Ramyar's Heart Surgery

northern Iraq

Surprise Call To Surgery Tomorrow

Posted on Wed, 11/21/2012 - 00:03 by Ruth Zellweger

A phone call from Dr. Alona in the early afternoon brought unexpected news: doctors at Wolfson Hospitalhad changed their surgery schedule. Instead of Rawand, who was already at the hospital for his admission, they wanted Ramyar to come as soon as possible for surgery tomorrow morning. When Kristina shared this with Ramyar's mother she at first did not understand that this meant they would leave in the next hour; when she did, she started with the preparations right away. These were interrupted by an air raid siren over Jerusalem, which meant that our families and staff gathered in the office for the next fifteen minutes of possible incoming rockets. For Ramyar

Off to a Good Start

Posted on Mon, 11/19/2012 - 22:27 by Kelsey Cannon

I met little Ramyar for the first time when we took him into the Wolfson Medical Center today for the customary rounds of preliminary medical testing. Having just arrived from Kurdistan, he was understandably squeamish around the medical personnel swirling about him today. He loudly howled when any of the nurses touched him and refused to accept the ID band on his wrist no matter how many times we told him how beautiful it looked.

Because of his aversion to any and all of his tests, the day started off rather stressful for everyone. But there were some light moments to the day, most notably in the morning when I was able to trade funny faces and some laughs with Ramyar as he munched on his lunch. 

And though all of these tests (blood pressure, temperature, weight, blood tests etc) frazzled poor Ramyar and his mother, they were absolutely necessary. For instance his echocardiogram, arguably the most important diagnostic test of the day, yielded interesting results. 

It seems that in addition to the quartet of defects inherent in a patient with Tetralogy of Fallot (TOF), Ramyar has several other heart defects which work to his advantage in his current condition. He has a larger-than-normal right atria along with a double inlet right ventricle. These latter two defects essentially guarantee that his lungs are supplied with a higher volume of blood than they normally otherwise would. This discovery explained why Ramyar has a oxygen-blood saturation level (95%) much higher than most patients suffering from TOF. It also explains why his skin tone is such a lovely rosy pink. And because Ramyar

Ramyar Reaches Israel

Posted on Mon, 11/19/2012 - 00:04 by Jonathan Miles

Ramyar started winning hearts as soon as he entered Israel this afternoon at the Jordan River crossing. The security supervisor asked him to "Give me five," and was merciful to Ramyar's smiling mother when she couldn't understand any of the Arabic questions.

Tonight Ramyar is resting in Jerusalem (he did go through quite a lot of crying today, due to the unaccustomed restraint of a car seat). Tomorrow he'll face the few challenge of his first exams at hospital in Israel.

Just Turned Two

Posted on Mon, 11/05/2012 - 00:15 by Jonathan Miles

Today the application went in for Ramyar's visa to travel to Israel. He's just turned two years old and this is the ideal time to repair his combination of heart defects, called Tetralogy of Fallot.

Without surgery Ramyar is at risk of sudden death at any time. With surgery he can hope for a full and normal life. We hope to have him in Israel before the end of November.