Kenan was doing well today and could even sit in his stroller for a while. He played with his stuffed animal and tried to tell us some stories in his own baby language. His nurse told us he is on an external pacemaker and they will track his progress for the next 7-10 days until they decide if he needs a pacemaker implanted. He doesn’t need oxygen support anymore. Kenan’s happiness brightened the day of all the volunteers at the ICU today and we’re happy that he was so good today.
Coworker Elise and I were so glad to hear from Kenan’s doctor at Sheba Hospital today that Kenan is stable, only needs a minimum of oxygen support, and is slowly improving after his big surgery a few days ago.
Right now, Kenan still has a long-term ECG, which should help the doctors to check on the electrical problems in his heart. The doctors even consider giving him a pacemaker, Doctors are still concerned about Kenan’s electrical problems in his heart and they’ve considered placing a pacemaker for him. But for now it’s important for Kenan to fully recover from his surgery.
Earlier his mother tried to explain to us that Kenan was really tired these last days. We could see she struggles with seeing her son like this in his bed instead of jumping around and playing. She really cares for her son and before we could take a picture of him, she had to make sure to brush his hair.
You can continue to pray for Kenan that he keeps improving and even as he continues his treatment, that everything goes well for him. Please also pray for his mother who is really worried for him.
Our little hungry boy was waiting until 1:30 until they finally took him to OR. Now there were starting long hours of waiting and praying together. Kenan’s mother was understandably nervous but very strong. After five hours the doctors told us that the surgery went all well and they are closing his chest now. During Kenan’s last echo, his doctor wasn’t sure whether they could fix his heart or if they will have to reroute all the blood in his body, as they do in single ventricle defects.
Today after the surgery the doctors told us that they were able to successfully fix his heart and to the Tetralogy of Fallot repair surgery. They patched the whole between the lower chambers of the heart and widened his pulmonary artery. We are very thankful for those great news!After another hour of waiting,
Thank you Lord for this successful surgery! Please help Kenan to recover well!
When I came in to visit him and his mother, he was pulling himself up to stand at the side of his hospital crib, and played a lively game of “I throw, you fetch,” with his mother.
He would throw a toy down to the ground, then his mother would give it back to him – again and again and again. I blew up one of the hospital gloves for him to play with, and he was also very excited about that. He tried very hard to pop it.
It’s hard to believe that this lively boy was rushed to the hospital with low oxygen just two days ago, and that even now his oxygen is only 75%. However, that is the way it is – and he needs his next surgery as soon as possible. Fortunately, he is first in line for surgery tomorrow morning. His mother is very worried about his surgery.
Please pray that all will go well, that God will guide the doctors’ hands and keep little Kenan safe. Please pray that God will be with Kenan’s mother, to comfort and strengthen her as she worries about his surgery.
Late in the evening, Kenan’s very concerned mom brought him over to the staff house. After a month of increasingly frequent tet spells (episodes of oxygen desaturation), he was having a much more severe episode than usual, struggling to breathe and with a very high heart rate.
We brought him straight to the emergency room at Sheba. During the car ride, Kenan’s oxygen slowly came back up and his breathing and heart rate slowed to normal. Even so, when we arrived at the ER, the doctor decided right away to admit him for monitoring.
We waited several hours for a room to be ready for him. This was no problem for Kenan, who is the happiest child I’ve ever seen in the hospital. He loved the plastic shofar the nurse gave him to play with,
This morning coworker Jan and I picked up our good friend Kenan at Erez. His mother directly greeted me with a big smile and a “Marhaban Um Kenan,” as we are always joking that we switch roles and I am Kenan’s mom while she is volunteering at Shevet.
Before Kenan had his echo, his mom already told us that Kenan was in the hospital in Gaza a few days ago as his oxygen levels dropped to 50. Also in the echo, his numbers haven’t been very good and so his doctor decided that it is time for his next surgery. The doctors will discuss his case this week and then call him soon for a cath before surgery or directly for surgery. In the meantime, Kenan and his mom will wait with us in Ashdod and we will enjoy our time together with them.
