doctor told us that she will need a catherization and a surgery in the future. Today she already weighed 3.7 kilos which is a lot compared to when she arrived but she still needs to grow and wait a little bit for the next treatment.
She also had a blood test where it was again difficult to find a vein to get blood because she is so small. After the nurse found a vein, it was drop after drop which came out of the needle because the vein is really small.
Finishing in the hospital, we all went to our community house in Jaffa and had lunch with the other families there. After that, we made a small trip to the beach next to our house which the uncle and I enjoyed a lot.
Hena could put her foot in the sand the first time. In the afternoon, we returned to our guesthouse in Jerusalem. All in all, a very nice day!
Please pray that Hena will continue to grow, so that she can have her catherization soon.
First time outside hospital
Today, small Hena finally got discharged from Sheba hospital. She and her uncle arrived urgently by plane in the beginning of April, and stayed in the hospital since then. After my co-workers Alena and Georgia brought them to our community house in Jaffa, Georgia told Hena’s uncle about the continuation of Hena’s medicines.
When we thought we were ready to leave for Jerusalem, Georgia quickly ran into our community house and brought out larger-sized clothing for Hena. Since their arrival, Hena has grown a lot and doesn’t fit into most of her old clothing.
We drove to our Jerusalem guest house where Hena and her uncle will stay with us for a little while. Then after some days, Hena will have a follow-up appointment back at Sheba hospital. Please pray Hena will stay in a good condition til then and beyond, we have a faithful God!
Dealing with an infection
As Hena has an infection in her blood, yesterday she had a PIC inserted to administer the antibiotics which she will need for a few weeks. She was back in the secondary ICU at Sheba hospital today. It was especially sweet to see that her uncle had dressed her in a blue fleece with stars instead of the normal hospital pajamas. Please continue to pray for Hena’s recovery and for her uncle as they stay a few more weeks for the antibiotic treatment.
Hena moved down to the intermediate care section at Sheba hospital during the night last night. She is doing well, but today has a fever. Her uncle is being very kind and helpful to the other Kurdish families in the hospital, many of them speak only Kurdish and he can help with translation. Thank you for your prayers for Hena.
When I visited Hena today at Sheba hospital, I saw her uncle and asked how he was doing. His response was that if she is good, then he is good. They are still in the ICU, but thank God they are both doing well as Hena has been extubated since her surgery last week. She is with supplemental oxygen now and is also slowly being taught how to take milk from a bottle. Hena’s uncle said he is keeping in contact with her parents often to let them know how their precious girl is doing. Please continue to pray for Hena’s life as she recovers.
Today I visited Hena and her uncle in the Sheba hospital ICU, just one day after she had her surgery. Hena’s uncle told me the surgery was good and they are waiting now for her recovery. Her uncle also said Hena’s parents are very, very happy about the good news of her successful surgery. Yesterday he explained that Hena is a triplet, so he came to support the parents and especially the mother, who is caring for the other children. I’m very glad he was able to come here and was willing to help the family in this way, so that Hena could have her surgery. Would you also help us by joining in prayer for her recovery?
Hena, just two months old, has traveled from Kurdistan to Israel with her uncle, arriving at the airport this afternoon. The journey was long, with a stopover in Dubai, but thank God Hena remained in a good condition throughout her travel.
Hena is one of triplets, and today the scales told us that she is just 2.4kg. It was good to be able to bring her straight into the expert hands of the ICU medical team of Sheba hospital. The medical team needs to carry out its assessments before being able to make a plan of what help they might be able to offer little Hena. She has a complex cardiac condition with multiple defects.Thank God that He made a way for her to enter Israel and please pray that she will find healing here. Please also pray for peace for her mother and family back at home who surely miss her dearly, and for rest for her uncle who has stepped up to take on the special responsibility of being Hena’s chaperone in this huge stage of her life.