Please also be praying for how we will find and purchase a feeding pump for him to take back to Kurdistan, which will be necessary into the future.
Doctors carried out a scan of his abdomen and the PEG, all were ok. He was also examined by the surgeon for the PEG surgery. The hypothesis is that the speed of the feeding yesterday, resulted in some milk flowing out into the abdomen.
Mohammed’s symptoms are resolving today and he is slowly feeling better with some antibiotics. He is still very tired and sleeps a lot. Despite this incident, Mohammed’s mother is very calm and optimistic. She seems very grateful to us.
The doctors are saying the feeding pump will still be necessary for Mohammed. So please pray for an end to any complications.
Mohammed has been very restless since being disconnected from the ECMO, crying all the time, unfocused on people and objects, and unable to drink milk orally. As it has been going on for a while now, he had a brain MRI at the end of last week. Today we heard the result which showed that there is an injury to a part of his brain. It can be a complication of being on the ECMO; the machine which helped to save his life.
Thankfully, the doctor described that his condition presents as more “mild” impairments, and is hopeful that in time, and with complementary therapies, his brain can heal and recover.
At the moment, it is both calming for his mother to have an answer, but also upsetting to see Mohammed upset, and to hear that there is no quick fix medicine able to cause an improvement in his condition. Still, optimistically, she says she is hopeful for his recovery.
The word in Kurdish for happy is ‘Dilkhosh,’ or ‘good heart,’ literally. I think it’s the perfect word to describe this picture. Mohammed has been extubated and is being weaned from a long bout with sedation.
Maybe asking why one lived and the other died isn’t the right question. I don’t think there is an answer. We can trust God in all things. We can take the gift of life for Mohammed and continue to pray for his recovery.
She prays this many times throughout the waiting times during surgery. This surgery was very quick, only taking about an hour to achieve what his mum had been praying for since his second surgery, closing Mohammed’s chest.
It was a big step today for Mohammed, as he had surgery in which they disconnected him from the ECMO machine. The surgery required around two hours. The waiting time was really quick compared to the long surgeries Mohammed has had before. We went outside for some time which was lovely, and even though circumstances with these children are often difficult, I enjoy spending the waiting time with the lovely mothers a lot; it helps us to get to know each other better. Mohammed was taken out of the surgery after around two hours, and his mother was very happy.
Mohammed has a pacemaker now. His doctor said he needs to have it probably for a few days because his heart is not working well yet on its own. His chest is still open, but he is stable. Please continue to pray for Mohammed’s precious little life and for his lovely mother.
Mohammed continues to be attached to ECMO since last night. He is stable and the doctor told us that the machine does appear to be helping him.
Please continue to pray for Mohammed’s heart to grow stronger..
Little Mohammed has had a difficult time during the weekend. We heard today that his blood pressure has been dropping very low; a sign that the heart is extremely weak. In order to help his struggling heart, the doctors were discussing whether to add additional support from the ECMO.
Shortly after, we received a phone call to bring Mohammed’s mother into his hospital room to sign a consent form: they had decided they needed to take Mohammed into the OR this evening to add more support from the ECMO.
Late last night, at Sheba hospital, little Mohammed was put on the ECMO machine because the function of his left ventricle was not good.
God willing, he will be on the device for a few days as it takes over the work of his heart and lungs to give his body a rest. Please pray for his life in this critical time.
His mother is extremely happy. We walked to the in-hospital supermarket, and her happy and joyful heart spilled out often as she declared almost everything she saw to be beautiful and special.
He was happy and interactive today in the ward before going into surgery. It wouldn’t be easy to tell just by looking at him that he had such a critical heart defect, requiring two open heart surgeries!