Today, coworker Elise and I went together with Kenan and his mom to an appointment in the dietary clinic at Sheba Hospital. Because we were really early, we still needed to wait for about two hours. We used this time to learn some Arabic with Kenan’s mom and she taught us some new really useful words. She even told us that she taught the volunteers yesterday also some new words and it was so nice to see how she enjoys helping us learn Arabic.
Kenan was really funny today and was smiling a lot. He enjoyed faking his cough and seeking all the attention which made us and his mom truly laugh at him. We really enjoyed waiting with them for their appointment.
After asking some questions the doctor said that Kenan is improving well. He‘s eating well like he should do and gained a little weight. In three months, Kenan will have to return for a follow-up appointment.
Kenan’s mother was a little worried about his bowel movement, but the doctor assured everything is okay and that she doesn’t need to worry.
A CT and neurological check-up. That was today’s plan for eleven-month-old Kenan. Because of the CT, he couldn’t have eaten anything for six hours beforehand and his mood wasn’t the best. While we waited a long time for the CT, Kenan kept crying, his mother showed strong nerves. She pushed the pram up and down and even helped coworker Lena and I to learn some Arabic vocabulary.
After Kenan was done with the CT, the doctors observed his condition for 1 1/2 hours in the recovery room. There he slept well and, thank God, was able to leave the room refreshed. In about a week we will receive the results of the appointment, for which you are welcome to pray.
But that was not the end of the day for Kenan. In the neurology clinic, for example, the doctor tested his ability to respond to stimuli and asked the mother questions about his current stage of development. Thank God, Kenan has been making good progress. He still applies to catch up, but follow-ups are no longer necessary. It’s enough if his reflexes and motor skills are stimulated every day with exercises and toys. How beautiful it is to see God bringing improvement in Kenan – Let us praise the Lord!
This morning we brought Kenan and his mom again to Sheba hospital for another dietary appointment. Surprisingly, we saw that he was gaining weight which is very good. The doctor was still a little worried that he is not eating enough and was thinking about maybe placing an NG tube next time he comes, but first she wanted to talk to his cardiologist again.
I had a lot of fun with Kenan and his cheerful mother as we were waiting for his appointment. Kenan loved to play with me, so his mother joked that I am his mother today, and she is working for Shevet Achim. We were laughing a lot and enjoyed our time together.
Let us pray for his wonderful mother and especially for Kenan, that he will gain more weight back in Gaza!
Kenan didn’t show good numbers today, losing weight faster and according to his mother, doesn’t have so much appetite. The doctor knew this could be a possibility, and requested that Kenan stay with us in Ashdod. We’re glad to have these amazing people in our community home, so that’s good news for us.
The doctor will see Kenan next week and according to Kenan’s condition, they will consider the option of placing a peg tube. When he was hospitalized before, the doctors wanted to give him a peg tube in his stomach because he wasn’t gaining weight even at that time.
Today, young Kenan crossed the border with his mother from Gaza to Israel for an echo appointment at Sheba Hospital. They were relieved to get into the air conditioned van at Erez, as it was a particularly hot day.
Kenan is stable enough to continue growing older and stronger back home in Gaza while the doctors monitor his condition and wait for the best time to admit him for surgery. The doctor encouraged Kenan’s mother to feed him generously with oils and fruits to build his body up.
This morning coworker Jenny and I picked up little Kenan and his wonderful mother at Erez boarder crossing. He had a genetic appointment, including a blood test and a cardiac checkup, requiring an ECG and an echo. During the genetic appointment, Kenan’s mother talked with the doctor to find out more about her family and how to protect against this genetic disease in the future.
Later, after his echo, his doctor told me that Kenan still has a lot of different problems and that he still needs another heart surgery. He thinks that it is the best to have this heart surgery soon so he has one problem less and because his oxygen is still not very good. The doctors will discuss this in their next meeting. Also Kenan gained only 100g of weight since he was here two weeks ago. He will come back in one month for another echo and a dietician appointment. But for now he is stable enough to go back to Gaza.
His mom still knows a lot of people in the hospital because she was here with Kenan for two month previously and she was happy to see them again. After a long day in the hospital, Kenan and his mother were very tired when we brought them back to Gaza. She gave us a really nice snack in the car and we enjoyed our time with her. Lord we pray that you keep cute Kenan and his whole family safe in Gaza and that you give the doctors wisdom for this case.
When coworker Frank and I arrived on floor five of Sheba Medical Center today, Kenan’s mother was greeting us with a big smile and said, “We are going home!” Kenan was still laying in his bed, but his mother was already packing everything.
We talked with a doctor and he explained to us that Kenan will go home and come back to the hospital in two weeks. In this time, he should gain weight. They will check on the weight in two weeks and if he gained 3.5 kg, he can have his next heart surgery. If he doesn’t gain that weight, he will need a PEG tube to make sure he will gain the weight for his next surgery.
Kenan and his mother were now for nearly three months in the hospital. The time wasn’t always easy, with many ups and downs. In all that time, Kenan’s mother always tried to be joyful. Today she was even more happy to go home. With these treats you see in the picture, she went to all the nurses, doctors and other patients to let them be part of her joy. Also, all the people love Kenan and are good friends with both of them.
Kenan was smiling the whole day in the hospital and also the whole drive, as if he would know that he is going home. So he also enjoyed the time in the car, watching out of the window and smiling at me, whenever I turned around.
Because of the long time they spent in hospital, it took a while to write the discharge report. There was also the question if they should go home tomorrow, but Kenan’s mother insisted on today, so nothing will come in between, as so often happened before now. So, we arrived quite late at Erez Border Crossing and could see the sunset.
In the car she also thanked us all so much. It was always so nice to visit her with all the joy and love she spread. So, also a big thank you to her!
Both of them have a special place in all of our hearts. We hope and pray that Kenan will gain weight in these next two weeks at home, thereby qualifying for his needed surgery. Thank you for joining in prayer.
When coworkers Tatiana, Amelie and I arrived on floor four in Sheba Hospital, we saw Kenan and his mother waiting in the echo area. This mom has been here two months and she already knows a few words in Hebrew to communicate with the medical team and with us.
The doctor said that Kenan’s weight does not improve and also he has eating problems related to an existing neurological problem. They want to wait two more weeks to see if he needs a PEG tube or not. Today he had an echo for his heart and the doctors now wait for the results.
In the last few days, when needed, they had to fed him via sonde and the doctor said it’s not good to send him to Gaza with a sonde. The mom is missing her home, but she also doesn’t want Kenan to have a PEG. So, the decision for now is to wait for two more weeks, to see if he has improvement and won’t need a PEG tube. They might go to Gaza and back to the hospital again in these two weeks. But the medical team is not sure about this as he might not be able to come back at the right time.
Kenan did gain a little bit of weight, because he gets now very thick milk. This week is somehow his last chance to gain enough weight by normal eating. If it works he will be able to go home. But if it fails, the doctors consider a PEG tube so that he will gain weight. The doctor explained that his weight is a real problem.
Let’s pray for this special child and his mother.
Today, I visited Kenan and his mother at Sheba Hospital. A nurse explained to me that Kenan is losing weight. If he doesn’t gain weight this week, the doctors will consider placing a PEG tube to feed him.
Kenan’s mother showed me pictures of Kenan back in Gaza. He was very big and I could even see that he lost weight in the last months. She feels very sorry for her son. We talked a while and she is tired of the long time in the hospital, but she wants just the best for him and hopes very much that he does not need the PEG tube.
Today at Sheba Hospital, a feeding specialist came to see little Kenan. He decided that it is the best plan for Kenan to take milk through a normal bottle but one with a bigger hole. Also they want to add cornflour to his milk and see if he will gain weight then.
Today, coworker Amelie and I went to Sheba Medical Center to visit little Kenan. I was very happy to hear the doctors saying that he hasn’t had a fever in two days and that he is eating better. The doctors are monitoring his weight right now and if he continues to gain weight and eat well, he might be discharged next week.
I am impressed how, threw all this, Kenan’s mother is always happy and is in a good mood and I always have a fun time while visiting Kenan.
When I wanted to visit Kenan at Sheba Hospital today, he was not in his room. His doctor told me that he developed a fever again after he was doing better yesterday. They were trying to find out more about the reason for the fever and so they sent him to a chest x-ray. I went downstairs to meet him and his lovely mother and she was very said that Kenan is again not doing well.
Tomorrow it is already two months that little Kenan is in the hospital in Israel and it has to be such an exhausting and challenging time for his mother who is missing home, family and a significant holiday.
Let us pray that her time here soon has an end and that Kenan is finally improving!
Otherwise there is no big news. The doctors still want to wait on discharging Kenan until he eats better. It could be at the end of the week or next week.
Please pray for Kenan and his mother. It is not very nice for her to wait from week to week always with the hope to go home next week. We can pray for patience, joy and that Kenan will improve his eating skills and get them to a place worthy of discharge.
They also said that they are still not happy about how much he is eating and that they do have to wait again until they can discharge him. His mom was sadly not there and so I couldn’t enter the room and also not talk to her, but I’m sure it has to be very frustrating for her that she now has to wait again.
Please pray for cute Kenan and for his faithful mom!
When coworker Hanna and I visited little Kenan at Sheba Hospital today, we were really happy and surprised that he is now without his feeding tube. The doctors also did some other examinations and everything is good now with Kenan. He might be able to be discharged at the beginning of next week.
We’re all very happy about this great news. I really enjoy spending time with little Kenan and his lovely mother. They will be missed but we’re all very thankful that they can go home to their loved ones in Gaza.
Thank you Lord for protecting and blessing Kenan.
Yesterday they did a bronchoscopy and didn’t find what they expected to find between the airway and gastrointestinal tract. But they found something else and took a test of some kind, results are pending.
Now the focus is to try to make Kenan eat. They don’t want to feed him with the sonde. Today Kenan had a cardiologist appointment, and from a cardiology standpoint, Kenan should be allowed to return home. If he eats, he should be released. His mother is hopeful to this end. Let’s pray for them and especially that Kenan begins to eat by himself soon.
When we visited Kenan at Sheba Hospital today, his mom told us that he just came back from his bronchoscopy, and she is still waiting for results. She was quite happy today and also Kenan was looking at us and reacting to us.
We came later this afternoon again and asked a doctor if the results are back, but they are not yet and so we have to wait until tomorrow. Let’s pray for wisdom for the doctors and healing for cute little Kenan!
Today I went to Sheba Medical Center to visit little Kenan. When I entered his room, Kenan welcomed me sitting in his bed and his mom laughed out loud and was very happy. His mom is a very happy and funny woman and I really enjoy spending time with her.
The doctors told me that Kenan has again trouble eating without the tube. Every time he tries to drink or eat, he starts swallowing. To find out what is going on, doctors ordered an x-ray today. We don’t know the results yet, but please keep praying for him so he will be able to eat soon and can finally go home.
Today I visited Kenan at Sheba Medical Center. He’s doing well after he had some bacteria in his body in the last days. Today he had some exams and the doctors said that he can start drinking milk and eating again. He already started eating a little bit today but also still has his feeding tube in case he won’t eat again.
If he continues eating he can be discharged in a few days. I really hope that Kenan will keep improving and that he and his mother can go home to their loved ones soon. Let’s continue in praying for this little boy and his lovely mother.
The doctor told me that Kenan gets antibiotics right now because he had bacteria in his blood. Kenan still gets his milk through a sonde and is not allowed to eat normally. On Tuesday they will do another exam. After this the doctors will decide if he can start to drink milk again.
If this works out positive, he may be discharged at the end of this week. Let’s pray that he and his lovely mom can go home soon again.
His heart is doing well. The only thing that keeps Kenan from going home to Gaza right now, is that he has problems with swallowing and is presently receiving food via a feeding tube.
It’s always really nice to visit Kenan and his lovely mother. I always laugh a lot with her which makes me really happy. Please pray for the two of them, that they hopefully can go home soon and that Kenan develops his ability to eat and swallow normally.
Kenan’s doctors hope to discharge him from Sheba Hospital soon, but he is still not eating. His mom told me today that he has to receive all of his milk through an NG tube because he chokes and coughs it up when she tries to feed him by mouth.
The doctors think that Kenan’s low muscle tone may cause difficulty swallowing. Please pray that Kenan will be able to eat normally soon so he can return home to Gaza.
She is a very nice woman with whom you can laugh a lot and have a lot of fun.
It was hard for Kenan to swallow the liquid milk. The majority was going to his stomach, but a bit also was despositing into the lungs. So, they will change his nutrition to a thicker milk. Hopefully he can eat that better.
For now he is in the Secondary ICU and will learn how to swallow and eat. So we can pray that he will learn fast.
Also the physiotherapy with Kenan has helped him to improve. His body is still very floppy, but it is getting better with therapy. Tomorrow they will do the procedure with the sonde to see if milk is going into the lungs when Kenan is eating.
Let’s pray that also this area of struggle will resolve itself for Kenan. We can also pray for his mother, that she gets enough sleep and strength.
Kenan still has some areas where he struggles. He had an echo today to check on the fluid around his heart. And also his eating is still difficult. Kenan is coughing very much too. The doctors will watch now with a sonde how he is eating and to check if milk is going into the lungs.
The time with Kenan’s mother today was very nice. She is a lovely woman. But also she is very, very worried about her son. She hopes that he soon will be so improved that they can return to their home in Gaza.
Please pray for all the issues Kenan is struggling with, that he may be soon more healthy. And let’s pray also for strength for Kenan’s mother.
Kenan’s body is very floppy. He can’t really move his arms or legs. The doctors are concerned he has sustained neurological damage. They will do tests and Kenan will receive physio-therapy.
In addition to that, doctors discovered fluid around Kenan’s heart. But gladly the echo today looked already much better than yesterday’s. I also went with Kenan and his mother to have a chest X-ray done.
It was a big day for Kenan. After the X-ray, he slept shortly and than a nurse fed him with a feeding bottle to find out how well he can suck and swallow. He is a strong guy and could drink a little bit. But he still has to practice a lot. A better pacifier should help him with practicing.
During all the time I spent today with Kenan’s mother, I realized what a wonderful mother she is. She is already friends with many nurses. And all the doctors and nurses love little Kenan.
When we walked through the Secondary ICU, nurses came to Kenan because they were so happy to see him. Please pray for this lovely little boy, that he soon will be better and the doctors can help him further. God brought him already so far!
Today, coworker Willem and I went to Sheba Medical Center to visit Kenan.
Maybe today or tomorrow, Kenan will get a visit from a speech therapist which will see if his reflexes are strong enough to begin receiving food orally, or if he still needs to receive it through a feeding tube.
The doctors said that his cardiac situation is good, that also his lungs are improving and that he is off of oxygen. But now they are mostly concerned about his neurological state because he is not waking up well.
The brain scans showed mild atrophy of the brain which is quite common and doesn’t have to be permanent. He may also have had some epileptic seizures, but there is no clinical confirmation of this. That’s why they recommended a brain MRI and EEG to find out more.
Let’s pray that the doctors can find the best way to treat him!
When we asked the doctor about Kenan this morning at Sheba Medical, he was telling us that after Kenan’s surgery, Kenan at first was really sick but that he was improving. Now he is doing quite well, but is still in a great danger. They also have to check his neurological situation because now that they are reducing his drugs, he probably will have withdrawal symptoms.
The doctor also said that there is still a lot of hope and we could really see this hope in the eyes of his Kenan’s mom. She is such a strong woman and stays with her son faithfully all the time.
Let us thank God that Kenan is improving so well and pray for a full recovery!
But a nurse told us the very good news that Kenan is extubated and doing better. He will still need a while until he will be fully recovered and can go home, but this is already a big step for him.
Let’s continue in prayer that Kenan is improving soon!
I met his mother today and she is a very kind and lovely woman.
Please pray for a good recovery for this cute little boy.
I met Kenan’s mother for the first time and she is very lovely.
We will have more information about the cath results when the report is ready tomorrow. Please pray for a good recovery for little Kenan.
Kenan’s mother was very kind and showed me immediately pictures on her phone of Kenan from before he had trouble breathing in Gaza. I saw that she cares a lot about her son.
We ask for your prayer that the doctors will find the problem and that God will give them wisdom as they are trying to make the best possible treatment plan for Kenan.
Kenan’s tearful mother sent us this video from a Gaza hospital last week, as she watched her son struggling to live.
Tonight she watched a more hopeful scene, as doctors in Israel rallied around her son’s bedside at the Sheba Medical Center: